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  1. InitialConditions
    Post

    Time-dependent complexity characterisation of activity patterns in patients with Chronic Fatigue Syndrome 2024 Rabaey et al

    This looks like complete overkill. You'd be better doing some basic stats—such as time series analysis—on activity data from apps like Visible or...
    Post by: InitialConditions, Apr 3, 2024 in forum: ME/CFS research
  2. InitialConditions
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    They've really done an excellent job of leaving the door ajar to a psychogenic interpretation of their findings/conclusions, haven't they?...
    Post by: InitialConditions, Feb 21, 2024 in forum: ME/CFS research
  3. InitialConditions
    Post

    Depression is the most significant independent predictor of fatigue in patients with primary Sjögren’s syndrome 2023 Ayar et al

    Why not also "Fatigue is the most significant predictor of depression". Am I missing something?
    Post by: InitialConditions, Dec 6, 2023 in forum: 'Conditions related to ME/CFS' news and research
  4. InitialConditions
    Post

    UK: Dr Sarah Myhill

    Well, at least it doesn't mention ME/CFS. We need to distance ourselves from fringe figures like Myhill.
    Post by: InitialConditions, Nov 24, 2023 in forum: UK clinics and doctors
  5. InitialConditions
    Post

    UK: Improving Access to Psychological Therapies (IAPT) articles, blogs and discussion

    I refused to complete these idiotic questionnaires on the grounds that (i) they can't distinguish between ME symptoms and symptoms of depression...
    Post by: InitialConditions, Oct 9, 2023 in forum: Psychosomatic theories and treatments discussions
  6. InitialConditions
    Post

    Closed USA, Texas - Long Covid stem cell trial - Hope Biosciences

    Dunno, just seems a bit Outlaw Medicine, Dallas Buyers Club, isn't it?
    Post by: InitialConditions, Oct 7, 2023 in forum: Recruitment into current ME/CFS research studies
  7. InitialConditions
    Post

    What is POTS? This strange disorder has doubled since the pandemic

    Imagine being well enough to even attempt to get to a spinning session.
    Post by: InitialConditions, Oct 3, 2023 in forum: Orthostatic intolerance
  8. InitialConditions
    Post

    OMF: Muscle Biopsy and Plasma Study into Post-Exertional Malaise, David Systrom, 2022

    Yep, possibly. I have read up on that. I do think I have some sort of fascial problem. I have some very small tender areas in particular muscles....
    Post by: InitialConditions, Sep 21, 2023 in forum: ME/CFS research news
  9. InitialConditions
    Post

    OMF: Muscle Biopsy and Plasma Study into Post-Exertional Malaise, David Systrom, 2022

    Ineresting. This sounds like a different issue. My lumps are not visible—they're under or within the skin/tissue layer, and not near joints. Nor...
    Post by: InitialConditions, Sep 21, 2023 in forum: ME/CFS research news
  10. InitialConditions
    Post

    OMF: Muscle Biopsy and Plasma Study into Post-Exertional Malaise, David Systrom, 2022

    I was at the doctors a few days ago about my recent decline. I had to attend for blood tests, and talked to my GP about this issue of 'muscle...
    Post by: InitialConditions, Sep 21, 2023 in forum: ME/CFS research news
  11. InitialConditions
    Post

    Extreme tinnitus, can anything be done?

    Unfortunately, there's not much that can be done—often nothing. I have severe tinnitus and have had tinnitus of some level constantly for 12...
    Post by: InitialConditions, Sep 19, 2023 in forum: Neurological/cognitive/vision
  12. InitialConditions
    Post

    What can I do to treat covid-19 infection?

    It's certainly in your interest to find out if it is covid or something else. It's not too early to test. I would do 2 or 3 tests over the next...
    Post by: InitialConditions, Sep 7, 2023 in forum: Infections: Lyme, Candida, EBV ...
  13. InitialConditions
    Post

    CBT for Tinnitus

    This is the website of Tinnitus UK (previously known as the British Tinnitus Association, until this year). They are the main UK charity for tinnitus.
    Post by: InitialConditions, Sep 7, 2023 in forum: General and other signs and symptoms
  14. InitialConditions
    Post

    Stanford MECFS working group meeting 2023

    Thanks, but this page is just a summary of the article. I've just seen that the first link to the full article, on the right hand side of that...
    Post by: InitialConditions, Sep 5, 2023 in forum: ME/CFS research news
  15. InitialConditions
    Post

    Stanford MECFS working group meeting 2023

    I've seen his name before, but I'm not familar. I just saw this:...
    Post by: InitialConditions, Sep 5, 2023 in forum: ME/CFS research news
  16. InitialConditions
    Post

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    Spot on.
    Post by: InitialConditions, Sep 4, 2023 in forum: ME/CFS research news
  17. InitialConditions
    Post

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    I am also now blocked—by their main page and one of the RB team—since our discussion here a few weeks ago.
    Post by: InitialConditions, Sep 4, 2023 in forum: ME/CFS research news
  18. InitialConditions
    Post

    Moving from laptop/computer to iPad/tablet - did it help?

    Thanks for your replies. I should have added that I struggle immensely with screens, and have done for many years. Phone screen is better. I think...
    Post by: InitialConditions, Sep 3, 2023 in forum: Home adaptations, mobility and personal care
  19. InitialConditions
    Post

    Moving from laptop/computer to iPad/tablet - did it help?

    Did you primarily use the touchscreen to type, or did you also have a keyboard. There are those keyboard cases for iPAD, which may be an option...
    Post by: InitialConditions, Sep 3, 2023 in forum: Home adaptations, mobility and personal care
  20. InitialConditions
    Thread

    Moving from laptop/computer to iPad/tablet - did it help?

    I am considering geting an iPad because it might be easier to use given I seem to be going downhill. I currently have a Macbook Pro. I can think...
    Thread by: InitialConditions, Sep 3, 2023, 13 replies, in forum: Home adaptations, mobility and personal care
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