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The most significant part is: While its cause is unknown, specialists insist it is not a disease or an illness. Rather, according to the British Tinnitus Association (BTA), it results from some type of change that can be either mental or physical and may be unrelated to hearing. There is no...

Good stuff. Suitably sincerely frustrated and speaks well for his community.

It says neither the researchers nor the subjects knew this event would occur so it is likely a small paper derived from a larger or different study. It is so weak, purely anecdotal and doesn't seem much use. Looking at some of the papers the primary author has participated in it appears that his...

We have a paralysis tick in Australia. Many animals, especially dogs, die every year from it. Children can get wobbly symptoms from it too but they get better quickly. I was reading that some people are now developing some sort of meat and animal products allergy that causes anaphylactic...

Eesh, where there is the Alex L there is going to be proselytising for his FND hypothesis which is not put forward as an hypothesis but as how it is. He's very active in pushing this barrow. He said to me that CFS is functional. I feel like it's so hard as a patient to push against this sort of...

I had to look up the definition of "transdiagnostic factors". It seems to mean that certain symptoms can be found across a number of conditions and used mostly in psych disorders by the look of it. For instance PTSD diagnostic factors overlap with the symptoms that are diagnostic of depression...

I saw this too, and found it pleasantly satisfying to see such a thing in print. I couldn't help thinking the same; that David Tuller, in coming from a journalist, as opposed to medical background, influences other self respecting reporters to follow suit.

They're a lot harder on papers with findings that declare what they WANT to be wrong.

I wonder about the ‘too hard basket’. I said before they’re disinterested but I wonder if it’s more like discouragement as well as disinterest. Or one informs the other. We had a problem when innocuous notes like ‘unexplained symptoms’ and ‘funny turns’ became MUS. The stronger MUS and the often...

Thanks, @Hutan, you made it sound much more clear. I am surprised that they found the returning sensation from cold to room temp was not more painful in everybody. It doesn't surprise me. And, yes, if certain ones were taking pain killing meds then, what the hell is the point to it? It won't...

Haha! Indeed. I have to admit I read that and went, hey, they actually said straight out they were surprised. I can't quite figure out their possible reasons why their findings are different from expectations. 1. It wasn't painful enough 2. The participants were all women 3. The participants...

Totally agree. They are sociopaths - no empathy. If they think you’re a waste of time or your symptoms are boring they will make up a good reason why they don’t have to bother with you, even come up with a way to prevent you from bothering them again.

It’s a bit mysterious, @Allele. From what I can see and have experienced there was a big empty space where the “too hard” patients got dropped. It seems popular science, Eastern medicine and new age ideas about holistic mind/body is affecting western medicine too, only it’s not really made for...

I agree that it's much more than PACE. The 'functional disorder' hypothesis agrees with the 'findings' of PACE but has it's own evangelical message that many are taking up especially in the neuroscience area. It is a 'train the brain' message that is popular in people who distrust medicine and...

Thanks for the interview! Very nice to hear someone in this field acknowledge the disservice being done to patients and the importance of recognition and validation. I watched the following lecture by Dr Montoya as well which was also very good.

Yes. I get them regularly. They are the central issue of my illness. I have like a fogged out dizzy spell and lose coordination of everything, everything goes weak like a partial seizure. I have slurred speech and inability to form words and I fall down if I don’t get to a bed post haste. It’s...

Fruity?? Some of us are nutty. Others are a little seedy. Even grubby, I’m afraid. Some are mousy and others are just dead meat. All sorts, really. Thanks for the tip!

I think the recent research of epigenetics is suggesting that an original infection can turn off and mess with genes causing subsequent cells to produce peptides that are slightly wrong. This leads to protein misfolding and therefore inefficient nutrient processing, problems with chemical...

Interesting! How much discount did you find for an opened box?? I got my old clunker for $500 with Roho cushion included (!!) from a lady who was much bigger than me so I’m quite outsized by it, still I can put lots of stuff around me to carry. You are supposed to have one that matches your...

Thanks for the welcome, I did get around to writing an intro. My bird is called Boswell and he is his own bird, not usually all sweetness like that but he caught the snooze bug and joined me. Woke me up enough so I got the rare photo.