Hey everyone!
Just wanted to flag concern about an NHS GP practice called Camphill in Scotland, which has a huge array of ‘wellness’ resources on their website. Some are fine and I have no issue with them but others I find problematic and inappropriate.
In these resources they say that Fibro...
Mindfulness Rebranded: Misappropriation in Modern Medicine
How Jon Kabat-Zinn’s Vision of Mindfulness Became Medical Dogma
LONG COVID ADVOCACY
MAY 21, 2025
Quote:
Cognitive Therapies: Part One
Welcome to this critical exploration of therapeutic uses of mindfulness and meditation in medicine...
Hi all, it came up in another thread that it would be good to have a one-stop shop of all papers or evidence examining the efficacy or risks of CBT/GET for people with ME or LC (LC-ME preferred but my guess is that no relevant studies taking into account PEM specifically will have been done yet...
2010 study
https://www.researchgate.net/publication/40846607_How_does_cognitive_behaviour_therapy_reduce_fatigue_in_patients_with_chronic_fatigue_syndrome_The_role_of_physical_activity
J. F. Wiborg*, H. Knoop, M. Stulemeijer, J. B. Prins and G. Bleijenberg
Expert Centre Chronic Fatigue and...
Abstract
Longitudinal studies have shown that physical illness attributions are associated with poor prognosis in chronic fatigue syndrome (CFS). Speculation exists over whether such attributions influence treatment outcome.
This study reports the effect of illness beliefs on outcome in a...
2009 study
https://www.tandfonline.com/doi/abs/10.1080/09638230500136548
Rona Moss-Morris
Abstract
Chronic fatigue syndrome (CFS) is an illness characterized by disabling fatigue of at least 6 months duration. The purpose of this article is to review the empirical literature on the role of...
Abstract
The British National Institute for Health and Care Excellence (NICE) published its updated guidelines for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in October 2021. NICE concluded, after an extensive review of the literature, that graded exercise therapy (GET) is...
Vink M, Vink-Niese F. Are cognitive behavioral therapy and a group physical and mental health rehabilitation programme effective treatments for long COVID? Rethinking of a systematic review. SciBase Neurol. 2025; 3(1): 1026.
PDF Link
Thread on the review that the paper criticises...
Evaluation of a survey exploring the experiences of adults and children with ME/CFS who have participated in CBT and GET interventional programmes
https://www.meaction.net/wp-content/uploads/2019/04/NICE-Patient-Survey-Outcomes-CBT-and-GET-Oxford-Brookes-Full-Report-03.04.19.pdf
FINAL REPORT...
(Not a recommendation, obviously. I'm sharing only for informational purposes.)
TACTIC is a study aiming to develop a cost-effective internet-based treatment for post covid, based on CBT and ACT.
Monica Buhrman, Uppsala University, Sweden.
Currently recruiting (January 2025)...
Characterization, Treatment, and Long-term Follow-up of Fatigued Patients in Primary Care (iFAS)
Elin Lindsäter et al, Karolinska Institutet, Stockholm, Sweden
https://clinicaltrials.gov/study/NCT06786832
Study Start (Estimated): 2025-01
Primary Completion (Estimated): 2027-06
Enrollment...
Cognitive behavioural therapy for anxiety in children and young people on the autism spectrum: a systematic review and meta-analysis
https://link.springer.com/article/10.1186/s40359-021-00658-8
Background
Anxiety is common in youth on the autism spectrum and cognitive behavioural therapy (CBT)...
Re-visiting professional ethics in psychotherapy: reflections on the use of talking therapies as a supportive adjunct for myalgic encephalomyelitis/chronic fatigue syndrome and ‘medically unexplained symptoms’
Joanne Hunt; Charlotte Blease
Following years of debate over the effectiveness of...
A description of the development of an innovative multi-component long COVID treatment program based on central sensitization with preliminary patient satisfaction data
Munipalli; Smith; Baird; Dobrowolski; Allman; Thomas; Bruce
OBJECTIVES
Estimates of the prevalence of Long COVID in the United...
Interventions for the management of long covid post-covid condition: living systematic review
Dena Zeraatkar; Michael Ling; Sarah Kirsh; Tanvir Jassal; Mahnoor Shahab; Hamed Movahed; Jhalok Ronjan Talukdar; Alicia Walch; Samantha Chakraborty; Tari Turner; Lyn Turkstra; Roger S McIntyre; Ariel...
Free fulltext:
https://www.scibasejournals.org/neurology/1022.pdf
Confirmed: The Conclusion by NICE that CBT is not an Effective Treatment for ME/CFS; Re-Analysis of a Systematic Review
Abstract
In this article, we analyzed the systematic review by Kuut et al. into the efficacy of cognitive...
I posted about this issue in the News from Scandinavia thread last week, but as things keep unfolding I think it deserves its own thread.
A massive thank you to patient advocates @MittEremltage, @Clementine and others, for digging into this and doing a phenomenal job trying to hold the...
A perfect example of garbage in, garbage out.
An AI generated response.
Insight from top 4 papers
To combat Chronic Fatigue Syndrome/Myalgic Encephalitis (CFS/ME), a multi-faceted approach is recommended. Research suggests that a concentrated intervention program involving education, cognitive...
Hi I’m interested in having a copy of the documents in the subsection “for doctors” and “for patients” in this me-pedia page https://me-pedia.org/wiki/PACE_trial_documents
However when I download them I just get a html version of the mepedia front page. Not sure if its because im on my phone...
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