Ensuring the Voice of the Very Severely Affected Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patient Is Heard in Research—A Research Model
25% ME Group
Abstract
Most of the research about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has focused on ambulant patients who...
Hi All,
I have just had a request from the Department of Health & Social Care policy team for a citation supporting the often cited statistic that 25% of people with ME are severely or very severely affected.
Does anyone have a supported source for this? My first round of searches (ME-paedia...
The 25% ME Group: The Crushing Physical Burden of ME
by Simon Lawrence of the 25% ME Group for those with severe ME on 14/08/2018
https://25megroup.org/the-crushing-physical-burden-of-me
There is clear evidence that ME is not the same as depression or any other psychiatric disorder. In 2015...
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