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  1. PeterW
    Post

    Video: Who Funds Research? | Why The Charity Sector is Vital For Long Covid & ME/CFS

    :emoji_clap::emoji_clap::emoji_clap::emoji_clap: Thank you Professor - that is a very useful insight. For what it's worth: So long as the person...
    Post by: PeterW, Apr 9, 2024 in forum: Fundraising
  2. PeterW
    Post

    Video: Who Funds Research? | Why The Charity Sector is Vital For Long Covid & ME/CFS

    Developing the 'Search Engine Optimisation' problem: (This is fundamental because google searching is how most people get information. If ME...
    Post by: PeterW, Apr 9, 2024 in forum: Fundraising
  3. PeterW
    Post

    Video: Who Funds Research? | Why The Charity Sector is Vital For Long Covid & ME/CFS

    My view is that there are already too many ME charities. Adding an additional one would just increase the problem. Ideally a Long Covid charity...
    Post by: PeterW, Apr 8, 2024 in forum: Fundraising
  4. PeterW
    Post

    Video: Who Funds Research? | Why The Charity Sector is Vital For Long Covid & ME/CFS

    The NHS website links to the ME Association website: https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/ Honestly I hear this argument...
    Post by: PeterW, Apr 8, 2024 in forum: Fundraising
  5. PeterW
    Post

    Video: Who Funds Research? | Why The Charity Sector is Vital For Long Covid & ME/CFS

    Hi all, thanks for sharing and talking about this - I am grateful. Firstly, apologies for the length - it was unrehearsed. I hope to get this down...
    Post by: PeterW, Apr 8, 2024 in forum: Fundraising
  6. PeterW
    Post

    Animal research for ME

    Well that's an interesting case example. Do you think such research is acceptable or not acceptable? A few people have said "well there isn't any...
    Post by: PeterW, Jul 21, 2022 in forum: Other research methodology topics
  7. PeterW
    Thread

    Animal research for ME

    A discussion has arisen on the use of animals in biological research into ME. I suspect there is insufficient data to create animal models of ME...
    Thread by: PeterW, Jul 21, 2022, 13 replies, in forum: Other research methodology topics
  8. PeterW
    Post

    United Kingdom: News from Forward-ME Group

    No, the minutes are usually posted on the Forward-ME.co.uk website, but the person who does it just hasn't posted them yet. This is the word doc...
    Post by: PeterW, May 21, 2022 in forum: News from organisations
  9. PeterW
    Post

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    That discussion did feed into this, but I did not expect results to come so quickly. Credit should go to Sonya and the AfME team, with support...
    Post by: PeterW, May 13, 2022 in forum: General ME/CFS news
  10. PeterW
    Post

    The '25% have severe ME' statistic

    I don't think anything we discussed with them was confidential. Broadly speaking they were trying to listen and learn about ME. Before starting a...
    Post by: PeterW, Apr 29, 2022 in forum: Epidemiology (incidence, prevalence, prognosis)
  11. PeterW
    Post

    The '25% have severe ME' statistic

    Thank you all. I have sent the Department of Health & Social Care team the 'Housebound vs non-Housebound" study, which supports the statistic...
    Post by: PeterW, Apr 26, 2022 in forum: Epidemiology (incidence, prevalence, prognosis)
  12. PeterW
    Post

    The '25% have severe ME' statistic

    That you Jonathan. Yes, this is a useful point, however I was given a specific request from Dept of Health, so I was keen to respond to that. We...
    Post by: PeterW, Apr 25, 2022 in forum: Epidemiology (incidence, prevalence, prognosis)
  13. PeterW
    Post

    The '25% have severe ME' statistic

    Brilliant! Thank you! Here's a link to the open source PDF: https://europepmc.org/backend/ptpmcrender.fcgi?accid=PMC5464362&blobtype=pdf
    Post by: PeterW, Apr 25, 2022 in forum: Epidemiology (incidence, prevalence, prognosis)
  14. PeterW
    Thread

    The '25% have severe ME' statistic

    Hi All, I have just had a request from the Department of Health & Social Care policy team for a citation supporting the often cited statistic...
    Thread by: PeterW, Apr 25, 2022, 14 replies, in forum: Epidemiology (incidence, prevalence, prognosis)
  15. PeterW
    Post

    United Kingdom: Action for ME (AfME) news

    I think this is very good news, and glad to see it advertised. We need these kind of people: ME research needs to grow significantly, and that...
    Post by: PeterW, Mar 24, 2022 in forum: News from organisations
  16. PeterW
    Post

    A Picture of_ME: media images of ME

    We have already met our day 1 target. Thank you all. Please keep sharing. There are some fantastically useful thoughts coming in. We will be...
    Post by: PeterW, Feb 16, 2022 in forum: Advocacy Projects and Campaigns
  17. PeterW
    Thread

    A Picture of_ME: media images of ME

    Hi All, Thank-you to those who completed a trial survey regarding images portraying ME in the media. Following yesterday's feedback, we have made...
    Thread by: PeterW, Feb 16, 2022, 7 replies, in forum: Advocacy Projects and Campaigns
  18. PeterW
    Thread

    Communications support: Graphics, writers, websites etc.

    Hello all, Many will not know me, I am part of a few groups campaigning for better recognition of ME and more biomedical research into the...
    Thread by: PeterW, Aug 26, 2021, 3 replies, in forum: General Advocacy Discussions
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