feeding

https://www.nice.org.uk/guidance/ng206/evidence/january-2025-surveillance-of-myalgic-encephalomyelitis-or-encephalopathychronic-fatigue-syndrome-15251111533?tab=evidence Quoting the whole statement: January 2025 surveillance of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue...

Only image of first page is available but still thought it might be worth posting due to the subect matter. Paywall

In November, as part of the UK Malnutrition Awareness Week, Helen Baxter of The 25% ME Group gave a presentation at the Malnutrition Taskforce Learning Event on how dietitians and the wider MDT can help people with ME. You can watch the presentation on YouTube, and a transcript is available...

Five pages of posts have been moved from George Monbiot on ME/CFS, PACE, BPS and Long Covid As background: Some of these posts consider the question of whether current assisted feeding policy in the UK prevents some interventions for people who have decision-making capacity and do not have...

Full title: Avoiding the use of long-term parenteral support in patients without intestinal failure: A position paper from the European Society of Clinical Nutrition & Metabolism, the European Society of Neurogastroenterology and Motility and the Rome Foundation for Disorders of Gut–Brain...

"Failings in the care of patients with Very Severe ME" by Dr Nigel Speight https://meglobalchronicle.wordpress.com/2024/03/12/failings-in-the-care-of-patients-with-very-severe-me-vsme/ A shocking new article by Dr Nigel Speight who helps many desperate young people with ME and their families...

Moderation note: A series of posts have been moved from United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media. There are more helpful discussions on that thread also relevant to this thread, ************** I see a different side to the problem, keeping away...

This thread is for social media and general media items about people in the United Kingdom with both ME/CFS and severe problems in achieving adequate nutrition. Please avoid speculating about the health or other personal aspects of people mentioned. There is general discussion about severe...

Coda article, When the doctor doesn't listen, David Tuller (focus on Maeve O'Neill's story) https://www.codastory.com/waronscience/chronic-fatigue-syndrome-long-covid-unexplained-symptoms/ Moderator note: We have an In Memory thread for Maeve here: Maeve O'Neill For general discussion of the...