Core Outcome Measurement Set for Research and Clinical Practice in Post COVID-19 Condition Long COVID in Children and Young People: An International Delphi Consensus Study “PC-COS Children”
Nina Seylanova; Anastasia Chernyavskaya; Natalia Degtyareva; Aigun Mursalova; Ali Ajam; Lin Xiao; Khazhar...
No idea why this came up on a search but it made me laugh.........
Abstract
Objectives : The purpose of this study is to find out the correlation between the Vocal indicators and the 'Buzhongyiqi-Tang questionnaire' and the 'Chalder fatigue scale.'
Methods : This study examined the mean value...
Hi All,
It's be really interested in what people's thoughts are for the most accurate fatigue scales that can be used in research studies?
Ones that also give representation to PEM over time.
The CFQ (chalder fatigue scale/ questionnaire) is often used but has serious limitations.
The DePaul...
Abstract
Background
Fatigue is a common and burdensome symptom in Rheumatoid Arthritis (RA), yet is poorly understood. Currently, clinicians rely solely on fatigue questionnaires, which are inherently subjective measures. For the effective development of future therapies and stratification, it...
Merged thread - article discussed first
Abstract here
Came across this article in the telegraph reporting CBT and exercise improves fatigue in RA:
https://www.telegraph.co.uk/news/2022/06/28/arthritis-getting-positive-thinking-could-ease-symptoms/
It seems to be in connection to this paper...
Pust, G., Pöttgen, J., Randerath, J., Lau, S., Heesen, C., Gold, S. M., & Penner, I. K. (2019). In search of distinct MS-related fatigue subtypes: results from a multi-cohort analysis in 1.403 MS patients. Journal of neurology, 266(7), 1663–1673. https://doi.org/10.1007/s00415-019-09311-2...
Abstract
We surveyed all articles in the Journal of Personality and Social Psychology (JPSP), Psychological Science (PS), and the Journal of Experimental Psychology: General (JEP:G) that mentioned the term “Likert,” and found that 100% of the articles that analyzed ordinal data did so using a...
I have had a letter published in the Journal of the Royal Society of Medicine entitled
‘Measuring improvement and deterioration in myalgic encephalomyelitis/chronic fatigue syndrome: the pitfalls of the Chalder Fatigue Questionnaire’
You can read the letter here (see posts below if you are...
Not a recommendation
http://thebiomedicapk.com/articles/819.pdf
ORIGINAL ARTICLE
Mental Health and Chronic Fatigue Syndrome: Is Mental Health the Culprit Behind Your Fatigue?
Couldn't find this one on the forum already.
Abstract only, https://faseb.onlinelibrary.wiley.com/doi/abs/10.1096/fasebj.31.1_supplement.lb789
Published in FASEB Journal, Special Issue:Experimental Biology 2017 Meeting Abstracts, https://faseb.onlinelibrary.wiley.com/toc/15306860/2017/31/S1
I plan to submit these comments to the current version of the Cochrane review next week (sorry I took me so long to write these down - long story). I thought it might be useful to post it here on S4ME first in case someone notices any mistakes so that I can still correct these before formally...
authors
Joanna Shim, Linda E Dean, Maira Karabayas, Gareth T Jones, Gary J Macfarlane, Neil Basu
Published:
26 April 2020
https://academic.oup.com/rheumatology/advance-article/doi/10.1093/rheumatology/keaa132/5825444?searchresult=1
heavily relies on Chalder Fatigue scale and cites PACE trial
(Mods, do what you will with this.)
This paper from 1998 is regularly cited in various papers as showing that the CFQ is a reliable measure for CFS research.
But read beyond the abstract..........
https://www.sciencedirect.com/science/article/abs/pii/S0022399998000221
so they were...
Mod note: This discussion has been split from a thread in the members only area.
Recently saw this on the Bristol Chronic Fatigue Syndrome/ME Service website (under Research)...
Science for ME are pleased to announce that we have today submitted the following critique of the Chalder Fatigue Questionnaire to the NIH/CDC review. All credit for this submission should go to the authors, we are very grateful for all their hard work.
We have replicated the submission below...
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