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Yes, I’ve known children as young as 9 on NG tubes for severe ME. A friend was forced into hospital via child protection when young and NG fed. There’s lots of children sadly who have needed NG feeding due to ME over the years.

The procedure is done in interventional radiology or a theatre depending on whether you’re having sedation or a GA. PICC lines can be done bedside and xrayed. Most have a Hickman for it unless they can’t get one in.

In the UK there are only a handful of hospitals that can arrange and provide home TPN, which is then delivered by private TPN companies to your home. Karen currently isn’t in one of these special hospitals, she is in a normal hospital receiving TPN as an inpatient. Normal procedure is for...

Have you been offered any treatment? My c-fibres are affected too. They removed my ME diagnosis upon diagnosing this, I’m not sure whether it is because they don’t think I have it or to save me from the stigma. The phrase used was “it’s unhelpful and this diagnosis will make doctors think more...

I think I might have it, a jr doctor screwed up my LP though