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  1. Shadrach Loom
    Post

    UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group and Living with ME Working Group) and consultation

    The comment below the line from David Church is fair, to some extent: A module which explains that the LP is bollocks would be quite handy.
    Post by: Shadrach Loom, Aug 10, 2023 in forum: News from organisations
  2. Shadrach Loom
    Post

    UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group and Living with ME Working Group) and consultation

    You can make it explicit that a response is organisational, or are we looking at different things? E2A: xposted with @Tao Fogger
    Post by: Shadrach Loom, Aug 9, 2023 in forum: News from organisations
  3. Shadrach Loom
    Post

    UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group and Living with ME Working Group) and consultation

    Acute and primary especially …
    Post by: Shadrach Loom, Aug 9, 2023 in forum: News from organisations
  4. Shadrach Loom
    Post

    UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group and Living with ME Working Group) and consultation

    Is there any plan for S4ME to do a collective response, approved by members? That would not preclude us from responding individually as well.
    Post by: Shadrach Loom, Aug 9, 2023 in forum: News from organisations
  5. Shadrach Loom
    Post

    UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group and Living with ME Working Group) and consultation

    When there are real technical issues, IT get to write the line to take, and they will say “issues with a web hosting provider” or similar deflection.
    Post by: Shadrach Loom, Aug 9, 2023 in forum: News from organisations
  6. Shadrach Loom
    Post

    UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group and Living with ME Working Group) and consultation

    Gov.uk is pretty slick as a CMS. Uploading is trivially easy. It’s the one thing that Government Digital Service could actually do right, given...
    Post by: Shadrach Loom, Aug 9, 2023 in forum: News from organisations
  7. Shadrach Loom
    Post

    UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group and Living with ME Working Group) and consultation

    Fingers crossed. But in the event of NICE-style last minute shenanigans, it would not be unknown for “technical issues” to be the short-term line...
    Post by: Shadrach Loom, Aug 9, 2023 in forum: News from organisations
  8. Shadrach Loom
    Post

    An exploration of victim blaming in ‘medically unexplained symptoms’: Neoliberalism and the need to justify the self, group and the system 2023, Hunt

    It’s a nice idea, but if the best hope is to distract psychologists, and the only way to do so is by insulting them, I’d prefer another patient...
    Post by: Shadrach Loom, Aug 9, 2023 in forum: Other psychosomatic news and research
  9. Shadrach Loom
    Post

    An exploration of victim blaming in ‘medically unexplained symptoms’: Neoliberalism and the need to justify the self, group and the system 2023, Hunt

    That may be true. What purpose does a supposed aetiology of victim-blaming tendencies serve, though, if awareness of victim-blaming is all that is...
    Post by: Shadrach Loom, Aug 9, 2023 in forum: Other psychosomatic news and research
  10. Shadrach Loom
    Post

    An exploration of victim blaming in ‘medically unexplained symptoms’: Neoliberalism and the need to justify the self, group and the system 2023, Hunt

    If Hunt’s arguments about the psychopathology of clinicians have any validity, they should apply to absolutely every professional in every context...
    Post by: Shadrach Loom, Aug 9, 2023 in forum: Other psychosomatic news and research
  11. Shadrach Loom
    Post

    UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group and Living with ME Working Group) and consultation

    The Times article is good, although let down by the description of the symptoms - no PEM. Their writer who lost a daughter has a comment piece as...
    Post by: Shadrach Loom, Aug 9, 2023 in forum: News from organisations
  12. Shadrach Loom
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Magisterial. Thank you, authors.
    Post by: Shadrach Loom, Aug 8, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  13. Shadrach Loom
    Post

    USA: “Movie About M.E." and "Banner for Awareness" (formerly "One Name Campaign")

    That partners page going down is a promising sign of backpedalling pacy enough to satisfy even S4ME’s Tour de France spods.
    Post by: Shadrach Loom, Aug 8, 2023 in forum: General ME/CFS news
  14. Shadrach Loom
    Post

    USA: “Movie About M.E." and "Banner for Awareness" (formerly "One Name Campaign")

    Absolutely right to hold associations to account for lending support to misguided self-publicists.
    Post by: Shadrach Loom, Aug 7, 2023 in forum: General ME/CFS news
  15. Shadrach Loom
    Post

    USA: “Movie About M.E." and "Banner for Awareness" (formerly "One Name Campaign")

    To be fair, though, I’d thought of OMF as essentially being just an offshoot of the Davis/Dafoe empire. However neither is listed as a member of...
    Post by: Shadrach Loom, Aug 7, 2023 in forum: General ME/CFS news
  16. Shadrach Loom
    Post

    USA: “Movie About M.E." and "Banner for Awareness" (formerly "One Name Campaign")

    Is it unfair to suspect that Dafoe is being a little disengenuous? The material that was posted was short and accessible - and it highlighted rape...
    Post by: Shadrach Loom, Aug 7, 2023 in forum: General ME/CFS news
  17. Shadrach Loom
    Post

    USA: “Movie About M.E." and "Banner for Awareness" (formerly "One Name Campaign")

    Or indeed any disease.
    Post by: Shadrach Loom, Aug 7, 2023 in forum: General ME/CFS news
  18. Shadrach Loom
    Post

    A general thread on the PACE trial!

    Does this offer any clues to the identity of the show? Interesting that it’s a specific presenter in the frame, even at this early stage. Maybe a...
    Post by: Shadrach Loom, Aug 6, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  19. Shadrach Loom
    Post

    A general thread on the PACE trial!

    That’s excellent news, just the sort of TV investigation we were discussing recently. I don’t blame the MEA for the people on FB getting the wrong...
    Post by: Shadrach Loom, Aug 6, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  20. Shadrach Loom
    Post

    USA: “Movie About M.E." and "Banner for Awareness" (formerly "One Name Campaign")

    Wut.
    Post by: Shadrach Loom, Aug 5, 2023 in forum: General ME/CFS news
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