heds

  1. SNT Gatchaman

    Exploring physical activity patterns in adolescents with hypermobility spectrum disorder or hypermobile Ehlers-Danlos Syndrome,2025,Schubert-Hjalmar+

    Exploring physical activity patterns in adolescents with hypermobility spectrum disorder or hypermobile Ehlers-Danlos Syndrome Schubert-Hjalmarsson, Elke; Fridolfsson, Jonatan; Arvidsson, Daniel; Börjesson, Mats; Lundberg, Mari BACKGROUND Pain and fatigue are cardinal symptoms in adolescents...
  2. forestglip

    Depressive symptoms are highly prevalent and associated with fatigue and pain catastrophizing in [HSD/hEDS]: a cross-sectional study, 2025, Fletcher+

    Depressive symptoms are highly prevalent and associated with fatigue and pain catastrophizing in the Hypermobility Spectrum Disorders and hypermobile Ehlers Danlos syndrome: a cross-sectional study Elizabeth Kathleen Stockton Fletcher, Ashley Loren Fischer, Ranita Harpreet Kaur Manocha [Line...
  3. forestglip

    The prevalence of hypermobile Ehlers–Danlos syndrome at a gender-affirming primary care clinic, 2025, Stein et al

    The prevalence of hypermobile Ehlers–Danlos syndrome at a gender-affirming primary care clinic Theo Stein, Shannon Collins, Joshua St. Louis Objective This study utilized a sample of trangender, nonbinary, and gender-diverse (TGD) patients to build on emerging literature that suggests that...
  4. SNT Gatchaman

    Exploring fatigue in Marfan and hypermobile Ehlers-Danlos syndromes: an analytical cross-sectional study…, 2025, Udugampolage+

    Exploring fatigue in Marfan and hypermobile Ehlers-Danlos syndromes: an analytical cross-sectional study in two Italian healthcare centres Nathasha Udugampolage; Jacopo Taurino; Alessandra Bassotti; Alessandro Pini; Rosario Caruso; Edward Callus; Arianna Magon; Gianluca Conte; Giada De Angeli...
  5. C

    I genuinely cannot tell if this is CFS or my other health problems

    I have a current diagnosis of hEDS (6 points of hypermobility), generalized anxiety disorder, C-PTSD, IBS, and a "seronegative, unspecified autoimmune disorder". I just had a sleep study which identified narcolepsy as well, but ruled out sleep apnea. I have been fatigued as long as I can...
  6. ME/CFS Science Blog

    Relationship between hypermobility and pain

    Have been looking into the relationship between hypermobility on the one hand and pain, disability and health on the other. In other words: do people with hypermobility have more pain and worse health dan people without hypermobility? It seems that there have been quite a few population-based...
  7. E

    Preprint Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome, 2024, Gensemer et al

    Abstract Hypermobile Ehlers-Danlos syndrome (hEDS) is a common heritable connective tissue disorder that lacks a known genetic etiology. To identify genetic contributions to hEDS, whole exome sequencing was performed on families and a cohort of sporadic hEDS patients. A missense variant in...
  8. Jonathan Edwards

    Is joint hypermobility linked to self-reported non-recovery from COVID-19? Case–control evidence ... , 2024, Eccles et al

    Jessica Eccles has been suggesting Long Covid patients are bendy too: https://www.theguardian.com/society/2024/mar/19/people-with-hypermobility-may-be-more-prone-to-long-covid-study-suggests Usual Guardian gossip.
  9. SNT Gatchaman

    Ehlers–Danlos syndromes, hypermobility spectrum disorders, and associated co-morbidities: Reports from EDS ECHO, 2021, Hakim et al.

    Ehlers–Danlos syndromes, hypermobility spectrum disorders, and associated co-morbidities: Reports from EDS ECHO Alan J. Hakim; Brad T. Tinkle; Clair A. Francomano Volume 187, Issue 4 Special Issue: Ehlers‐Danlos syndromes, Hypermobility Spectrum Disorders, and Associated Co‐Morbidities: Reports...
  10. Andy

    RNA-Seq of Dermal Fibroblasts from Patients with Hypermobile Ehlers–Danlos Syndrome and Hypermobility Spectrum Disorders Supports.. 2022 Ritelli et al

    Full title: RNA-Seq of Dermal Fibroblasts from Patients with Hypermobile Ehlers–Danlos Syndrome and Hypermobility Spectrum Disorders Supports Their Categorization as a Single Entity with Involvement of Extracellular Matrix Degrading and Proinflammatory Pathomechanisms Abstract Hypermobile...
  11. Ryan31337

    Functional and structural impairment of small nerve fibers in patients suffering from hEDS/HSD, 2022, Fernandez et al

    Functional and structural impairment of small nerve fibers in patients suffering from hypermobile Ehlers Danlos Syndrome/Hypermobility Spectrum Disorder Aurore Fernandez, Berengere Aubry Rozier, Mathieu Vautey, Chantal Berna, Rene Suter doi.org/10.1101/2022.02.17.22271061...
  12. cassava7

    CFS is commonly diagnosed in patients with Ehlers-Danlos syndrome hypermobility type/joint hypermobility syndrome, 2011, Castori et al.

    Castori M, Celletti C, Camerota F, Grammatico P. Chronic fatigue syndrome is commonly diagnosed in patients with Ehlers-Danlos syndrome hypermobility type/joint hypermobility syndrome. Clin Exp Rheumatol. 2011;29(3):597-598. https://www.clinexprheumatol.org/article.asp?a=4635 No abstract, this...
  13. Sly Saint

    Beyond Bones - relevance of variants of connective tissue (Hypermobility) to Fibromyalgia, ME/CFS - Eccles et al Feb 2020

    BEYOND BONES - THE RELEVANCE OF VARIANTS OF CONNECTIVE TISSUE (HYPERMOBILITY) TO FIBROMYALGIA, ME/CFS AND CONTROVERSIES SURROUNDING DIAGNOSTIC CLASSIFICATION: AN OBSERVATIONAL STUDY This article is a preprint and has not been peer-reviewed [what does this mean?]. It reports new medical research...
  14. Jonathan Edwards

    EDS and ME - is there a connection? hEDS

    Moderator note: This thread has been split from https://www.s4me.info/threads/feedback-from-stakeholder-engagement-workshop-for-the-nice-guidelines-on-me-jan-2018.1964/ I think I may be a knowledgeable specialist in this field since I did the initial study of mitral valve prolapse in...
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