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  1. JohnTheJack
    Post

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    I've generated a transcript, though not edited it. Note text is not properly formatted so very long paragraphs.
    Post by: JohnTheJack, Apr 18, 2024 at 8:10 PM in forum: General ME/CFS news
  2. JohnTheJack
    Post

    Who is Simon Wessely?

    There's a whole long controversial and murky history to Wessely's Wikipedia page. It's very tightly controlled and it's very difficult to get...
    Post by: JohnTheJack, Apr 7, 2024 in forum: Psychosomatic news - ME/CFS and Long Covid
  3. JohnTheJack
    Thread

    Article, The Times (London), 06/04/2024, How rogue concussion doctor is still damaging our trust in the science

    How rogue concussion doctor is still damaging our trust in the science Paul McCrory was an influence on paper published in Alzheimer’s journal in...
    Thread by: JohnTheJack, Apr 6, 2024, 1 replies, in forum: Other health news and research
  4. JohnTheJack
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Now up on the C4 News Youtube channel. [MEDIA]
    Post by: JohnTheJack, Apr 4, 2024 in forum: Recruitment into current ME/CFS research studies
  5. JohnTheJack
    Post

    What research do you want to see?

    Grimly proved over the last 4 years, unfortunately.
    Post by: JohnTheJack, Mar 31, 2024 in forum: General Advocacy Discussions
  6. JohnTheJack
    Post

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    Coming to this very late, but prompted by the Vink & Vink preprint, I went back to the original. Still looking through it but I did find...
    Post by: JohnTheJack, Mar 28, 2024 in forum: Psychosomatic research - ME/CFS and Long Covid
  7. JohnTheJack
    Post

    American Psychosomatic Society no longer "Psychosomatic?"

    What it shows yet again is how they adopt patients' descriptions of their illness. It starts back in the 1980s when they say that the only symptom...
    Post by: JohnTheJack, Mar 26, 2024 in forum: Other psychosomatic news and research
  8. JohnTheJack
    Post

    Who is Simon Wessely?

    On the subject of analogies, I'm not sure if this one has been made before but I couldn't help but think of someone when I read this today: 'In...
    Post by: JohnTheJack, Mar 23, 2024 in forum: Psychosomatic news - ME/CFS and Long Covid
  9. JohnTheJack
    Post

    Article by Fiona Fox (SMC) for the Revolutionary Communist Party (c. 1996)

    Nothing of great interest, but some good background stuff. I like the way the Institute of Ideas is described as 'left-wing'. Two things stood...
    Post by: JohnTheJack, Mar 22, 2024 in forum: General ME/CFS news
  10. JohnTheJack
    Post

    Has there ever been any evidence that health professionals are more represented among ME patients?

    Thanks everyone for your interesting answers.
    Post by: JohnTheJack, Mar 22, 2024 in forum: Possible causes and predisposing factor discussion
  11. JohnTheJack
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    If anyone is interested, I have the free Glasp extension on Chrome and it will generate transcripts of any Youtube video. I think it's pretty...
    Post by: JohnTheJack, Mar 21, 2024 in forum: Recruitment into current ME/CFS research studies
  12. JohnTheJack
    Post

    Opinion Appraisal of Clinical Practice Guideline: NICE clinical practice guideline for [ME/CFS]: diagnosis and management, 2024, Sarah Tyson

    It is an interesting question. My own view is that as far as medical help is concerned a properly briefed general practice nurse would be fine. A...
    Post by: JohnTheJack, Mar 16, 2024 in forum: ME/CFS research
  13. JohnTheJack
    Thread

    Has there ever been any evidence that health professionals are more represented among ME patients?

    I've seen this said a lot, particularly in Wessely's earlier work. Does anyone know if there is any actual evidence to support the claim that...
    Thread by: JohnTheJack, Mar 16, 2024, 14 replies, in forum: Possible causes and predisposing factor discussion
  14. JohnTheJack
    Post

    Opinion Appraisal of Clinical Practice Guideline: NICE clinical practice guideline for [ME/CFS]: diagnosis and management, 2024, Sarah Tyson

    This I think is a key point. When you're ready, you do it. We don't need programmes or encouragement. We just start doing more.
    Post by: JohnTheJack, Mar 16, 2024 in forum: ME/CFS research
  15. JohnTheJack
    Post

    ME/CFS vs atypical depression

    This is looks a good definition and description of atypical depression. https://my.clevelandclinic.org/health/diseases/21131-atypical-depression
    Post by: JohnTheJack, Mar 15, 2024 in forum: Psychosomatic news - ME/CFS and Long Covid
  16. JohnTheJack
    Post

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    It is all rather subdued, especially compared to the tirades that have been unleashed in the past. Sharpe's is rather flat.
    Post by: JohnTheJack, Mar 15, 2024 in forum: General ME/CFS news
  17. JohnTheJack
    Post

    News from Australia

    Tweet here suggests there isn't one. [MEDIA]
    Post by: JohnTheJack, Mar 15, 2024 in forum: Regional news
  18. JohnTheJack
    Post

    News from Australia

    That kind of timing is typical. I can remember at least once when the BPS crowd launched something strong here to time with ME Awareness Day.
    Post by: JohnTheJack, Mar 15, 2024 in forum: Regional news
  19. JohnTheJack
    Post

    News from Australia

    I am shocked to see that Sarah Knapton has got in on the act. https://www.telegraph.co.uk/news/2024/03/15/doctors-no-such-thing-as-long-covid/
    Post by: JohnTheJack, Mar 15, 2024 in forum: Regional news
  20. JohnTheJack
    Post

    Who is Simon Wessely?

    I could also call it a lot of other things. But I'd then have to report myself for being political.
    Post by: JohnTheJack, Mar 15, 2024 in forum: Psychosomatic news - ME/CFS and Long Covid
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