Search results

  1. mlapenna

    My e-book “Tracing Chronic Fatigue Syndrome to mtDNA” will be free Wednesday and Thursday on Amazon

    Congratulations. Anyone who has shared their knowledge and gone to the effort of publishing a book deserves praise.
  2. mlapenna

    New Research Studies Posted at CFS/ME Registry

    Yes Trish, I am aware of SolveCFS's effort. I had a long conversation with Allison @ SolveCFS where we compared notes. There are a few differences between our approaches.
  3. mlapenna

    New Research Studies Posted at CFS/ME Registry

    Thank you again for your collective feedback. I have never, nor will ever, share or sell members' information. Based on your comments, I have made the following adjustments: Added a notice for European GDPR (I read the GDPR conditions and it now complies) Adjusted Privacy Policy to address...
  4. mlapenna

    New Research Studies Posted at CFS/ME Registry

    Firstly, thank you for the enormous amount of invaluable feedback. If it were possible, I wish we could all sit in a room for a couple of hours (or more), where I could introduce myself, along with the initiative, you could ask any question and we could collectively debate the answers...
  5. mlapenna

    New Research Studies Posted at CFS/ME Registry

    Thank you Hutan and all the members comments. I will be responding shortly.
  6. mlapenna

    New Research Studies Posted at CFS/ME Registry

    Good day everyone I know this might be out of reach but if you have the energy to participate in CFS/ME related research studies, I have 23 active studies that are currently recruiting participants. Last year I started https://cfsme-registry.info, a global registry of individuals suffering from...
  7. mlapenna

    OMF/Mark Davis Research Update, June 2018

    Excellent. Thank you for posting. I have reached to Chris to see if he needs participants for his work.
  8. mlapenna

    Prime Minister Trudeau apologizes

    Happy to say I had a chance to visit Millions Missing in Toronto today. The team was focused on getting the word out. Its STILL an awareness issue.
Back
Top Bottom