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  1. Revel

    Clare Gerada: influence on UK medical practice and ME/CFS management

    Edinburgh Fringe Festival 2024:
  2. Revel

    Earseeds, Acuseeds

    So, 6 Dragons falling over themselves to invest in ear seeds is NOT an endorsement of the product? Ok, then . . . o_O
  3. Revel

    Clare Gerada: influence on UK medical practice and ME/CFS management

    Merged thread Clare Gerada interview on Radio 4 Dr Hammond interviews Clare Gerada on Radio 4, 5th December, in case anyone's interested:
  4. Revel

    Association Between Guillain-Barré Syndrome and COVID-19 Infection and Vaccination: A Population-Based Nested Case-Control Study, 2023, Arbel et al

    Hi @Mij. :) Unfortunately the AZ vaccine took me from moderate to severe ME and triggered the onset of new autoimmune issues. These days I'm living the horizonal life and having to limit my screen time and interactions so that I have enough energy to take care of myself. Still here, though. ;)
  5. Revel

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    Indeed. Also, some items on the full treatment list are not readily accessible in certain countries. It was asked if some items could be left out, the answer was "no" and that the main reason why the protocol is not working for some is that the list was being modified, causing it to lose...
  6. Revel

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    This feels somewhat akin to patient blaming. Like so many of us, I have self-experimented for decades. Now l'm broke, pretty much bedridden and just trying to make it through the day, both physically and mentally. I am only too aware that my baseline is not increasing. If anything, l am...
  7. Revel

    Gupta amygdala training program for ME/CFS, FM and Long Covid - news and discussion

    Just looked up the Lead Researcher's Bio. Dr Loren Toussaint is a psychologist, regarded as a Christian "forgiveness expert" who has been a proponent of Gupta since at least 2012. Interesting that in his 2012 study below he uses the term "chronic fatigue" and that Gupta was a successful...
  8. Revel

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    The image is meant to represent "science and hope". Art being so subjective, this wasn't my initial reaction on first viewing, but each to their own:
  9. Revel

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    Reading Twitter comments, glad I wasn't the only one somewhat disturbed by this latest Remission Biome image:
  10. Revel

    dry eyes

    I have found dry eye relief from supplementing with Omega 7 (Sea Buckthorn Oil).
  11. Revel

    United Kingdom: Action for ME (AfME) news

    It's also somewhat ironic that the journalist managed to regurgitate the very kind of misinformed nonsense that AfME has vowed to be responsible for correcting - "Donate now to help us put an end to the ignorance . . . " (AfME website). Mark Bonnar's thoughtful gift is much needed.
  12. Revel

    United Kingdom: Action for ME (AfME) news

    . . . such a shame The Scottish Sun journalist reporting this positive news story concluded her article with "treatments for chronic fatigue syndrome include talking therapies, exercise programmes and medicines." :banghead:
  13. Revel

    Covid-19 vaccination experiences

    I rather wish I hadn't. The first shot of AZ back in March caused transient paralysis (doctor called it a Guillain-Barre type reaction), where l temporarily lost the use of my lower body and had severe weakening of my upper body. Although l have regained most of my housebound mobility, my...
  14. Revel

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    If anyone has something to ask Fiona Godlee, here's your opportunity. Apparently we can ask her anything.
  15. Revel

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    My bad, I didn't see the quote in it's entirety.
  16. Revel

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    I didn't read his comment as being a list of therapies he was willing to try, but rather he was noting what he has heard pwME have been willing to accept as potential treatments with little to no science behind the theory, and that in comparison the CBT/GET offered in NHS clinics is a safer...
  17. Revel

    Covid-19 vaccination experiences

    Same here, @ukxmrv. Recovery from the transient paralysis, caused by the AZ vaccination, has stalled. Struggling with basic self care, the fatigue and muscle pain is unrelenting with no sign of improvement in sight. Life has been very much horizontal these past 4 months. I hope you turn the...
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