[The headline says Long Covid, so I put it in this forum, but this article also applies to ME/CFS, and probably many more chronic illnesses that aren't well known by the staff in hospital emergency rooms.]
Emergency departments aren’t trained for Long COVID — and patients are paying the price
How to be an Effective Advocate for a Disabled Patient
https://www.disabledginger.com/p/how-to-be-an-effective-advocate-for
Content warning: She lists some examples of patients who have died in the hospital including some who had ME/CFS.
Article from the official FTC (Federal Trade Commission) government website:
https://www.ftc.gov/business-guidance/blog/2023/03/ftc-says-online-counseling-service-betterhelp-pushed-people-handing-over-health-information-broke
(line breaks added)
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