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Just for information. I represent the Bragée ME-center. We are as sorrow and supportive for both patients staff at Stora Sköndal and as disappointed as all in this thread, and worried for patients at this dear fellow-clinic, and all in their very long waiting list for care. There are some...

Hi there friends, no foes for me. I think a forum like this should not be a harsh semiacademic scene, but a place for information on a mutual respectful way. Our article is not aimed as an advocacy for surgery but trying to sort things right and present important clinical findings. So i get a...

It will be interesting to se the publication. We will sharpen the criterias in next study for certain, and if you have a more reliable score, it would be wonderful to use as well. We do really not wonder but the hypermobility per se, but the possible collagenopathy and its consequences. Nonsens...

As we state - if you read the article - we made such a Inter Rater Reliability test with good results.

And the MRI findings are objective, I mean, its a question of millimeters and angles, not subjective impressions.

In next study we will use two radiologists, blinded whether it is patient or control. This time blinding was only on other findings. The setting was sort of proof of concept, I was stunned by all hypermobile patients with clear neurological findings, earlier not described in their medical...

In that way this study was blinded, no examiner/radilogist knew more than the scan he scrutinized. I thought you meant blinded to patient, normally used in clinical pharmacological trials.

As long as we study MRI findings and CSF samples and so forth, there is no need for blinding, it is not interventional or randomized. Of course there is a point to have a matched control cohort, we plan such a study, yes.

There are lot of changes and add-ons in the peer-review process, for example we have digged in to fibromyalgia concomittant diagnosis, and brushed up comparisons with expected, normal values of prevalance. The preprint hade some 2300 downloads, but as always, it is the peer-reviewed article that...

Merged thread Neck injuries,hypermobility and signs of Intracranial Hypertension are common among patients with ME/CFS We present new findings supporting this headline today in the highranked Frontiers of Neurology. It can be read or downloaded with open access...

We researchers at our clinicfully agree on the core purpose and values of this organisation: to provide a platform to discuss all aspects of this disease, with a special focus on science, support, and advocacy. We value four things especially high quality scientific research, which will be...