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  1. M

    New German guideline for ME published today

    That's great, I could kiss them :heart_eyes: :trophy@ Thanks @Joh for this update!!!
  2. M

    Millions Missing May 2018 - in Germany

    Thank you @Joh and @Miri for organizing and keeping us up to date and of course to all the other organisers especially in Berlin :hug: It's a great location for millions missing!
  3. M

    Are there probiotics that PWME should avoid?

    That's interesting @alicec ! I didn't know about that (I'm way behind ;-) Thank you! Will need some time to read it all through. Oh yes, that would be great @dannybex
  4. M

    Are there probiotics that PWME should avoid?

    That's very interesting @alicec Do you know publications stating that? I've always read that e. choli AND Lactobacillus are a must have, especially in ME/CFS. Watching it, thanks @Helen! Yes, indeed: https://www.ncbi.nlm.nih.gov/pubmed/19567398
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    Millions Missing May 2018 - in Germany

    How does it work? Ok! That's so cool! Thank you! If double posting is ok with your workload that would be great@Miri! Great idea @MErmaid Thanks @Joh!!!
  6. M

    Millions Missing May 2018 - in Germany

    Thank you so much @Joh!!! :) I'm going to read it tomorrow (or tonight if I'm having trouble to sleep ;-)
  7. M

    Unrest - Screenings 2018

    Yes, of course! :thumbup: As it's a trash doctor movie as I saw we PwME could even relate to that: Experiences in the doctors office, doctors going mad etc. :rofl::rofl::rofl:. Ok bad bad joke...sorry for that.
  8. M

    Millions Missing May 2018 - in Germany

    @TiredSam @Sly Saint that's so nice. We need a bit Auflockerung :) and I like to hear that there are still words sneaking into other languages. We should add some Russian or Dutch examples. @Joh I agree :thumbsup:
  9. M

    Millions Missing May 2018 - in Germany

    Just found the right one here @Joh, @Inara, @Lenny: http://www.subiaco.de/filmbeschreibung.php?film=44 It's crazy that the regional programs are advertising the trash movie, though. Tja, wenn Computer automatisch Programme erstellen kann ja nur Sch..... rauskommen. ;)
  10. M

    Unrest - Screenings 2018

    Hi @Joh, should be the real Unrest film in Freudenstadt: http://www.subiaco.de/filmbeschreibung.php?film=44 I don't have any detailed information about the organizational part but I guess it was organized by an active member. As it seems it's without Q&A or discussion afterwards but it's a...
  11. M

    Millions Missing May 2018 - in Germany

    :):thumbup::party::hug:
  12. M

    Millions Missing May 2018 - in Germany

    That's so true, Interesting to read here the same... To have Millions Missing in even more towns and cities would be great. I also haven't organised events like this yet and being bed/homebound doesn't make it easier but trying to get involved healthy individuals I'm looking for some...
  13. M

    Millions Missing May 2018 - in Germany

    Hello all, wow, the conversation got so long, still have to catch up with it ;) Thanks @Joh for the deeper information about volunteering! I was thinking the same: They definitely take into account that there are lots of "not-being-able-to-volunteer-all-the-time-people". Does anyone of you...
  14. M

    New German guideline for ME published today

    @Joh in which forums did you try to spread it? Could be, i have a copy, too ;):devilish::angel:;) for sure ...:ninja: gems forever...
  15. M

    Millions Missing May 2018 - in Germany

    That's so exciting to hear @Miri! I've never heard of mathias before, just watched his facebook page. If there's already an event planned in Berlin that's so great to hear. Any ideas how to join and bring all the good german initiatives together? Does the deutsche Gesellschaft have mailing...
  16. M

    Millions Missing May 2018 - in Germany

    Liebe @Joh, hello Joh, great to make a post about Millions Missing in Germany!!!:) Still have to watch the video of the MM from the German society for ME/CFS. I would love to take part in / organize Millions Missing (not in Berlin though). Right now everything is a bit difficult, because...
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