Thanks so much everyone - we're looking forward to answering your questions once again. As well as the papers above, feel free to ask us about:...
Thank you everyone! We're going to wrap up here- sorry that we didn't have time to answer every single question, but our email is...
@Aimossy asked "Is there anything they are able to tell us about what they are finding in their work? If possible." We have held some focus...
Yes! We have in the past focused on ME Awareness Day, in which we host an event to which all students and staff are invited, but we are also...
We are very keen on having extremely rigorous protocols for sample collection and storage - currently, that means that we have to collect them in...
Whew! An easy one... Our fundraising is going really well- including Gift Aid, offline donations and the amount raised by the wonderful Janet...
Sorry to miss this one! We actually do something very similar in reverse- we have a number of samples from people with MS, which we use as...
If you would like to send an email to mecfsbiobank@lshtm.ac.uk you can register your interest! Unfortunately, we can't use everyone- samples have...
@Cheshire asked "I suppose different tests need a different amount of blood to be run (not sure anyway). What volume of blood is collected from a...
All of our samples are from the UK at present. It's possible that one could see geographic differences in the disease, in which case biobanks...
The cost of collecting samples is up to £2500 per participant. It's difficult to say what the costs would be for a new project and it would vary...
These NIH Centres project is very new but we have been and continue to be in contact with a number of researchers from across the USA, and are...
Not specifically re participants moving from mild/moderate to severe - but one of the reasons for doing a longitudinal study across is that...
Yes! We are one of the only collections in the world to collect from severely-affected participants in the home, and the only to do it...
Yes - all applications for samples go through an ethical review and peer review process, to make sure that their studies are of the highest...
We have done some work on this- some publications suggest that up to 90% saving can be made by using biobanks. (So our samples could cost as...
Of course! We would like to look in more detail at gene expression and immunological abnormalities to follow up our existing findings. We think...
Our reply to 'strategist' gives some background on the applications we have received, and we have provided samples for studies of real quality. Of...
We have envisaged this possibility - we have inquired about working with other (non-ME/CFS-specific) biobanks in this effort, and we are also...
We definitely feel interest in ME/CFS is increasing - we think that with Unrest, our NIH renewal and the NIH Centres of Excellence, and the review...
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