mecfs

[The headline says Long Covid, so I put it in this forum, but this article also applies to ME/CFS, and probably many more chronic illnesses that aren't well known by the staff in hospital emergency rooms.] Emergency departments aren’t trained for Long COVID — and patients are paying the price

Action alert for US citizens: Action Alert! Tell your Senators to VOTE NO on proposed 57% cut to Research Programs The link above goes to an automated tool for contacting your US senators to ask them to vote NO. Details:

#MEAction’s Medical Flashcards Featured by CDC! #MEAction is asking folks to participate in their Reddit Q&A session with medical students. Date: Monday, February 24 Time: Noon to 5 PM Eastern time

Article from The Sick Times: Now offline: Government resources about Long COVID as a disability (headline refers to the US government)

The Arctic Plague Ship That Disabled A Best Selling Author https://www.donotpanic.news/p/the-arctic-plague-ship-that-disabled

My Mom was disabled by ME, but I didn’t understand until I developed Long COVID. I wrote an apology letter to her. https://thesicktimes.org/2024/12/10/my-mom-was-disabled-by-me-but-i-didnt-understand-until-i-developed-long-covid-i-wrote-an-apology-letter-to-her/ EDIT: This instagram post has...

Does anyone have a strong technical/research background and be interested in speaking to the community on ME/CFS research? I held a Twitter (or X now) Space about a week ago on research in ME/CFS and Long COVID, which was very successful. I’d like to bring on a few “panelists” to have a...

From the #MEAction website: Questions to Ask Prospective MPs About ME/CFS https://www.meaction.net/2024/06/04/questions-to-ask-prospective-mps-about-me-cfs/

Exploring the clinical and immunopathological association between Long COVID and Sjögren's Disease in mice and humans Sponsored by: Olink Proteomics +25pts SPEAKER Cuong Nguyen, PhD Associate Professor, University of Florida BIOGRAPHY EVENT DATE & TIME Date: May 30, 2024 Time: 9:00 AM...

I posted a link to this MEAction article in the News from Organizations section but I thought I should crosspost it here. This year's Millions Missing campaign is called "Teach ME, Treat ME." The focus is medical education. #MillionsMissing Week is Here: #TeachMETreatME in Action...

Katy B @KatyBruce108 It's just been confirmed that the report on #ME #MEcfs will be on @Channel4News this evening. It features Clare Norton, Mother of Merryn Crofts who died from very severe ME in 2017 aged 21. #pwME #MEKills #MedTwitter

Epstein-Barr virus-acquired immunodeficiency in myalgic encephalomyelitis-Is it present in long COVID? Abstract Both myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) and long COVID (LC) are characterized by similar immunological alterations, persistence of chronic viral infection...

3 Years Into Long COVID: Where Do We Go From Here? https://www.medscape.com/viewarticle/993827 "... approximately 6% of all US adults are currently experiencing long COVID, with Hispanic/Latinx individuals, transgender individuals, and cis female individuals facing the highest rates."...

Moved post Predictable... predicted... happening. Ugh. When people say "1 step forward, 2 steps back" it never really accounts for the possibility of steps in random directions that end up looping on themselves. Did I read wrong or I just saw this morning that NICE has basically downgraded the...