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  1. Remain in Light
    Post

    Is there anything at all that can be done for food intolerances?

    . Let me just say that I suffer as you. Slowly, inexorably I too, am running out of foods that I can tolerate, although I recognise a wrong un...
    Post by: Remain in Light, Mar 12, 2023 in forum: Gastrointestinal and Urinary
  2. Remain in Light
    Post

    Funding of ME/CFS research in the UK

    Jeez, that's depressing
    Post by: Remain in Light, Feb 18, 2022 in forum: Advocacy Projects and Campaigns
  3. Remain in Light
    Post

    Lightning Process study in Norway - Given Ethics Approval February 2022

    A new NEM. Could that be why the LPers fancied chancing their arm again?
    Post by: Remain in Light, Feb 12, 2022 in forum: Psychosomatic research - ME/CFS and Long Covid
  4. Remain in Light
    Post

    Long Covid in the media and social media 2022

    The BBC seems to be shining a little light on LC this morning. Radio 4s Today Program at 8.50am had another young woman talking about similar...
    Post by: Remain in Light, Feb 8, 2022 in forum: Long Covid news
  5. Remain in Light
    Post

    'The real me shining through M.E.': Visualizing masculinity and identity threat in men with ME/CFS, Lucina Wilde et al., 2019

    'The real me shining through M.E.': Visualizing masculinity and identity threat in men with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...
    Post by: Remain in Light, Feb 7, 2022 in forum: Psychosomatic research - ME/CFS and Long Covid
  6. Remain in Light
    Post

    Study protocol ... phase III trial ... of low-dose naltrexone (LDN) in patients with fibromyalgia (INNOVA study), 2022, Younger, Luciano et al

    I have tried this and thought it gave general improvement , until it didn't. Available via an American online pharmacy from India . Took about 3...
    Post by: Remain in Light, Jan 9, 2022 in forum: 'Conditions related to ME/CFS' news and research
  7. Remain in Light
    Post

    Your ME progression in years and stages

    Over the years relapses have been associated additional symptoms and increasing severity, with any subsequent remissions being slower and to a...
    Post by: Remain in Light, Jan 4, 2022 in forum: Epidemiology (incidence, prevalence, prognosis)
  8. Remain in Light
    Post

    Lessons From Heat Stroke for Understanding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Stanculescu, Bergquist et al.

    Ahh, I remember it well... The hot summer of 2018. I worked a physical 12 hour day in sweltering conditions. That night I thought I had heat...
    Post by: Remain in Light, Dec 19, 2021 in forum: ME/CFS research
  9. Remain in Light
    Post

    NEW POLL! Are these good ‘ME’ images for the media? (See explanatory post)

    A picture of my severity might be misinterpreted. Dark shades inside, headphones on, long greasy hair and raggedy beard... Goth rocker . Our...
    Post by: Remain in Light, Dec 8, 2021 in forum: General ME/CFS discussion
  10. Remain in Light
    Post

    A Pro-Inflammatory Gut Microbiome Characterizes SARS-CoV-2 Infected Patients...., 2021, Reinold et al

    Gut microbiome seems quite du monde at present. The man who has been promoting the importance of gut microbiome for years is Ken Lassasen with his...
    Post by: Remain in Light, Dec 7, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  11. Remain in Light
    Post

    Bateman Horne Center: Treating COVID-19 in patients with ME/CFS & severe FM

    I received a diagnosis from a UK ME clinic of Severe ME and FM. Didn't seem unreasonable to me as the pain I suffered had a peculiar quality to...
    Post by: Remain in Light, Dec 4, 2021 in forum: ME/CFS research news
  12. Remain in Light
    Post

    Genome-wide analysis of 53,400 people with irritable bowel syndrome highlights shared genetic pathways with mood and anxiety disorders, 2021, Eijsbout

    https://www.bbc.co.uk/news/health-57821848 Another blow to the "everything in your head" description of as yet not understood diseases.
    Post by: Remain in Light, Nov 6, 2021 in forum: Other health news and research
  13. Remain in Light
    Post

    Improvement Effects of Myelophil on Symptoms of Chronic Fatigue Syndrome in a Reserpine-Induced Mouse Model, 2021, Song et al

    I gave this a go last year with no discernable affect. Presumably the mice were given a subjective questionnaire which skewed the results in...
    Post by: Remain in Light, Oct 15, 2021 in forum: ME/CFS research
  14. Remain in Light
    Post

    Crowdfunding: Trial By Error: Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Fall 2021

    Good day to help birthday boy help us by giving a donation. I really enjoy his evisceration of self serving dressed as science
    Post by: Remain in Light, Oct 10, 2021 in forum: Fundraising
  15. Remain in Light
    Post

    Article Telegraph: Is long Covid being overblown?

    Didn't find any evidence that anxiety or depression predict post infectious fatigue, such as ME either. It all seemed quite reasonable but she...
    Post by: Remain in Light, Oct 4, 2021 in forum: Long Covid news
  16. Remain in Light
    Post

    A Comprehensive Examination of Severely Ill ME/CFS Patients, 2021, Chang et al

    As severe myself, pem is ironically not as severe as it used to be. Nobody wants pem but I had a sense that I was circling the drain and...
    Post by: Remain in Light, Oct 2, 2021 in forum: ME/CFS research
  17. Remain in Light
    Post

    Article Independent IE: Doctors urged to look out for chronic fatigue syndrome in long Covid patients (#Physios4ME)

    [MEDIA] Britain's 2019 Eurovision song contest entry, featuring. Wim Hof and 2 popular "treatments" for ME, cold water and breathing. Take a...
    Post by: Remain in Light, Sep 28, 2021 in forum: Long Covid news
  18. Remain in Light
    Post

    Article Independent IE: Doctors urged to look out for chronic fatigue syndrome in long Covid patients (#Physios4ME)

    There's a lot of this breathing around. Look at YouTube, TED talks etc. Cures everything , apparently. My favourite proponent is The Hof,...
    Post by: Remain in Light, Sep 28, 2021 in forum: Long Covid news
  19. Remain in Light
    Post

    BMJ Opinion: To speed progress in treating chronic conditions, engage patients and caregivers as research partners, 2021, Lubell

    Believe patients! Whatever next?
    Post by: Remain in Light, Sep 21, 2021 in forum: General ME/CFS news
  20. Remain in Light
    Post

    Number of musculoskeletal pain sites leads to increased long-term healthcare contacts and healthcare related costs, 2021, Mose et al

    What is it about today and releasing the dumbest "research". Is it like certain times of year when film companies release their crappiest movies,...
    Post by: Remain in Light, Sep 19, 2021 in forum: Other psychosomatic news and research
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