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  1. The UK ME/CFS Biobank
    Post

    Questions for the CureME/UK ME/CFS Biobank team, what do you want to ask? [June 2019 Q&A]

    Thanks so much everyone - we're looking forward to answering your questions once again. As well as the papers above, feel free to ask us about:...
    Post by: The UK ME/CFS Biobank, May 6, 2019 in forum: General ME/CFS news
  2. The UK ME/CFS Biobank
    Post

    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    Thank you everyone! We're going to wrap up here- sorry that we didn't have time to answer every single question, but our email is...
    Post by: The UK ME/CFS Biobank, Dec 14, 2017 in forum: ME/CFS research news
  3. The UK ME/CFS Biobank
    Post

    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    @Aimossy asked "Is there anything they are able to tell us about what they are finding in their work? If possible." We have held some focus...
    Post by: The UK ME/CFS Biobank, Dec 14, 2017 in forum: ME/CFS research news
  4. The UK ME/CFS Biobank
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    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    Yes! We have in the past focused on ME Awareness Day, in which we host an event to which all students and staff are invited, but we are also...
    Post by: The UK ME/CFS Biobank, Dec 14, 2017 in forum: ME/CFS research news
  5. The UK ME/CFS Biobank
    Post

    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    We are very keen on having extremely rigorous protocols for sample collection and storage - currently, that means that we have to collect them in...
    Post by: The UK ME/CFS Biobank, Dec 14, 2017 in forum: ME/CFS research news
  6. The UK ME/CFS Biobank
    Post

    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    Whew! An easy one... Our fundraising is going really well- including Gift Aid, offline donations and the amount raised by the wonderful Janet...
    Post by: The UK ME/CFS Biobank, Dec 14, 2017 in forum: ME/CFS research news
  7. The UK ME/CFS Biobank
    Post

    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    Sorry to miss this one! We actually do something very similar in reverse- we have a number of samples from people with MS, which we use as...
    Post by: The UK ME/CFS Biobank, Dec 14, 2017 in forum: ME/CFS research news
  8. The UK ME/CFS Biobank
    Post

    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    If you would like to send an email to mecfsbiobank@lshtm.ac.uk you can register your interest! Unfortunately, we can't use everyone- samples have...
    Post by: The UK ME/CFS Biobank, Dec 14, 2017 in forum: ME/CFS research news
  9. The UK ME/CFS Biobank
    Post

    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    @Cheshire asked "I suppose different tests need a different amount of blood to be run (not sure anyway). What volume of blood is collected from a...
    Post by: The UK ME/CFS Biobank, Dec 14, 2017 in forum: ME/CFS research news
  10. The UK ME/CFS Biobank
    Post

    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    All of our samples are from the UK at present. It's possible that one could see geographic differences in the disease, in which case biobanks...
    Post by: The UK ME/CFS Biobank, Dec 14, 2017 in forum: ME/CFS research news
  11. The UK ME/CFS Biobank
    Post

    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    The cost of collecting samples is up to £2500 per participant. It's difficult to say what the costs would be for a new project and it would vary...
    Post by: The UK ME/CFS Biobank, Dec 14, 2017 in forum: ME/CFS research news
  12. The UK ME/CFS Biobank
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    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    These NIH Centres project is very new but we have been and continue to be in contact with a number of researchers from across the USA, and are...
    Post by: The UK ME/CFS Biobank, Dec 14, 2017 in forum: ME/CFS research news
  13. The UK ME/CFS Biobank
    Post

    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    Not specifically re participants moving from mild/moderate to severe - but one of the reasons for doing a longitudinal study across is that...
    Post by: The UK ME/CFS Biobank, Dec 14, 2017 in forum: ME/CFS research news
  14. The UK ME/CFS Biobank
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    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    Yes! We are one of the only collections in the world to collect from severely-affected participants in the home, and the only to do it...
    Post by: The UK ME/CFS Biobank, Dec 14, 2017 in forum: ME/CFS research news
  15. The UK ME/CFS Biobank
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    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    Yes - all applications for samples go through an ethical review and peer review process, to make sure that their studies are of the highest...
    Post by: The UK ME/CFS Biobank, Dec 14, 2017 in forum: ME/CFS research news
  16. The UK ME/CFS Biobank
    Post

    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    We have done some work on this- some publications suggest that up to 90% saving can be made by using biobanks. (So our samples could cost as...
    Post by: The UK ME/CFS Biobank, Dec 14, 2017 in forum: ME/CFS research news
  17. The UK ME/CFS Biobank
    Post

    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    Of course! We would like to look in more detail at gene expression and immunological abnormalities to follow up our existing findings. We think...
    Post by: The UK ME/CFS Biobank, Dec 14, 2017 in forum: ME/CFS research news
  18. The UK ME/CFS Biobank
    Post

    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    Our reply to 'strategist' gives some background on the applications we have received, and we have provided samples for studies of real quality. Of...
    Post by: The UK ME/CFS Biobank, Dec 14, 2017 in forum: ME/CFS research news
  19. The UK ME/CFS Biobank
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    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    We have envisaged this possibility - we have inquired about working with other (non-ME/CFS-specific) biobanks in this effort, and we are also...
    Post by: The UK ME/CFS Biobank, Dec 14, 2017 in forum: ME/CFS research news
  20. The UK ME/CFS Biobank
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    Researcher Interactions UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

    We definitely feel interest in ME/CFS is increasing - we think that with Unrest, our NIH renewal and the NIH Centres of Excellence, and the review...
    Post by: The UK ME/CFS Biobank, Dec 14, 2017 in forum: ME/CFS research news
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