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  1. sb4
    Post

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    How likely is publication of this document going to affect GPs? Like do they get a weekly email of NICE updates or will they not be informed at...
    Post by: sb4, Oct 26, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  2. sb4
    Post

    Aripiprazole - Abilify

    Thats true for some, others are, or are willing to take the risk. If these anecdotes where to be discouraged, treatment that could lead to...
    Post by: sb4, May 24, 2021 in forum: Drug and supplement treatments
  3. sb4
    Post

    Aripiprazole - Abilify

    That is interesting and I am sure that is going on at least some of the time, however it is just another risk you have to take into consideration....
    Post by: sb4, May 24, 2021 in forum: Drug and supplement treatments
  4. sb4
    Post

    Aripiprazole - Abilify

    Fair enough. I was thinking of advocacy along the lines of a doctor saying "if you have ME you should probably take abilify".
    Post by: sb4, May 24, 2021 in forum: Drug and supplement treatments
  5. sb4
    Post

    Aripiprazole - Abilify

    You are saying that people are posting false or exaggerated stories of getting better with certain treatments in order to try and prove to...
    Post by: sb4, May 24, 2021 in forum: Drug and supplement treatments
  6. sb4
    Post

    Aripiprazole - Abilify

    It is possible to let people know the risks of Abilify, as in, there hasn't been a proper study done on the long term effects of abilify in...
    Post by: sb4, May 24, 2021 in forum: Drug and supplement treatments
  7. sb4
    Post

    Aripiprazole - Abilify

    I think it's kind of like comparing apples to oranges. Objecting to GET, etc due to poor methodology is needed as in many countries this is all...
    Post by: sb4, May 24, 2021 in forum: Drug and supplement treatments
  8. sb4
    Post

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    @Michiel Tack Good Article. How did you get bmj to publish the response? Will many people see it?
    Post by: sb4, Mar 2, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  9. sb4
    Post

    'Covid tongue' and oral manifestations of inflammation / immune dysfunction

    I also have this coating on my tongue.
    Post by: sb4, Jan 25, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  10. sb4
    Post

    3 day fasting to reset immune system

    Yes that is correct. I didn't much like the idea of fasting so I wanted to get both dry fasting and water fasting done to a degree where I could...
    Post by: sb4, Feb 12, 2020 in forum: Nutrition, food sensitivity, microbiome treatments
  11. sb4
    Post

    POTS - definition, diagnosis and symptoms

    So you no longer get this increase in heart rate? The reason I ask is, when I was first ill I did not have POTS, as I got worse I noticed I had...
    Post by: sb4, Feb 6, 2020 in forum: Orthostatic intolerance
  12. sb4
    Post

    POTS - definition, diagnosis and symptoms

    What where your observations with the heart rate monitor and what test did they used to show you don't have POTS?
    Post by: sb4, Feb 6, 2020 in forum: Orthostatic intolerance
  13. sb4
    Post

    3 day fasting to reset immune system

    @Wonko I agree that not drinking is far more risky than not eating. I speculate that being bloated going in and not bloated at day 7 means that my...
    Post by: sb4, Feb 4, 2020 in forum: Nutrition, food sensitivity, microbiome treatments
  14. sb4
    Post

    3 day fasting to reset immune system

    At the time I had no idea what was wrong with me so it was the last thing to try on my list out of desperation. I knew I felt worse after eating...
    Post by: sb4, Feb 4, 2020 in forum: Nutrition, food sensitivity, microbiome treatments
  15. sb4
    Post

    3 day fasting to reset immune system

    The first 7 days where dry fasting, so absolutely nothing, the next 23 days where with a glass or 2 of water. Some symptoms improved but this is...
    Post by: sb4, Feb 4, 2020 in forum: Nutrition, food sensitivity, microbiome treatments
  16. sb4
    Post

    3 day fasting to reset immune system

    I did a 30 day fast years ago and my symptoms remained.
    Post by: sb4, Feb 4, 2020 in forum: Nutrition, food sensitivity, microbiome treatments
  17. sb4
    Post

    Pathogens associated with triggering ME/CFS - discussion thread

    @Forbin I used to get tonsilitis yearly. The one that resulted in this was the worst I ever had, its possible it wasn't even tonsillitis but some...
    Post by: sb4, Jan 29, 2020 in forum: Possible causes and predisposing factor discussion
  18. sb4
    Post

    Muscle AMP deaminase deficiency

    Thanks. Maybe I am using it wrong but it came up with nothing when I entered the rsID. Is it true that certain SNPs are only checked for in newer...
    Post by: sb4, Dec 31, 2019 in forum: Other health news and research
  19. sb4
    Post

    Muscle AMP deaminase deficiency

    @ScottTriGuy You got a SNP number for that? I would like to check also.
    Post by: sb4, Dec 31, 2019 in forum: Other health news and research
  20. sb4
    Post

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Any ideas how long the process will take until I can get the test privately or go to my GP and ask for it? I should imagine a very long time, no?
    Post by: sb4, Dec 31, 2019 in forum: ME/CFS research
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