heds

Exploring physical activity patterns in adolescents with hypermobility spectrum disorder or hypermobile Ehlers-Danlos Syndrome Schubert-Hjalmarsson, Elke; Fridolfsson, Jonatan; Arvidsson, Daniel; Börjesson, Mats; Lundberg, Mari BACKGROUND Pain and fatigue are cardinal symptoms in adolescents...

Depressive symptoms are highly prevalent and associated with fatigue and pain catastrophizing in the Hypermobility Spectrum Disorders and hypermobile Ehlers Danlos syndrome: a cross-sectional study Elizabeth Kathleen Stockton Fletcher, Ashley Loren Fischer, Ranita Harpreet Kaur Manocha [Line...

The prevalence of hypermobile Ehlers–Danlos syndrome at a gender-affirming primary care clinic Theo Stein, Shannon Collins, Joshua St. Louis Objective This study utilized a sample of trangender, nonbinary, and gender-diverse (TGD) patients to build on emerging literature that suggests that...

Exploring fatigue in Marfan and hypermobile Ehlers-Danlos syndromes: an analytical cross-sectional study in two Italian healthcare centres Nathasha Udugampolage; Jacopo Taurino; Alessandra Bassotti; Alessandro Pini; Rosario Caruso; Edward Callus; Arianna Magon; Gianluca Conte; Giada De Angeli...

I have a current diagnosis of hEDS (6 points of hypermobility), generalized anxiety disorder, C-PTSD, IBS, and a "seronegative, unspecified autoimmune disorder". I just had a sleep study which identified narcolepsy as well, but ruled out sleep apnea. I have been fatigued as long as I can...

Have been looking into the relationship between hypermobility on the one hand and pain, disability and health on the other. In other words: do people with hypermobility have more pain and worse health dan people without hypermobility? It seems that there have been quite a few population-based...

Abstract Hypermobile Ehlers-Danlos syndrome (hEDS) is a common heritable connective tissue disorder that lacks a known genetic etiology. To identify genetic contributions to hEDS, whole exome sequencing was performed on families and a cohort of sporadic hEDS patients. A missense variant in...

Jessica Eccles has been suggesting Long Covid patients are bendy too: https://www.theguardian.com/society/2024/mar/19/people-with-hypermobility-may-be-more-prone-to-long-covid-study-suggests Usual Guardian gossip.

Ehlers–Danlos syndromes, hypermobility spectrum disorders, and associated co-morbidities: Reports from EDS ECHO Alan J. Hakim; Brad T. Tinkle; Clair A. Francomano Volume 187, Issue 4 Special Issue: Ehlers‐Danlos syndromes, Hypermobility Spectrum Disorders, and Associated Co‐Morbidities: Reports...

Full title: RNA-Seq of Dermal Fibroblasts from Patients with Hypermobile Ehlers–Danlos Syndrome and Hypermobility Spectrum Disorders Supports Their Categorization as a Single Entity with Involvement of Extracellular Matrix Degrading and Proinflammatory Pathomechanisms Abstract Hypermobile...

Functional and structural impairment of small nerve fibers in patients suffering from hypermobile Ehlers Danlos Syndrome/Hypermobility Spectrum Disorder Aurore Fernandez, Berengere Aubry Rozier, Mathieu Vautey, Chantal Berna, Rene Suter doi.org/10.1101/2022.02.17.22271061...

Castori M, Celletti C, Camerota F, Grammatico P. Chronic fatigue syndrome is commonly diagnosed in patients with Ehlers-Danlos syndrome hypermobility type/joint hypermobility syndrome. Clin Exp Rheumatol. 2011;29(3):597-598. https://www.clinexprheumatol.org/article.asp?a=4635 No abstract, this...

BEYOND BONES - THE RELEVANCE OF VARIANTS OF CONNECTIVE TISSUE (HYPERMOBILITY) TO FIBROMYALGIA, ME/CFS AND CONTROVERSIES SURROUNDING DIAGNOSTIC CLASSIFICATION: AN OBSERVATIONAL STUDY This article is a preprint and has not been peer-reviewed [what does this mean?]. It reports new medical research...

Moderator note: This thread has been split from https://www.s4me.info/threads/feedback-from-stakeholder-engagement-workshop-for-the-nice-guidelines-on-me-jan-2018.1964/ I think I may be a knowledgeable specialist in this field since I did the initial study of mitral valve prolapse in...