bacme

article The challenges from diagnosis to treatment mean that ME/CFS can have a dramatic impact on patients’ lives. Representatives from the British Association of Clinicians in ME/CFS (BACME) provide further insights...

BACME Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) October 2020, updated 2022 https://bacme.info/wp-content/uploads/2022/05/BACME-Position-Paper-on-the-Management-of-ME-CFS-October-2020.pdf We have probably discussed this before. I want to...

from their website Site Map - BACME Primary Fatigue Service (for ME/CFS and Long COVID) South Yorkshire and North Derbyshire ME/CFS Service ME/CFS and Fibromyalgia Service, Royal London Hospital for Integrated Medicine Royal London Hospital for Integrated Medicine: Physiotherapy for...

ME Association: NHS England Launches New E-learning Module on ME/CFS! Forward-ME were offered two places at last week's British Association of Clinicians in ME/CFS (BACME) conference and Russell Fleming from the ME Association was able to attend. At the conference, and as part of the Delivery...

Developing a clinical assessment toolkit for people with ME/CFS and clinical services. Part 1: The Index of ME Symptoms (TIMES) We are asking adults who have been diagnosed with myalgic encephalomyelitis (ME) (also known as chronic fatigue syndrome (CFS)), including those whose ME/CFS was...

Copied post From: Dr. Marc-Alexander Fluks Source: British Association of Clinicians in ME/CFS (BACME) Date: October 23, 2023 URL: https://bacme.info BACME 2023 National Services Survey Report ------------------------------------------ The BACME team are pleased to announce publication of...

From May 2023 https://www.generali.co.uk/Media/Podcasts.html article and partial transcript here https://www.hrgrapevine.com/content/article/from-long-covid-to-me-chronic-fatigue-syndrome-cfs-latest-trends-employer-support-generali-uk-employee-benefits

https://meassociation.org.uk/2023/05/me-association-funds-research-for-a-new-clinical-assessment-toolkit-in-nhs-me-cfs-specialist-services/ ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services. "The ME Association is very pleased to announce...

Bias, misleading information and lack of respect for alternative views have distorted perceptions of myalgic encephalomyelitis/chronic fatigue syndrome and its treatment Abstract The PACE trial is one of the most recent studies evaluating cognitive behavioural therapy and graded exercise...

event Living with ME and Chronic Fatigue Syndrome Sept 22 'evidence-based guide' ? https://www.eventbrite.co.uk/e/living-with-me-and-chronic-fatigue-syndrome-tickets-400805137957?aff=ebdsoporgprofile

This public thread is for general discussion of the much anticipated NICE 2021 ME/CFS Guideline including media and social media responses and other organisations' press releases. The NICE ME/CFS Guideline Project documents page gives links to: the Final Guideline the Evidence Review the...

https://domsalisbury.github.io/mecfs/bacme_dysregulation/ I have written more about the emerging theme of a 'dysregulation model of ME/CFS' from members of BACME, and what this might actually mean in practice. Coincidentally, @Sly Saint has today posted about an addition to the BACME website...

https://www.bacme.info/sites/bacme.info/files/BACME%20Position%20Paper%20on%20the%20Management%20of%20ME-CFS%20October%202020.pdf Available directly from their home page, https://www.bacme.info/ My guess (I have no insider knowledge) is that this gives a strong indication of how the revised...

Moderator note: We've merged a number of threads to collect Naomi's blog posts into one thread. An article originally printed December 2016 but now updated with an audio version as well...

https://www.bacme.info/sites/bacme.info/files/BACME%20CFS%20ME%20National%20services%20survey%20March19.pdf

see the one for QMUL here: https://www.s4me.info/threads/2014-impact-case-study-queen-mary-university-of-london-qmul-cfs.7076/ this one is also included on that thread but thought I'd go through it given recent events with MS. so this is what we have to thank Oxford University for: [no...

New BACME guidelines for severe ME See post #17 for copy of the 2019 BACME document and post #43 for the 2024 update " The Sussex ME Society works for the nearly 5,000 people in the county affected by Myalgic Encephalopathy (ME) or Chronic Fatigue Syndrome(CFS) including many people from the...

CFS/ME National Services Survey Feb 2018 Snap shot audit BACME National Services Workstream Report Published March 2019 https://www.bacme.info/sites/bacme.info/files/BACME CFS ME National services survey March19.pdf

Didn't know where to post this or if it has been posted before; https://www.qmul.ac.uk/wolfson/media/wolfson/ref-2014-results/UoA2-chronic_fatigue_syndrome.pdf We have so much to thank QMUL for

Taken from a blog originally from 2011 but the comments go on to 2018; other comments: in the interest of being equipoise, a more positive comment (although Dr Murphy knew that the patient was a medical student): full blog here...