Hi @Mij. :)
Unfortunately the AZ vaccine took me from moderate to severe ME and triggered the onset of new autoimmune issues. These days I'm living the horizonal life and having to limit my screen time and interactions so that I have enough energy to take care of myself. Still here, though. ;)
Indeed. Also, some items on the full treatment list are not readily accessible in certain countries.
It was asked if some items could be left out, the answer was "no" and that the main reason why the protocol is not working for some is that the list was being modified, causing it to lose...
This feels somewhat akin to patient blaming.
Like so many of us, I have self-experimented for decades. Now l'm broke, pretty much bedridden and just trying to make it through the day, both physically and mentally.
I am only too aware that my baseline is not increasing. If anything, l am...
Just looked up the Lead Researcher's Bio. Dr Loren Toussaint is a psychologist, regarded as a Christian "forgiveness expert" who has been a proponent of Gupta since at least 2012.
Interesting that in his 2012 study below he uses the term "chronic fatigue" and that Gupta was a successful...
It's also somewhat ironic that the journalist managed to regurgitate the very kind of misinformed nonsense that AfME has vowed to be responsible for correcting - "Donate now to help us put an end to the ignorance . . . " (AfME website).
Mark Bonnar's thoughtful gift is much needed.
. . . such a shame The Scottish Sun journalist reporting this positive news story concluded her article with "treatments for chronic fatigue syndrome include talking therapies, exercise programmes and medicines." :banghead:
I rather wish I hadn't.
The first shot of AZ back in March caused transient paralysis (doctor called it a Guillain-Barre type reaction), where l temporarily lost the use of my lower body and had severe weakening of my upper body.
Although l have regained most of my housebound mobility, my...
I didn't read his comment as being a list of therapies he was willing to try, but rather he was noting what he has heard pwME have been willing to accept as potential treatments with little to no science behind the theory, and that in comparison the CBT/GET offered in NHS clinics is a safer...
Same here, @ukxmrv.
Recovery from the transient paralysis, caused by the AZ vaccination, has stalled. Struggling with basic self care, the fatigue and muscle pain is unrelenting with no sign of improvement in sight. Life has been very much horizontal these past 4 months.
I hope you turn the...
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