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My lawyer pointed out to me that in the "social legal German world" (she is a professional in medical and social law and has specialized on ME, amongst others), including especially judges too, CFS is understood as a psychiatric condition, which can be successfully treated by doing...

Could be sth. else, too, like neuromuscular. (Wasn't there sth. myasthenic-like that behaves like that? And in order to find it it needs a certain EMG that mimics "exercise"? But I think this is also typical in other neuromuscular diseases...) The classical "energy production problem" are...

I think it can, having the periodic paralyses and e.g. mutations in other ion channels in mind. You can do cellphysiological experiments where you measure ion fluxes etc. This is a bit what you find in periodic paralysis, only that the Na+/K+-ATPase works as it should; in hypocalemic PP certain...

I had some of these made for me, and they hurt me terribly.

Hi Samuel, I‘m using these: https://www.aponeo.de/03185431-wellnoise-ohrenstopfen-blau.html Wellnoise Silikon I don‘t know if they‘re available in your country. I use them for a longer time; in principle, they‘re washable. You can form them, and They keep their form. They produce very good...

I make this experience with every doctor. I always have to make a risk-benefit assessment myself.

Some people are worried about the safety of the community. Some others don't see a reason for it. And some don't care.

I feel like @Jenny TipsforME and some others here about the tone of the discussions. But thanks, @TiredSam, for pointing out that obviously different sides are "unhappy" -this brings understanding with it. So I concur: I wouldn't dare... I've had experiences, too, but indpendently from that, I...

This is a fascinating talk indeed, and I am very curious and excited about what these researchers will find. The 10 patients were collected from Younger's group "to qualify as unexplained pain and fatigue". I hope they know PEM (or apply CCC/ICC)... They say they are researching ME/CFS/SEID/FM...

Because they make money instead of needing it...

I found it in the paper: "One hour before infusions, all patients received premedication with 1 g of oral acetaminophen, 10 mg of cetirizine, and 8 mg of dexamethasone (Supplement 1)." Wow, 8mg dexamethasone is A LOT. I had severe adverse reactions with 2mg, but besides that I felt much better...

Didn't ALL participants get cortisone and antihistamines, too? I may misremember. As indicated here (I don't have access to the phase 3 trial paper itself so can't check there)...

I have to agree with @Alvin. Science is about looking in many, many directions, may they lead to dead ends or not.

Me neither, but I don't have 23andme data. (Although that shouldn't be the reason why I don't find it.)

What I mean: Normal ranges are not only a problem re. CCI, but in any other disease that is diagnosed via normal ranges, because normal ranges alone are unreliable or maybe even incorrect, at least for a subset of individuals. So saying "being diagnosed with CCI does not necessarily mean that...

But then being diagnosed with anything doesn't necessarily mean something. Where does that take us? And what's medicine's answer to that?

But this is a problem with every normal range. Assuming a Gaussian distribution makes it only slightly better - and while there exist outliers in a Gaussian distribution, for most doctors they don't.

It cost me 0€. The surgery itself - that is expensive.

In my experience this happened often. But I might pick the "interesting" ones. :)

Yes, it's a common experience for me, too.