A call from patient-researchers to advance research on long COVID
Abstract
Long COVID is a chronic and often disabling illness with long-term consequences. Although progress has been made in the clinical characterization of long COVID, no approved treatments exist and disconnects between...
Hi I wanted to create a thread on the organisation long covid action project to keep up with what they are doing. (A lot of which worries me.)
This organisation says and claims as fact that long covid is a single disease caused by viral persistance. From their front page:
Long Covid is a...
A new US non-profit 501(c)(3) org has been announced:
Long COVID Foundation (LCF):
Website: https://www.longcfoundation.org
Partners:
@LongCovidAP
@LCawarenessInt
@React19org
Long COVID Foundation
@LongCFoundation
We are very pleased to announce the official beginning of the “Long...
“We’re drowning and we’re alone”: a qualitative study of the lived experience of people experiencing persistent post-COVID-19 symptoms
Donna Goodridge; Thomas N. Lowe; Shuang Cai; Flinn N. Herriot; Rachel V. Silverberg; Michael Heynen; Kelly C. Hall; Jaimie Peters; Scotty Butcher; Taofiq...
Metformin reduces SARS-CoV-2 in a Phase 3 Randomized Placebo Controlled Clinical Trial
Carolyn T Bramante; Kenneth B Beckman; Tanvi Mehta; Amy B Krager; David J Odde; Christopher J Tignanelli; John B Buse; Darnell M Johnson; Ray H B Watson; Jerry J Daniel; David M Liebovitz; Jacinda M Nicklas...
Abnormal brain diffusivity in participants with persistent neuropsychiatric symptoms after COVID-19
Huajun Liang; Thomas Ernst; Kenichi Oishi; Meghann C. Ryan; Edward Herskovits; Eric Cunningham; Eleanor Wilson; Shyamasundaran Kottilil; Linda Chang
Objectives
We aimed to compare brain white...
https://longcovidadvocacy.substack.com/p/is-the-greatest-medical-scandal-of
Is the “greatest medical scandal of the last century" being repeated for a generation of children?
Part One - The CLoCK Files, the Crisis in Paediatric Long Covid
In July 2022 Long Covid Advocacy wrote a formal...
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