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  1. Hilda Bastian
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Thanks! A point of clarification: I'm not employed by Cochrane and it wasn't out of concern for Cochrane. Nor are there constraints from Cochrane...
    Post by: Hilda Bastian, Jun 8, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  2. Hilda Bastian
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Just two. The emails are on Cochrane's website The email for me/IAG is: cochrane.IAG@gmail.com The person responsible is the editor-in-chief:...
    Post by: Hilda Bastian, Jun 7, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  3. Hilda Bastian
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Thanks for the links about the ACTIVE project. Here's the text from March 2020 - the page is archived here: The review’s revision and update...
    Post by: Hilda Bastian, Jun 7, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  4. Hilda Bastian
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Your question included considering whether particular named individuals would be "part of" the team. None of the authors participated in any of...
    Post by: Hilda Bastian, Jun 6, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  5. Hilda Bastian
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    People working together and talking to each other is a social process, and they're a little community when they work together for a long time -...
    Post by: Hilda Bastian, Jun 6, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  6. Hilda Bastian
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    2 systematic reviewers from Cochrane Response were allocated to that work: I never considered that they weren't well-enough skilled and positioned...
    Post by: Hilda Bastian, Jun 6, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  7. Hilda Bastian
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    All the IAG members do not discuss their health in their bios; some do. That's here.
    Post by: Hilda Bastian, Jun 6, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  8. Hilda Bastian
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    All I can say is the same thing again: the group includes people with different perspectives. I understand some are opposed to that concept...
    Post by: Hilda Bastian, Jun 6, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  9. Hilda Bastian
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    s (a) Sorry - I'm not going to pre-empt the June report here. (But when you think about this, don't forget the IAG is part of the process.) (b)...
    Post by: Hilda Bastian, Jun 6, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  10. Hilda Bastian
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Excellent - thanks! My tunnel vision had me assuming it was a PSP related to NICE from a while ago & it didn't click. So now I'm guessing you mean...
    Post by: Hilda Bastian, Jun 6, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  11. Hilda Bastian
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Yeah, you can do a lot when it's not a pandemic, in an organization going into pandemic response mode, and people suddenly home-schooling left,...
    Post by: Hilda Bastian, Jun 6, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  12. Hilda Bastian
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Yes.
    Post by: Hilda Bastian, Jun 6, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  13. Hilda Bastian
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I agree with just about all of that - w00t!!! The only part I don't agree with is the peer review part: given the history here, the new editors...
    Post by: Hilda Bastian, Jun 6, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  14. Hilda Bastian
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Thanks for your post. Two was the maximum for consumers on this group for this process, with this timeline - but there is the IAG too, there will...
    Post by: Hilda Bastian, Jun 6, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  15. Hilda Bastian
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Thanks, @Trish - sorry, I hadn't seen this had been posted, when I clicked post reply on the post I'd been drafting. I am going to expand on this...
    Post by: Hilda Bastian, Jun 6, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  16. Hilda Bastian
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Thanks for hanging in there to help find a path forward from here, @Hutan. In replying, I'd also like to back to a post by @Trish that also had...
    Post by: Hilda Bastian, Jun 6, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  17. Hilda Bastian
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Thanks, yes - I saw that presentation at the 2020 CMRC meeting, so that was my introduction to her work.
    Post by: Hilda Bastian, Jun 6, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  18. Hilda Bastian
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Since I joined this Forum in May, I assured people that we were working hard and making progress: because reporting was delayed didn't mean that...
    Post by: Hilda Bastian, Jun 6, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  19. Hilda Bastian
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I was answering your first question: if it's on the list, that's the answer to the question of has it been analyzed, because everything on the...
    Post by: Hilda Bastian, Jun 5, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  20. Hilda Bastian
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I took it for granted that I didn't need to repeat that the 3 organizations of people with ME/CFS nominated their own representatives to the IAG...
    Post by: Hilda Bastian, Jun 5, 2021 in forum: 2021 Cochrane Exercise Therapy Review
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