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My expectation of FM pain? I have it while awake in various degrees, so there is no expectation. Just relief when levels are low. No relation of "expectation of pain" to "intensity of pain." FM pain is a complex unknown involving at least the brain and nerves and the "pain catastrophizing"...

https://open.substack.com/pub/pauloffit/p/whos-really-behind-the-maha-movement?utm_campaign=post&utm_medium=email

Article in El Pais English about self-publishing racket. https://english.elpais.com/science-tech/2026-01-22/thousands-of-scientists-inflate-their-cvs-with-self-published-studies-that-cost-millions-of-dollars-of-public-money.html

The Workwell Foundation (where some or all of the authors work or have worked) is a clinic near me. It does CPET testing for documenting disability. "Not all people with ME/CFS and Long COVID may participate in CPET due to severity, availability, and choice. Less strenuous forms of testing...

Hot peppers are classic gut irritants or so I remember reading. Do you have FODMAP intolerances perhaps?

I have high pain tolerance (per MD lancing an infected finger) prior to developing FM. No depression. However, severe FM has been a monster both daily and over decades. How blinded these researchers seem to me, to the effects of the illness itself on the brain. The "anxiety, depression, and...

Is the timing of the development of lupus, that of two months post HPV vaccination--does that make clinical sense if implicating the vaccination as causative? There's always the possibility that she developed lupus and the history of being vaccinated has no relevance. What is the background...

I have primarily FM, so don't know how applicable my experience is to PwME. Had Novavax (2nd time and in succession) and the flu shot in October. Felt no side effects other than a tiny injection area soreness. I thought maybe I had been injected w/saline instead. Novavax is said to have...

Hmm. A story too good to be true...

How much inoculate did the rhesus get vs what a human can contract? Was it a lot more? They did this in a BSL3 lab, so I wonder how applicable to humans this experiment is. No control group, so assumed is the expertise of the scientists in what is normal cognitive ability and food preferences.

Stock (?) photo shows people in surgical masks. Don't know its effectiveness against influenza. It's N95 time.

Video: Bateman Center's Coffee with a Clinician, Nov. 12, 2025

Like that phrase a lot...neurobabble.

The concept of "pain acceptance" implies that you do your desired normal activities and learn mindfulness to assuage the noxious signals. Sounds like a plan, except that high pain levels do not assuage with mindfulness. Psychologists score: minus 1.

Again, research from any university of Traditional Chinese Medicine is a nationalistic ploy (propaganda) more than science, unless specific chemicals are analyzed.

On supplements that have much more than 3x the minimum daily recommended of a vitamin or mineral: There are dangers to heed, imho. On a personal level: my relative developed debilitating peripheral neuropathy after taking a melatonin product for months that had a huge amount of B6 in it. Could...

What made me throw away the LDN capsules I ordered (not ingesting even one) is that the compounding pharmacy's record of inspection (where my capsules were made) showed unsanitary practices and they found capsules not filled correctly (yielding low dose). My concern with compounding pharmacies...

Probably just applying heat to FM affected regions provides better pain relief (cheaper and quiet, also).

I dream of a heated vest that soundlessly massages upper body FM pain regions, doing a mild unobtrusive myofascial release as well as deep heat and massage. It may as well apply capasaicin cream, too. Sticking point: the heated vest has to be in contact with the skin, stuck to it like a magnet...

I thought scientific journals are where important messages are spread.