Edobean is now currently live on Twitch doing a charity fundraiser for OMF. [IMG] She will do multiple live streams that will go on between April...
There's a 24 hour charity live stream for Open Medicine Foundation in progress now on Twitch. $911 raised so far, with 11 hours to go! Check it...
"We are looking to submit this Australian version of the Call-For-Change petition to the current Australian Disability Royal Commission and...
First media coverage by STV News in Scotland: https://news.stv.tv/west-central/campaigners-call-for-urgent-targeted-research-into-long-covid...
@winterwren Here's MEAction's MillionsMissing plans for 2022: https://millionsmissing.meaction.net/ In short, self-celebration in May and...
Yes, it's all very similar to a certain other (or not so other) illness. There was media present in Scotland, but I haven't seen any articles...
Today is the day for Twitter protest: [MEDIA] Use the hashtag #researchlongcovid for more biomedical research into long covid and ME/cfs. Feel...
"But otherwise, the Holding Back The Years singer seemed in great health as he performed to a packed crowd at London’s O2 Arena on Wednesday...
It's not the first time Asprusten does something on ME/cfs:...
"Funny" how these guys co-ordinate their media strategies, but are ready to whine about patient activism if we even say a word, not to forget if...
It seems a final decision will be made on April 5th. Very good news, though!
There's more info in the application pdf I linked in my other post, but it's in Norwegian, and I don't think Google Translate translate whole...
The LP-study by Kennair and Landmark have unfortunately gotten a new ethical approval from REK (the Regional Ethics Committee):...
Nina Steinkopf has now written a blog post about yesterday's newspaper drama in Norway. English google-translated version:...
Dagbladet has worked their way down towards being one of the most tabloid of the tabloids, if not THE most tabloid newspaper in Norway, over the...
Someone calling themselves Long Covid Patient Action Group UK on Twitter has announced protests calling for more research into long covid outside...
The fundraising campaign have raised 132 000 Euros so far, or 16,5% of what's the minimum goal of 800 000 euros. You can view the progress via the...
It looks good now, @Forestvon. The text you pasted means "e-mail subscriptions are now turned off". "Annuler" means cancel, so not necessary, eh.
@Forestvon, if you want to unsubscribe you need to click on the "afmeld" link (which means unsubscribe) in the part of the text that reads like...
I got one in the regular folder, but the verification email could end up in the spam folder. If it's not even there I don't know what's up.
Separate names with a comma.