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  1. BrightCandle
    Post

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    Merged thread UK ME Research Collaborative (MERC) - Applications invited for Patient Advisory Group until end of Feb 2023...
    Post by: BrightCandle, Dec 6, 2022 in forum: News from organisations
  2. BrightCandle
    Post

    Neutrophil issues

    Looks like a nice relatively simple diagnostic test. I really don't care if it shows up in other diseases, it just shows there is a common thread...
    Post by: BrightCandle, Nov 28, 2022 in forum: Immunological
  3. BrightCandle
    Post

    Blood clot drug totally ineffective as post-Covid treatment, research finds. Results from UK-wide trials on anticoagulant Apixaban

    Dr Resia Pretorius has had the protocol including anti clotting and anti platelet since the beginning when they analysed the make up of the clots...
    Post by: BrightCandle, Nov 28, 2022 in forum: Long Covid research
  4. BrightCandle
    Post

    Paucity of ME/CFS research in 2022

    Long Covid papers have been pretty much outpacing ME/CFS at a rate of 4:1 all year. ME/CFS hasn't received any more funding but Long Covid sure...
    Post by: BrightCandle, Nov 26, 2022 in forum: ME/CFS research news
  5. BrightCandle
    Post

    Recapitulation of pathophysiological features of AD [Alzheimer’s disease] in SARS-CoV-2 infected subjects, 2022/3, Griggs et al

    There is a brain bank in the UK and with the NIH in the USA, there just isn't any researchers interested in bodies/brains from ME/CFS patients and...
    Post by: BrightCandle, Nov 26, 2022 in forum: Long Covid research
  6. BrightCandle
    Post

    The prevalence of stigma in a UK community survey of people with lived experience of long COVID 2022 Pantelic et al

    In the USA they seem to be accepting patients more than in the UK and I suspect part of the reason is just their goals are aligned. Patients want...
    Post by: BrightCandle, Nov 26, 2022 in forum: Long Covid research
  7. BrightCandle
    Post

    Neuropsychiatric Consequences of COVID-19 Pandemic: A Synthetic Review from a Global Perspective 2022 Pandi-Perumal et al

    That is some grade A gaslighting of Long Covid patients as Psychosomatic! Medicine is really struggling with the concept of illness.
    Post by: BrightCandle, Nov 26, 2022 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. BrightCandle
    Post

    The prevalence of stigma in a UK community survey of people with lived experience of long COVID 2022 Pantelic et al

    Shame its paywalled I am quite interested in whether this is a general question on stigma associated with everyone or just from doctors. I guess...
    Post by: BrightCandle, Nov 26, 2022 in forum: Long Covid research
  9. BrightCandle
    Post

    Lactobacillus reuteri tryptophan metabolism promotes host susceptibility to CNS autoimmunity, 2022, Theresa L. Montgomery et al

    BioGaia is the name of the company that does a human variant of this bacteria. Its quite expensive so if you want to try introducing it I suggest...
    Post by: BrightCandle, Nov 26, 2022 in forum: Other health news and research
  10. BrightCandle
    Post

    Ken Ware - Neurophysics therapy

    I found the channel, ZHealthPerformance they finally posted a new video! This is what I mean about range of motion (circling the knee) training....
    Post by: BrightCandle, Nov 25, 2022 in forum: Other treatments
  11. BrightCandle
    Post

    Post–COVID-19 Symptoms 2 Years After SARS-CoV-2 Infection Among Hospitalized vs Nonhospitalized Patients, 2022, Fernandez-de-las-penas et al

    In a fantasy world where Ron Davis' Itoconate drugs are genuinely the cure and we know about it in the next months my first thought is where I...
    Post by: BrightCandle, Nov 22, 2022 in forum: Long Covid research
  12. BrightCandle
    Post

    United Kingdom: ME Association news

    Who wants to take bets about whether this changes things? Is it just an information issue or something else. Perhaps I should see if my GP is now...
    Post by: BrightCandle, Nov 21, 2022 in forum: News from organisations
  13. BrightCandle
    Post

    I emailed My Doctor 133 Times.. PhilosophyTube

    Oh the irony from the GMC given how its been defending abuse by GPs about complaints around ME/CFS for decades. Its not about what they say its...
    Post by: BrightCandle, Nov 21, 2022 in forum: Other health news and research
  14. BrightCandle
    Post

    Ken Ware - Neurophysics therapy

    This reminds me of something I got from a private physio (after I saw a private knee surgeon who suggested rehab before doing the suggested...
    Post by: BrightCandle, Nov 20, 2022 in forum: Other treatments
  15. BrightCandle
    Post

    United Kingdom: reMEmber news

    Charles Shepards outline, it was recorded so the video's should go up soon.
    Post by: BrightCandle, Nov 19, 2022 in forum: News from organisations
  16. BrightCandle
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    A lot of anger in the Remember meeting around the exclusions from DecodeME. I understand their annoyance as an otherwise excluded person. This...
    Post by: BrightCandle, Nov 19, 2022 in forum: Recruitment into current ME/CFS research studies
  17. BrightCandle
    Post

    Using patient feedback to develop an intervention for Long COVID, current study by Trudie Chalder, 2022

    Its also a hack around the human psychology that repeatedly seeing the same thing said over and over, even with poor evidence, ultimately most...
    Post by: BrightCandle, Nov 18, 2022 in forum: Long Covid research
  18. BrightCandle
    Post

    Post–COVID-19 Symptoms 2 Years After SARS-CoV-2 Infection Among Hospitalized vs Nonhospitalized Patients, 2022, Fernandez-de-las-penas et al

    When these GPs are finally "retrained" they ought to be forced to go back through all the patients they fobbed off and contact them, admit they...
    Post by: BrightCandle, Nov 18, 2022 in forum: Long Covid research
  19. BrightCandle
    Post

    USA: The RECOVER Initiative - Long Covid research

    I have been really concerned about what the RECOVER programme has been funding for a while. Initially they were funding absolutely nothing but...
    Post by: BrightCandle, Nov 18, 2022 in forum: Long Covid news
  20. BrightCandle
    Post

    Funding award: Novel approaches to the investigation of psychobiological mechanisms in functional neurological disorder, Chalder, Pick and Hotopf

    I figured Chalder would be hopping off BPS as it got ridiculed and onto FND as it rose.
    Post by: BrightCandle, Nov 18, 2022 in forum: Other psychosomatic news and research
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