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    Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (Pre-print 2019/published 2020) Bragée et al

    The post you directly responded to was talking about "[finding] reasons for thinking CCI might be important in ME." I don't understand what kind of relevant information you want from surgeons who have been operating on CCI in general for decades. I don't think anyone is calling into question the...
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    Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (Pre-print 2019/published 2020) Bragée et al

    Your last sentence here sounds like you believed it's hugely overdiagnosed, not that it doesn't exist at all/is never a valuable diagnosis. Is that correct?
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    Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (Pre-print 2019/published 2020) Bragée et al

    Looking for some clarification—are you saying you believe that believe hEDS doesn't exist based on your own clinical experience?
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