To clarify - Schor is NIH director of intramural research.
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@Dolphin's post re Medicare rule on chronic disabling illnesses I would like to know what definition of chronic fatigue syndrome CMS is using and...
I looked at the site briefly so will not comment on accuracy of material. I am however concerned about the intensity and colors used in relation...
Perhaps their inclusion is to balance the program with "NON-sense"?
I think it may actually be that you have "mistaken effort preference beliefs" ;)
Is there a way to know How many study participants were referred by ME specialists, by PCPs, other? How many were self-referred? If referred by...
Given the intensity of the testing at NIH for this study (lumbar puncture, CPET (even if one day instead of two), tilt test, the metabolic...
caution - attitude - not much about this paper seems to be fair and it certainly is not what we were led to expect NOR is it what we deserve!!!
FWIW - I am one of the one who was very concerned about Walitt (and Saligan and.....)
I wonder if we are using language differently. The paper says that there were 484 inquiries for participation. 267 of those were screened out in...
Many people tried to get into the NIH study but were not accepted, so it's not that they didn't come forward in sufficient numbers but the...
I apologize if this has already been mentioned. EEfRT task has its origins in work on depression and is validated in schizophrenia. (I know you...
@Mfairma If you think about it more clearly, you will find you aren't beating a dead horse, it's just that the horse is not preferring effort to...
Reminder - When the study protocol first came out advocates demanded it be improved and to reflect the physiological nature of ME. We DID demand...
I am concerned that my bias has me misremembering. What have been the arguments from NIH about the size of this study? I feel I heard them argue...
And how was recovery assessed? Also, were those who considered themselves recovered queried at later points in time to see if their "recovery"...
@Simon M - As you say, Jason has long been opposed to the inclusion of OI. I wish I knew why, since it is so prevalent in PwME and even more so in...
The article discusses the differences between Long COVID definitions and the resulting lack of clarity because of the varied definitions but at...
GRRRR!!!!
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