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  1. Suffolkres
    Post

    ME/CFS services in the United Kingdom

    https://www.theguardian.com/lifeandstyle/2024/jan/21/work-needs-rest-and-rest-takes-work-fatigue-specialist-vincent-deary-on-coping-with-life?...
    Post by: Suffolkres, Jan 23, 2024 in forum: UK clinics and doctors
  2. Suffolkres
    Post

    Trial Report Cost-Effectiveness of Online CBT for Children with CFS/ME Compared to Online Activity Management: FITNET-NHS Trial Findings, 2023, Crawley

    I am sure this has been uploaded before? 'Full title: Investigating the effectiveness and cost-effectiveness of using FITNET-NHS (Fatigue In...
    Post by: Suffolkres, Dec 30, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. Suffolkres
    Post

    News from Cochrane

    Oh, Paul likes diving! Seem to remember him going on a diving trip/ conference, one whilst 'oh so compromised post (long) covid'.... :eek:
    Post by: Suffolkres, Dec 28, 2023 in forum: News from organisations
  4. Suffolkres
    Post

    A Life Hidden - Blog posts by Naomi Whittingham

    It's an age related thing ... RIP Robert Crumb!
    Post by: Suffolkres, Dec 15, 2023 in forum: General ME/CFS news
  5. Suffolkres
    Post

    A Life Hidden - Blog posts by Naomi Whittingham

    I still have my records of conversations with Emily's mum at the time who reached out to our support network, desperate to secure specialist...
    Post by: Suffolkres, Dec 15, 2023 in forum: General ME/CFS news
  6. Suffolkres
    Post

    UK House of Lords/ House of Commons Questions

    Not true! DHSC enabled BACME Survey..... That reached out and encompassed Suffolk and Waveney ICS s
    Post by: Suffolkres, Dec 9, 2023 in forum: General ME/CFS news
  7. Suffolkres
    Post

    UK House of Lords/ House of Commons Questions

    Rozz Scott is our ali.....
    Post by: Suffolkres, Dec 9, 2023 in forum: General ME/CFS news
  8. Suffolkres
    Post

    Neuroimaging in Functional Neurological Disorder: State of the Field and Research Agenda, 2021, Perez, Carson, Edwards, Hallet, Stone et al

    This is a very useful comment about the dangers of 'loose terminology' -functional or worse 'Functional ' wotha capital F! FND etc....
    Post by: Suffolkres, Dec 2, 2023 in forum: Other psychosomatic news and research
  9. Suffolkres
    Post

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    Goodly work needs rewarding! Really good work needs celebrating David. Thank you for your incredible dedication to the cause.
    Post by: Suffolkres, Dec 1, 2023 in forum: Fundraising
  10. Suffolkres
    Post

    United Kingdom: Sussex & Kent ME/CFS Society News

    Leopard changing his spots ...... ?
    Post by: Suffolkres, Nov 29, 2023 in forum: News from organisations
  11. Suffolkres
    Post

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    I was thinking more of Professor Sharpe.. Forgive my ignorance but I thought Karl was at the Nuffield and the University? Is this the same as...
    Post by: Suffolkres, Nov 20, 2023 in forum: Petitions
  12. Suffolkres
    Post

    News from Cochrane

    I have only listen to 5 mins enough and am grappling wirh the Dr Spock issue. My son was born on 1984 and suffered a severe viral bacterial virus...
    Post by: Suffolkres, Nov 20, 2023 in forum: News from organisations
  13. Suffolkres
    Post

    News from Cochrane

    https://www.ouh.nhs.uk/services/consultants/ Check this out! Plus Evidence based medicine for 6th formers. [MEDIA] Useful contacts on this...
    Post by: Suffolkres, Nov 20, 2023 in forum: News from organisations
  14. Suffolkres
    Post

    News from Cochrane

    Moved posts More gems fron CC! We have two programmes of work that our projects fit into: Learning and Development Programme We aim to provide...
    Post by: Suffolkres, Nov 20, 2023 in forum: News from organisations
  15. Suffolkres
    Post

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Cochrane offices admin is 'hosted' in Oxford.... Who else do we know from this location...?
    Post by: Suffolkres, Nov 20, 2023 in forum: Petitions
  16. Suffolkres
    Post

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Checking Cochrane on Charity Commission website. Suggest S4ME makes direct contact with all Trustees. Especially new Trustee of 2022, Gillian Leng...
    Post by: Suffolkres, Nov 20, 2023 in forum: Petitions
  17. Suffolkres
    Post

    UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group and Living with ME Working Group) and consultation

    A real Pithy commentary!
    Post by: Suffolkres, Nov 12, 2023 in forum: News from organisations
  18. Suffolkres
    Post

    UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group and Living with ME Working Group) and consultation

    Choice treats for Sunday digest! 'What we need is standardised pathways based in legislation & implemented institutionally.' 'Slow In some cases,...
    Post by: Suffolkres, Nov 12, 2023 in forum: News from organisations
  19. Suffolkres
    Post

    UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group and Living with ME Working Group) and consultation

    Utterly brilliant writing... in the vein if Private Eye!
    Post by: Suffolkres, Nov 12, 2023 in forum: News from organisations
  20. Suffolkres
    Post

    UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group and Living with ME Working Group) and consultation

    Apologies. My oversight.
    Post by: Suffolkres, Nov 7, 2023 in forum: News from organisations
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