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  1. bobbler
    Thread

    The Canary: The two leading UK ME/CFS charities are linked to an organisation fomenting the psychologisation of the illness, 2024, Hannah Sharland

    Link to article: BACME: ME/CFS charities work with psychologising organisation (thecanary.co) I've picked out the following as the intro, but...
    Thread by: bobbler, Apr 25, 2024 at 9:16 AM, 24 replies, in forum: General ME/CFS news
  2. bobbler
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    if we have an idea more specifically of what we think is needed /could be useful, then perhaps phrasing a question along those terms is the...
    Post by: bobbler, Apr 24, 2024 at 9:14 PM in forum: ME/CFS research news
  3. bobbler
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Agreed there are interesting aspects to this. I just don't know how this question can be asked at the same time as the others and it not leading...
    Post by: bobbler, Apr 24, 2024 at 8:37 PM in forum: ME/CFS research news
  4. bobbler
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Agreed. I struggle for words that will get this across to others with the right nuance but there are certain positions and certain aspects that...
    Post by: bobbler, Apr 24, 2024 at 7:10 PM in forum: ME/CFS research news
  5. bobbler
    Post

    Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?

    On that note. And maybe it is cloud-cuckoo land, but there is stuff we can do if we start actually thinking like this. The 'what's in it for me'...
    Post by: bobbler, Apr 24, 2024 at 5:09 AM in forum: General ME/CFS discussion
  6. bobbler
    Post

    Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?

    And a lot of people will go to somewhere or someone with an intent of being quite 'transactional', they want something and they have a plan to get...
    Post by: bobbler, Apr 24, 2024 at 4:42 AM in forum: General ME/CFS discussion
  7. bobbler
    Post

    Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?

    Of course what you are talking about is: ethics. There is genuine denial, which I don't doubt is also the case. And then there is also 'don't...
    Post by: bobbler, Apr 24, 2024 at 4:22 AM in forum: General ME/CFS discussion
  8. bobbler
    Post

    Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?

    I've copied the following quote from David Tuller's interview with George Monbiot, Trial By Error: Guardian Columnist George Monbiot Discusses His...
    Post by: bobbler, Apr 24, 2024 at 4:06 AM in forum: General ME/CFS discussion
  9. bobbler
    Post

    Trial Report Explanation for symptoms and biographical repair in a clinic for persistent physical symptoms, 2024, Burton

    Biographical repair from the same people who keep the foot on the neck via misinformation that means we live in epistemic injustice where everyone...
    Post by: bobbler, Apr 24, 2024 at 3:48 AM in forum: Other psychosomatic news and research
  10. bobbler
    Post

    New Zealand: Dr Vallings

    :hug::banghead: I don't know anything about whether what I'm about to say is nonsense because I'm only quoting a few I know but this sounds more...
    Post by: bobbler, Apr 23, 2024 at 11:32 PM in forum: Other clinics and doctors
  11. bobbler
    Post

    New Zealand: Dr Vallings

    agreed. I've years ago having slept through alarm for something extremely important often found that I'd managed to sleep with my actual ear on...
    Post by: bobbler, Apr 23, 2024 at 11:27 PM in forum: Other clinics and doctors
  12. bobbler
    Post

    Anyone tried H2O2 therapy?

    But it is what bleach is? This is what is used to bleach hair. It can bleach teeth. It will bleach clothes if it drops on them etc. It smells of...
    Post by: bobbler, Apr 23, 2024 at 11:15 PM in forum: Other treatments
  13. bobbler
    Post

    Anyone tried H2O2 therapy?

    I agree with other people on swallowing hydrogen peroxide - it is not something I'd ever think to do based on what I know of it. Some mouthwashes...
    Post by: bobbler, Apr 23, 2024 at 11:08 PM in forum: Other treatments
  14. bobbler
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    It would be good to get an answer to this one - what for example happens if someone is particularly charismatic and it is the trustees who...
    Post by: bobbler, Apr 23, 2024 at 10:58 PM in forum: ME/CFS research news
  15. bobbler
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    and with sufficient time and process that perhaps those patients who are respected as having more experience in certain areas are able to read and...
    Post by: bobbler, Apr 23, 2024 at 10:33 PM in forum: ME/CFS research news
  16. bobbler
    Post

    Webinar 4th June 2024: Royal College of Physicians Edinburgh RCPE: ME/CFS and Long COVID

    People's thoughts on whether there are any 'catches' I've missed? It feels like being able as a community to find ways to get as many people as...
    Post by: bobbler, Apr 23, 2024 at 10:32 PM in forum: General ME/CFS news
  17. bobbler
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I don't think that you can always foresee everything - hence the control mechanism bit being the issue (and I don't know what is available there)....
    Post by: bobbler, Apr 23, 2024 at 10:27 PM in forum: ME/CFS research news
  18. bobbler
    Post

    Webinar 4th June 2024: Royal College of Physicians Edinburgh RCPE: ME/CFS and Long COVID

    Programme: Improving our clinical understanding of infection-related chronic illness 18.00 Introduction & Welcome by Dr Kerri Baker, Dean of...
    Post by: bobbler, Apr 23, 2024 at 9:57 PM in forum: General ME/CFS news
  19. bobbler
    Thread

    Webinar 4th June 2024: Royal College of Physicians Edinburgh RCPE: ME/CFS and Long COVID

    I've seen this mentioned on social media so thought I'd link to it here. I think it looks good from the speakers....
    Thread by: bobbler, Apr 23, 2024 at 9:56 PM, 4 replies, in forum: General ME/CFS news
  20. bobbler
    Post

    Australia: RACGP: GET for CFS

    is this one of those areas where they've worked out they are as close as they can get to something for which they can do harm but can't be sued....
    Post by: bobbler, Apr 23, 2024 at 8:35 PM in forum: Other guidelines
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