I have just sent the following letter to AfME, signed by 15 forum members, including the 5 available committee members
To discuss the document and AfME's promotion of it, go to this thread:
https://www.s4me.info/threads/care-and-support-plan-template-free-to-download-action-for-me.39801/...
Aim
To identify activities which people with Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) report are impacted by their condition, and evaluate the ability of measures of function used by National Health Service (NHS) ME/CFS Services to represent these experiences.
Method
122...
https://meassociation.org.uk/2023/05/me-association-funds-research-for-a-new-clinical-assessment-toolkit-in-nhs-me-cfs-specialist-services/
ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services.
"The ME Association is very pleased to announce...
https://www.nbt.nhs.uk/our-services/a-z-services/bristol-chronic-fatigue-syndromeme-service
They have yet to update the website where Chronic fatigue syndrome/ME is used .
eg
Chronic Fatigue Syndrome/ME Therapy...
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