heds

  1. forestglip

    Depressive symptoms are highly prevalent and associated with fatigue and pain catastrophizing in [HSD/hEDS]: a cross-sectional study, 2025, Fletcher+

    Depressive symptoms are highly prevalent and associated with fatigue and pain catastrophizing in the Hypermobility Spectrum Disorders and hypermobile Ehlers Danlos syndrome: a cross-sectional study Elizabeth Kathleen Stockton Fletcher, Ashley Loren Fischer, Ranita Harpreet Kaur Manocha [Line...
  2. forestglip

    The prevalence of hypermobile Ehlers–Danlos syndrome at a gender-affirming primary care clinic, 2025, Stein et al

    The prevalence of hypermobile Ehlers–Danlos syndrome at a gender-affirming primary care clinic Theo Stein, Shannon Collins, Joshua St. Louis Objective This study utilized a sample of trangender, nonbinary, and gender-diverse (TGD) patients to build on emerging literature that suggests that...
  3. SNT Gatchaman

    Exploring fatigue in Marfan and hypermobile Ehlers-Danlos syndromes: an analytical cross-sectional study…, 2025, Udugampolage+

    Exploring fatigue in Marfan and hypermobile Ehlers-Danlos syndromes: an analytical cross-sectional study in two Italian healthcare centres Nathasha Udugampolage; Jacopo Taurino; Alessandra Bassotti; Alessandro Pini; Rosario Caruso; Edward Callus; Arianna Magon; Gianluca Conte; Giada De Angeli...
  4. C

    I genuinely cannot tell if this is CFS or my other health problems

    I have a current diagnosis of hEDS (6 points of hypermobility), generalized anxiety disorder, C-PTSD, IBS, and a "seronegative, unspecified autoimmune disorder". I just had a sleep study which identified narcolepsy as well, but ruled out sleep apnea. I have been fatigued as long as I can...
  5. ME/CFS Skeptic

    Relationship between hypermobility and pain

    Have been looking into the relationship between hypermobility on the one hand and pain, disability and health on the other. In other words: do people with hypermobility have more pain and worse health dan people without hypermobility? It seems that there have been quite a few population-based...
  6. E

    Preprint Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome, 2024, Gensemer et al

    Abstract Hypermobile Ehlers-Danlos syndrome (hEDS) is a common heritable connective tissue disorder that lacks a known genetic etiology. To identify genetic contributions to hEDS, whole exome sequencing was performed on families and a cohort of sporadic hEDS patients. A missense variant in...
  7. Jonathan Edwards

    Is joint hypermobility linked to self-reported non-recovery from COVID-19? Case–control evidence ... , 2024, Eccles et al

    Jessica Eccles has been suggesting Long Covid patients are bendy too: https://www.theguardian.com/society/2024/mar/19/people-with-hypermobility-may-be-more-prone-to-long-covid-study-suggests Usual Guardian gossip.
  8. SNT Gatchaman

    Ehlers–Danlos syndromes, hypermobility spectrum disorders, and associated co-morbidities: Reports from EDS ECHO, 2021, Hakim et al.

    Ehlers–Danlos syndromes, hypermobility spectrum disorders, and associated co-morbidities: Reports from EDS ECHO Alan J. Hakim; Brad T. Tinkle; Clair A. Francomano Volume 187, Issue 4 Special Issue: Ehlers‐Danlos syndromes, Hypermobility Spectrum Disorders, and Associated Co‐Morbidities: Reports...
  9. Andy

    RNA-Seq of Dermal Fibroblasts from Patients with Hypermobile Ehlers–Danlos Syndrome and Hypermobility Spectrum Disorders Supports.. 2022 Ritelli et al

    Full title: RNA-Seq of Dermal Fibroblasts from Patients with Hypermobile Ehlers–Danlos Syndrome and Hypermobility Spectrum Disorders Supports Their Categorization as a Single Entity with Involvement of Extracellular Matrix Degrading and Proinflammatory Pathomechanisms Abstract Hypermobile...
  10. Ryan31337

    Functional and structural impairment of small nerve fibers in patients suffering from hEDS/HSD, 2022, Fernandez et al

    Functional and structural impairment of small nerve fibers in patients suffering from hypermobile Ehlers Danlos Syndrome/Hypermobility Spectrum Disorder Aurore Fernandez, Berengere Aubry Rozier, Mathieu Vautey, Chantal Berna, Rene Suter doi.org/10.1101/2022.02.17.22271061...
  11. cassava7

    CFS is commonly diagnosed in patients with Ehlers-Danlos syndrome hypermobility type/joint hypermobility syndrome, 2011, Castori et al.

    Castori M, Celletti C, Camerota F, Grammatico P. Chronic fatigue syndrome is commonly diagnosed in patients with Ehlers-Danlos syndrome hypermobility type/joint hypermobility syndrome. Clin Exp Rheumatol. 2011;29(3):597-598. https://www.clinexprheumatol.org/article.asp?a=4635 No abstract, this...
  12. Sly Saint

    Beyond Bones - relevance of variants of connective tissue (Hypermobility) to Fibromyalgia, ME/CFS - Eccles et al Feb 2020

    BEYOND BONES - THE RELEVANCE OF VARIANTS OF CONNECTIVE TISSUE (HYPERMOBILITY) TO FIBROMYALGIA, ME/CFS AND CONTROVERSIES SURROUNDING DIAGNOSTIC CLASSIFICATION: AN OBSERVATIONAL STUDY This article is a preprint and has not been peer-reviewed [what does this mean?]. It reports new medical research...
    • Sly Saint
    • Thread
    • 2020 connective tissue eccles fibromyalgia heds hypermobility me/cfs paper study
    • Replies: 24
    • Forum: ME/CFS research
  13. Jonathan Edwards

    EDS and ME - is there a connection? hEDS

    Moderator note: This thread has been split from https://www.s4me.info/threads/feedback-from-stakeholder-engagement-workshop-for-the-nice-guidelines-on-me-jan-2018.1964/ I think I may be a knowledgeable specialist in this field since I did the initial study of mitral valve prolapse in...
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