care

  1. T

    "Caring for people with ME/CFS who are bedbound" (2023)

    "Caring for people with ME/CFS who are bedbound" (2023) 8-page fact sheet from Emerge Australia https://emerge.org.au/wp-content/uploads/2023/04/caringforpeoplewithmecfswhoarebedbound.pdf
  2. Sly Saint

    Caring for the Patient with Severe or Very Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Montoya,Chu, Dimmock,Mooney, Dowell

    Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) can cause a wide range of severity and functional impairment, leaving some patients able to work while others are homebound or bedbound. The most severely ill patients may need total care. Yet, patients with severe or very...
    • Sly Saint
    • Thread
    • amy mooney care chu dowell guidelines mary dimmock me/cfs montoya severe very severe
    • Replies: 2
    • Forum: ME/CFS research
  3. Sly Saint

    IiMER : Caring for Someone with Severe ME

    https://www.investinme.org/20CNY/20CNY08adv.shtml
  4. Sly Saint

    Perceptions of Person-Centred Care Amongst Individuals with Chronic Conditions who Consult Complementary Medicine Practitioners - Foley et al 2020

    https://www.sciencedirect.com/science/article/abs/pii/S0965229920305112
    • Sly Saint
    • Thread
    • care chronic conditions complementary and alternative treatments
    • Replies: 3
    • Forum: Other treatments
  5. Sly Saint

    Article (Australia): Thirty-five-year-old living [with ME] in aged care reveals what life is like inside during this pandemic

    Ketra has been forced to live in an aged care facility due to her severe chronic fatigue syndrome. Unable to find suitable accommodation elsewhere, Ketra has had no choice but to stay, and now she's trapped inside as the coronavirus pandemic continues. full article...
  6. Sly Saint

    Ireland - Positive Preliminary Meeting with Minister re Future of Care for M.E. Dec 2019

    On Wed 4th December 2019 members of ME Advocates Ireland (MEAI) met with Minister for Health, Simon Harris TD. By Joan Byrne full blog here https://meadvocatesireland.blogspot.com/2019/12/positive-preliminary-meeting-with.html
  7. Andy

    Rethinking the Standard of Care for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2019, Friedberg, Sunnquist and Nacul

    Open access, https://link.springer.com/article/10.1007%2Fs11606-019-05375-y
    • Andy
    • Thread
    • 2019 care friedberg me/cfs nacul paper sunnquist treatment
    • Replies: 26
    • Forum: ME/CFS research
  8. Sly Saint

    Overcoming Barriers to Access Care - Hosted by Bateman Horne Center - Wed 2 Oct 2019

  9. John Mac

    Editorial: Advances in ME/CFS Research and Clinical Care. Friedman, Bateman, Bested, Nahle.

    From frontiers in Pediatrics https://www.frontiersin.org/articles/10.3389/fped.2019.00370/full
    • John Mac
    • Thread
    • bateman bested care friedman me/cfs nahle research treatment
    • Replies: 5
    • Forum: ME/CFS research
  10. A

    Care cuts

    From the guardian. I have reservations about appropriate care for those with severe ME being able to be provided. https://www.theguardian.com/society/2018/mar/27/disabled-people-independent-living-care-homes
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