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  1. adambeyoncelowe
    Post

    Cass report, quality of evidence in evidence-based medicine and double-blinding

    Guess who's going to lead the new Children and Young People’s Gender Dysphoria Research Oversight Board? Why, it's our old friend Sir Simon...
    Post by: adambeyoncelowe, Apr 18, 2024 at 6:41 PM in forum: Other health news and research
  2. adambeyoncelowe
    Post

    NICE guideline on ME/CFS: robust advice based on a thorough review of the evidence, 2024, Barry et al.

    Peter Barry does his reading. As do the others. And I know they've read stuff here before too.
    Post by: adambeyoncelowe, Feb 28, 2024 in forum: ME/CFS research
  3. adambeyoncelowe
    Post

    United Kingdom: Action for ME (AfME) news

    I'm a bit pressed for time, but I could certainly consider it. I'll see if I have time this weekend.
    Post by: adambeyoncelowe, Feb 28, 2024 in forum: News from organisations
  4. adambeyoncelowe
    Post

    UK: Reading Well books (formerly Books on Prescription): should books based on the deconditioning model of ME/CFS still be included?

    The clinics probably draw up their own lists? I can imagine someone did a list for BACME years ago and made sure all their mates were on it. Then...
    Post by: adambeyoncelowe, Nov 23, 2023 in forum: Resources
  5. adambeyoncelowe
    Post

    UK Royal College of Psychiatrists

    Thanks for this. I see Charles is on it, as usual, but I'll add this to my list of relevant examples. If it helps, I know there are people...
    Post by: adambeyoncelowe, Nov 5, 2023 in forum: General ME/CFS news
  6. adambeyoncelowe
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I'm sure anyone would get annoyed if they had to argue the same point over and over again to people with their fingers in their ears.
    Post by: adambeyoncelowe, Oct 5, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  7. adambeyoncelowe
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Exactly. This could work out very well for us.
    Post by: adambeyoncelowe, Oct 4, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  8. adambeyoncelowe
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I think it's a full paper, and that's why it's taken so long. Peter referred to it as a "rebuttal paper". As you note, it's just been...
    Post by: adambeyoncelowe, Oct 4, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  9. adambeyoncelowe
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    It has been submitted for review. Peter Barry said it was okay to tell people.
    Post by: adambeyoncelowe, Oct 4, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  10. adambeyoncelowe
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I'm confident it will be good. Peter Barry and Ilora Finlay no doubt helped write it, and they are very clued up. I am always impressed and awed...
    Post by: adambeyoncelowe, Sep 21, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  11. adambeyoncelowe
    Post

    Trial Report Physical exercise as a treatment for persisting symptoms post-COVID infection: review of ongoing studies and prospective randomized controlled trainin

    There are numerous errors here. But they're also performing a number of "questionable research practices" (something I've spent four hours this...
    Post by: adambeyoncelowe, Sep 21, 2023 in forum: Long Covid research
  12. adambeyoncelowe
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    This is just a staggering list of COIs, and so many of them for cash involving legal claims and insurance. I feel icky after reading all that!
    Post by: adambeyoncelowe, Jul 28, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  13. adambeyoncelowe
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    At least we aren't calling them crafty!
    Post by: adambeyoncelowe, Jul 27, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  14. adambeyoncelowe
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Technically, "common abuse" isn't defamation. So you can't get sued for calling someone a wanker, no matter how much they may dislike it. It could...
    Post by: adambeyoncelowe, Jul 27, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  15. adambeyoncelowe
    Post

    Contesting the psychiatric framing of ME/CFS, 2017, Spandler and Allen

    I think this is potentially covered in this bit, at least: "Notwithstanding important differences, both reject the way psychiatry denies patient...
    Post by: adambeyoncelowe, Jul 21, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  16. adambeyoncelowe
    Post

    Advice for freelancers on pitching articles to newspapers, by Frances Ryan, Guardian journalist

    BTW, The Guardian publishes pay rates here:...
    Post by: adambeyoncelowe, Jul 21, 2023 in forum: General Advocacy Discussions
  17. adambeyoncelowe
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    That was something I noticed too. Imagine the effort of "negotiating" every single treatment with your doctor! You'd collapse based on that alone.
    Post by: adambeyoncelowe, Jul 20, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  18. adambeyoncelowe
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Do we know how many of these signatories actually directly treat pwME these days? Or have ever?
    Post by: adambeyoncelowe, Jul 13, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  19. adambeyoncelowe
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Let's just hope they publish it!
    Post by: adambeyoncelowe, Jul 13, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  20. adambeyoncelowe
    Post

    Online Health Communities in Controversy over ME/CFS and Long Covid, 2023, Jackson

    Exactly. The cost effectiveness was the same whether GRADE was used or not, and whether outcomes were rated low or not -- because it was based on...
    Post by: adambeyoncelowe, Mar 29, 2023 in forum: ME/CFS research
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