dysautonomia

  1. hotblack

    Review Immunotherapies for POTS, Other Common Autonomic Disorders and Long COVID: Current State and Future Direction, 2025, Blitshteyn et al

    Immunotherapies for Postural Orthostatic Tachycardia Syndrome, Other Common Autonomic Disorders and Long COVID: Current State and Future Direction Blitshteyn, S., Funez-dePagnier, G., Szombathy, A., & Hutchinson, M Abstract Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic...
  2. SNT Gatchaman

    Preprint Dysautonomia in long COVID is prevalent and could explain the frequency of symptoms, 2025, Tamariz, Klimas+

    Dysautonomia in long COVID is prevalent and could explain the frequency of symptoms Leonardo Tamariz; Irina Rozenfeld; Rafael Iglesias; Elizabeth Bast; Santiago Avecillas; Lina Shehadeh; Nancy Klimas; Ana Palacio BACKGROUND Long COVID presents with a variety of symptoms. Some of those symptoms...
  3. PrairieLights

    Dysautonomia

    I'm not really sure where to post as this topic is orthostatic intolerance and I see mention of POTS, I believe both are types of dysautonomia (POTS definitely is). Until recently, I didn't know that dysautonomia was part of ME Cfs or commonly comorbid. I have dysautonomia but not one that...
  4. mango

    A pilot self-advocacy program by Awareness for POTSies

    Rachel, the founder of Awareness for POTSies, has developed an online pilot self-advocacy program as a part of her doctoral training at The George Washington University. It's free to sign up at the moment. https://www.awarenessforpotsies.org/self-advocacy-program I'd like to warmly recommend...
  5. Sly Saint

    Book Review: The Dysautonomia Project – Understanding Autonomic Nervous System Disorders for Physicians and Patients

    https://bjgplife.com/book-review-the-dysautonomia-project-understanding-autonomic-nervous-system-disorders-for-physicians-and-patients/
  6. MrMagoo

    ME Association funds development of new protocol for Dysautomnia

    https://meassociation.org.uk/2024/06/me-association-professor-manoj-sivan-to-develop-new-protocol-for-dysautonomia-in-me-cfs-and-long- sorry Dont know how to copy the text
  7. P

    Exploring the clinical and immunopathological association between Long COVID and Sjögren's Disease in mice and humans

    Exploring the clinical and immunopathological association between Long COVID and Sjögren's Disease in mice and humans Sponsored by: Olink Proteomics +25pts SPEAKER Cuong Nguyen, PhD Associate Professor, University of Florida BIOGRAPHY EVENT DATE & TIME Date: May 30, 2024 Time: 9:00 AM...
  8. ahimsa

    Ground Truths (podcast by Eric Topol) episode: "Svetlana Blitshteyn: On the Front Line With Long Covid and POTS"

    An episode from Ground Truths, a podcast by Eric Topol: Svetlana Blitshteyn: On the Front Line With Long Covid and POTS https://erictopol.substack.com/p/svetlana-blitshteyn-on-the-front Episode is about 53 minutes long. Transcript included.
  9. SNT Gatchaman

    Review Post-COVID dysautonomias: what we know and mainly what we don’t know, 2024, Goldstein, David S.

    Post-COVID dysautonomias: what we know and mainly what we don’t know Goldstein, David S. Following on from the COVID-19 pandemic is another worldwide public health challenge that is referred to variously as long COVID, post-COVID syndrome or post-acute sequelae of SARS-CoV-2 infection (PASC)...
  10. Hoopoe

    SCN9A variant and dysautonomia

    A clinical geneticist believes that a rare variant in the SCN9A gene could be responsible for at least a part of my symptoms. The variant is extremely rare (1 in 1.4 million alleles) and not found in healthy people. The gene is associated with small fibre neuropathy which would fit, but there...
  11. SNT Gatchaman

    Dysautonomia, but Not Cardiac Dysfunction, Is Common in a Cohort of Individuals with Long COVID, 2023, Tabacof, Putrino et al.

    Dysautonomia, but Not Cardiac Dysfunction, Is Common in a Cohort of Individuals with Long COVID Tabacof, Laura; Wood, Jamie; Breyman, Erica; Tosto-Mancuso, Jenna; Kelly, Amanda; Wilkey, Kaitlyn; Zhang, Chi; Putrino, David; Kontorovich, Amy Despite the prevalence of dysautonomia in people with...
  12. Sly Saint

    Similar Patterns of Dysautonomia in Myalgic Encephalomyelitis/Chronic Fatigue and Post-COVID-19 Syndromes 2023, Ryabkova et al

    Abstract Background There is a considerable overlap between clinical presentation of post-COVID-19 condition (PCC) and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) . Many of their common symptoms can be linked to dysregulation of the autonomic nervous system (dysautonomia). This...
  13. SNT Gatchaman

    Internal tremors and vibrations in long COVID: a cross-sectional study, 2023, Zhou, Iwasaki et al.

    Link to post on published version Internal tremors and vibrations in long COVID: a cross-sectional study Tianna Zhou; Mitsuaki Sawano; Adith S. Arun; César Caraballo; Teresa Michelsen; Lindsay McAlpine; Bornali Bhattacharjee; Yuan Lu; Rohan Khera; Chenxi Huang; Frederick Warner; Akiko Iwasaki...
  14. SNT Gatchaman

    Trial Report The Long-COVID autonomic syndrome in hospitalized patients: A one-year prospective cohort study, 2023, Rigo et al.

    The Long-COVID autonomic syndrome in hospitalized patients: A one-year prospective cohort study Stefano Rigo; Franca Barbic; Kareem Khalaf; Andrea Bisoglio; Margherita Pani; Maura Minonzio; Luca Rinaldi; Michele Ciccarelli; Maria Grazia Bordoni; Paolo Verzeletti; Fabio Badilini; Stefanos...
  15. E

    Venous insufficiency and acrocyanosis in long COVID: dysautonomia, 2023, Iftekhar & Sivan

    Venous insufficiency and acrocyanosis in long COVID: dysautonomia A 33-year-old man was referred to our specialist clinic with a 6-month history of a rapid purple discolouration of his legs on standing; he reported that his legs would progressively feel heavy, tingly, itchy, and become dusky in...
  16. SNT Gatchaman

    Vagus nerve inflammation contributes to dysautonomia in COVID-19, 2023, Woo et al.

    Vagus nerve inflammation contributes to dysautonomia in COVID-19 Woo, Marcel S.; Shafiq, Mohsin; Fitzek, Antonia; Dottermusch, Matthias; Altmeppen, Hermann; Mohammadi, Behnam; Mayer, Christina; Bal, Lukas C.; Raich, Lukas; Matschke, Jakob; Krasemann, Susanne; Pfefferle, Susanne; Brehm, Thomas...
  17. Kalliope

    Long COVID: major findings, mechanisms and recommendations, 2023, Davis, Topol et al

    Nature reviews microbiology Long COVID: major findings, mechanisms and recommendations Abstract Long COVID is an often debilitating illness that occurs in at least 10% of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infections. More than 200 symptoms have been identified with...
  18. Samuel

    Circadian skin temperature rhythm and dysautonomia in [ME/CFS]: ... endothelin-1 in vascular dysregulation, 2023, Cambras et al

    Post with a link to the final paper here ******** Source: Research Square Preprint Date: September 21, 2022 URL: https://www.researchsquare.com/article/rs-2044838/v1 Circadian skin temperature rhythm and dysautonomia in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: the role...
  19. ahimsa

    Postural Orthostatic Tachycardia Syndrome as a Sequela of COVID-19, 2022, Ormiston et al

    Abstract Postural Orthostatic Tachycardia Syndrome (POTS) is a complex, multisystem disorder characterized by orthostatic intolerance and tachycardia and may be triggered by viral infection. Recent reports indicate 2-14% of COVID-19 survivors develop POTS and 9-61% experience POTS-like...
  20. M

    Small Fiber Polyneuropathy May Be a Nexus Between Autonomic Nervous System Dysregulation and Pain in Interstitial Cystitis... (2022) Wolff et al

    Full title: Small Fiber Polyneuropathy May Be a Nexus Between Autonomic Nervous System Dysregulation and Pain in Interstitial Cystitis/Bladder Pain Syndrome Abstract: Interstitial cystitis/bladder pain syndrome (IC/BPS) is a highly heterogeneous chronic and debilitating condition which...
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