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Does this mean that ME/CFS patients are in higher risk of cardiac diseases due to high triglycerides or cholesterol?

in my case those feelings are also constant, it doesnt go away even if I walk the same distance every day, it's nothing extreme and my muscles should be use to it. What I cannot describe good is the feelings in my calfs. It doesnt hurt (only if I get muscle cramps which I can provoke easily by...

Are we sure that in this hypothesis we accumulate lactic acid? Cannot it be something else? I feel every day especially in my calfs something simillar to lactic acid but I think it's different what I felt after overexertion when I was healthy. So I think lactic acid in a healthy person is...

Could this Interferon mediated mechanism also explain heat sensitivity/intolerance?

For me the same. Normal cholesterol, high tryglicerides.

First 7 years I almost always got higher temperature after walking. I measured it often and it was always around 37,1 - 37,3. After 1 hour of laying down after walking my temperature was under 36,8. The higher temperature wasnt related to PEM but it was related to higher physical activity. After...

Thanks for your great work. How much money would DecodeME team and AfME need to continue this important work? Maybe we could try to do a crowdfunding campaign. I think DecodeME is now well recognised and the patients understand this important work so I think it could work. I participated on 2...

Moved post ------------ I dont know if I would call it muscle weakness or fatiguability. I think we have strength in our muscles but there is no stamina. And the strength is there only for a really short time. What is also bizzare that you can regulary exercise a muscle but you will improve...

Many patients have also problem with thermoregulation. I think hypothalamus is responsible for thermoregulation so maybe it also fit together with your thinking.

Are there already any reactions from the scientific community (outside this forum) about this paper?

I would like to present this paper to my facebook groups. I am thinking if this work is somehow unique and revolutioning. Can we say that it's unique or how to describe it in the best way? Thank you Jonathan and other members for your hard work. I know that maybe there is still long way before...

or I dont know where @paulendat is doing his research but maybe you can use a ME/CFS biobank or to cooperate with a ME/CFS doctor. How I already said in our country there is no ME/CFS doctor but just few dozens of kilometers from our border is Wien and there are several ME/CFS doctors. So maybe...

@paulendat @Sasha we have those CCC, ICC and other diagnostic criteria but no doctors use it. if you get ME/CFS diagnosis it´s mostly after exclusion of all other similar diagnosis. You go from one doctor to another one, nobody knows what to do and then finally a doctor write that it´s...

There are 2 facebook groups which I know: ME/CFS Slovensko - myalgická encefalomyelitída / chronický únavový syndróm (950 members) https://www.facebook.com/groups/661691970549488 Long covid a postcovidový syndrom - ČESKO A SLOVENSKO (4 400 members) https://www.facebook.com/groups/longcovidczsvk...

Hi @paulendat Happy to see someone from my country who is interested in ME/CFS field. I lead ME/CFS facebook group where is around 1000 slovak and czech patients. I also have a good connection to LC groups in our country. If you find interesting to somehow cooperate with us don´t hesitate to...

@dundrum Also some years ago after many analysis of PACE trial from experts and ME/CFS organisations and many complains there was an independent UK healthcare authority (I dont remember the name) which examinated around 330 GET/CBT studies in ME/CFS field. The authority said that 310 studies...

@dundrum No, there is no aversion to psychology. I lead a group of about 1000 ME/CFS patients in my country and many of them visite psychologists/psychiatrists. Like in many chronical conditions, the life is not easy so they do psychotherapie, take AD and so on. In this case we dont have any...

The problem in Czech republic is that some prominent doctors with big influence are psychosomatic proponents of ME/CFS. They are very arogant and they block all ME/CFS discussions. They are not able to discuss professionally about ME/CFS. Big shame. But there are some small success, for example...

Some years ago I did a crowdfunding campaign for OMF for their ME/CFS severly ill big data study. I think Sasha helped me with the text that time. We kept it really simply. We presented the project, we explained the basic stuffs like the amount of momey needed, what OMF will spend money for...

How I said before we already did some crowdfunding campaigns and there are many ME/CFS patients who have money and they can donate. Many patients still work and their partners also. We have experiences that if the project is good and if it has a good traffic on the social media we are able to...