Search results

Reply to clarify, having only just noticed this discussion. After the FOI revealed that NICE were carrying out further analysis, a group of stakeholders communicated with NICE to the effect that should this result in substantive change to the guideline there should be a further opportunity for...

The 25% ME Group had also sent an enquiry to cfsme@nice.org.uk, then to cfs@nice.org.uk. I learned yesterday that this message was received back: "Since we started the development of the guideline, we have only ever had one email address which is cfs@nice.org.uk<mailto:cfs@nice.org.uk> therefore...

I just noticed this today. AHRQ have archived this. Quietly, it seems. Cannot find an explanation nor a date when the material was archived. See https://archive.ahrq.gov/research/findings/evidence-based-reports/er219-abstract.html This webpage lists the executive summary; evidence report; and...

Interesting. So, at some point NICE have changed the web address from cfsme@nice.org.uk to cfs@nice.org.uk. Of course you should have received an undeliverable message to the prior address if no longer in operation, which suggests messages to that address still being read but all the same that's...

Thanks for querying this with NICE. It's not good no reply, it's a very simple enquiry. Suggest chase + how about the registered Stakeholder for S4ME lodge the same enquiry?

I'd noticed that and wondered if perhaps minutes aren't posted until the following meeting has taken place, where committee members would be asked to ratify the minute of previous meeting, That said, they are very basic minutes and there's nothing in them to say the GC and being asked to agree...

Regarding the further work being undertaken - “the team would need to order and check hundreds of papers and then conduct any necessary reanalysis.” and “for those studies that the SH [StakeHolder] claimed proportions of the study population have PEM, these aren’t reported in the original...

I noticed just today that an NHS evidence search on 'chronic fatigue syndrome' produces a prominent steer to the Cochrane Reviews of CBT (item 7 of 2291) and 'exercise therapy' (item 10). See https://www.evidence.nhs.uk/search?q=chronic-fatigue-syndrome. (However searching on 'myalgic...

Yes, I came across hard copy yesterday and read it in full. Purpose of letter was to raise concerns abut the composition of the guideline committee, couched in terms of what the guideline needs to achieve against backdrop of current problems in NHS approach. A rich resource even now when there...

The topic 'tiredness/fatigue in adults' may well have been introduced as a new topic back in 2009. However it is all but certain that 'CFS' used to exist a topic in it's own right. I know because I have an account of the CKS coverage from the Danum ME newsletter Spring 2011. This refers to CFS...

It could be hard for NICE to hold the line that "the CKS do not represent formal NICE guidance.” CKS are prominently listed on the NICE home page: www.nice.org.uk Link takes you to: https://cks.nice.org.uk This web address clearly implies that CKS are being purveyed by NICE. There is no...