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  1. Jim001
    Post

    Characterizing Long COVID in an International Cohort: 7 Months of Symptoms and Their Impact, 2020, Hannah Davis et al

    Is anyone else a little surprised to see the mast cell related charts not showing more prevalence? I'm looking at the anaphylaxis and allergy...
    Post by: Jim001, Dec 31, 2020 in forum: Long Covid research
  2. Jim001
    Post

    USA: Congress Approves Over a Billion Dollars to Study Covid-19

    Solve ME/CFS Intitiative are sticking by their guns that this really is slated for LongCovid [MEDIA]
    Post by: Jim001, Dec 24, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  3. Jim001
    Post

    USA: Congress Approves Over a Billion Dollars to Study Covid-19

    Merged thread Cort Johnson's piece https://www.healthrising.org/blog/2020/12/24/congress-billion-covid-19-long-haulers/
    Post by: Jim001, Dec 24, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  4. Jim001
    Post

    Dr. Kenny DeMeirleir was issued a world patent on a new CFIDS discovery, the increase of asparaginyl beta-hydroxylase (ASPH)

    I often view subset findings as simply a matter of having sampled too far downstream from the core disease mechanism. We are a heterogeneous group...
    Post by: Jim001, Dec 13, 2020 in forum: ME/CFS research news
  5. Jim001
    Thread

    Evidence of Structural Protein Damage and Membrane Lipid Remodeling in Red Blood Cells from COVID-19 Patients, 2020, Thomas et al

    Both red blood cells damage and kynurine identified in LongCovid research...
    Thread by: Jim001, Nov 20, 2020, 3 replies, in forum: Epidemics (including Covid-19, not Long Covid)
  6. Jim001
    Post

    Profile of circulating microRNAs in Myalgic Encephalomyelitis......(2020)Moreau et al

    "But Moreau did emphasise that the test was ME specific." Could Moreau have meant that the test was ME specific relative to the controls? I dont...
    Post by: Jim001, Nov 16, 2020 in forum: ME/CFS research
  7. Jim001
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Yes, i'm mostly unfamiliar with this process but I wonder where that tipping point is where more feedback becomes less, and worry we might cross...
    Post by: Jim001, Nov 15, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  8. Jim001
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    This may have already been mentioned here but could we ask that the guideline explicitly state that ME/CFS is not MUS? Can this guideline be used...
    Post by: Jim001, Nov 14, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  9. Jim001
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I did note while reading (skimming) the 'expert reactions' in the Science Media Centre piece that they seemed kind of resigned about the language...
    Post by: Jim001, Nov 10, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  10. Jim001
    Post

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Great news! Gratitude for all your efforts in making this happen. One curiosity which may have been covered. My reading ability is limited. Isn't...
    Post by: Jim001, Jan 19, 2020 in forum: Disease coding
  11. Jim001
    Post

    Trial of CT38 for ME/CFS by Cortene Inc.: big claims being made...

    The following are the case definitions used for this Cortene trial: "Diagnosed with ME/CFS and meet the following 3 case definitions: Fukuda...
    Post by: Jim001, Aug 30, 2019 in forum: ME/CFS research
  12. Jim001
    Post

    Trial of CT38 for ME/CFS by Cortene Inc.: big claims being made...

    From Cort Johnson, July 2018 "The study consists of a 4-week PRE-treatment period, a 2-week treatment period, and a 4-week POST-treatment period....
    Post by: Jim001, Aug 30, 2019 in forum: ME/CFS research
  13. Jim001
    Post

    Assessing cellular energy dysfunction in CFS/ME using a commercially available laboratory test, 2019, Morten, Newton et al

    Is it unusual for a failed replication study, in ME/CFS no less, to appear in Nature?
    Post by: Jim001, Aug 7, 2019 in forum: ME/CFS research
  14. Jim001
    Post

    Stanford Community Symposium 2018: Phair, Metabolic traps, Tryptophan trap

    @RDP That makes sense. I just want to say that I feel a tremendous amount of gratitude for you and your work. I find the bistability and common...
    Post by: Jim001, Jul 27, 2019 in forum: ME/CFS research news
  15. Jim001
    Post

    Stanford Community Symposium 2018: Phair, Metabolic traps, Tryptophan trap

    I was only able to read a fraction of the paper, so I am lacking some context (and lots of technical insight), but I did find this sentence a...
    Post by: Jim001, Jul 26, 2019 in forum: ME/CFS research news
  16. Jim001
    Post

    Stanford Community Symposium 2018: Phair, Metabolic traps, Tryptophan trap

    I dont have any technical knowledge about this, but I have wondered if the severity of ones illness could in part have to do with the number of...
    Post by: Jim001, Jul 15, 2019 in forum: ME/CFS research news
  17. Jim001
    Post

    'The real me shining through M.E.': Visualizing masculinity and identity threat in men with ME/CFS, Lucina Wilde et al., 2019

    Identity is the least of my concerns. I dont struggle to find an identity, either in this illness, or in the little bits of my life that are less...
    Post by: Jim001, Jun 16, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  18. Jim001
    Thread

    Aripiprazole - Abilify

    This thread brings together posts from three previous threads on the topic of Aripirazole I heard a while back that Stanford is using a low dose...
    Thread by: Jim001, Jun 16, 2019, 499 replies, in forum: Drug and supplement treatments
  19. Jim001
    Post

    ME/CFS International Research Symposium, March 2019, Australia

    Was there any mention of Suramin? As I recall, that was another drug that corrected the nanoneedle impedance. Thanks for sharing this info!
    Post by: Jim001, Mar 15, 2019 in forum: ME/CFS research news
  20. Jim001
    Post

    Cochrane ME/CFS GET review temporarily withdrawn

    I just keep hoping that, after the review authors forced this move to withdraw into the open, Cochrane has pivoted to a very visible display of...
    Post by: Jim001, Mar 9, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
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