hospitalisation

Post Acute Sequelae from SARS-CoV-2 (PASC) at University of Illinois Hospital and Clinics – An Examination of the Effects of Long COVID in an Underserved Population, Utilizing Manual Extraction of Electronic Health Records John Musachia, Jon Radosta, Dirin Ukwode, Shahrukh Rizvi, Romani Wahba...

How to be an Effective Advocate for a Disabled Patient https://www.disabledginger.com/p/how-to-be-an-effective-advocate-for Content warning: She lists some examples of patients who have died in the hospital including some who had ME/CFS.

Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206 (preprint) @Jonathan Edwards Abstract: In the United Kingdom, a small but steady stream of people diagnosed with ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome)...

"In response to increasing requests for advocacy support from people with ME/CFS in hospital, including those more severely affected, The 25% ME Group, Action for M.E., Blue Ribbon for the Awareness of ME and the ME Association have co-produced a new resource. Supporting people with ME/CFS in...

Sex differences in post-acute neurological sequelae of SARS-CoV-2 and symptom resolution in adults after coronavirus disease 2019 hospitalization: an international multi-centre prospective observational study 605 authors not listed Although it is known that coronavirus disease 2019 can present...

Full title: Continuity in general practice as predictor of mortality, acute hospitalisation, and use of out-of-hours care: a registry-based observational study in Norway https://bjgp.org/content/early/2021/10/04/BJGP.2021.0340

Full title: Long Covid in adults discharged from UK hospitals after Covid-19: A prospective, multicentre cohort study using the ISARIC WHO Clinical Characterisation Protocol Abstract Background This study sought to establish the long-term effects of Covid-19 following hospitalisation. Methods...

This might be of interest. https://www.bmj.com/content/369/bmj.m1501

Hi all! I'm working to improve the quality of information for patients with ME, fibro, EDS, POTS, mast cell activation disorder having surgery as well as crowdsourcing a set of best practices for hospitals. The former will eventually be packaged into handouts patients can give their surgeon...