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  1. Londinium
    Post

    The Occurrence of Hyperactivated Platelets and Fibrinaloid Microclots in ME/CFS, 2022, Nunes, Pretorius et al

    I'm a subscriber but it's paywalled so I'll share the rough gist of the NS article: 25 patients compared to 15 controls. Blood samples analysed...
    Post by: Londinium, Jul 29, 2022 in forum: ME/CFS research
  2. Londinium
    Post

    The Occurrence of Hyperactivated Platelets and Fibrinaloid Microclots in ME/CFS, 2022, Nunes, Pretorius et al

    Was just coming to post this, you beat me to it :) Paper here: https://www.mdpi.com/1424-8247/15/8/931
    Post by: Londinium, Jul 29, 2022 in forum: ME/CFS research
  3. Londinium
    Post

    Long Covid in the media and social media 2022

    Popping up after a long-time absence to share this pretty good editorial from New Scientist: Long covid – the best thing that ever happened to...
    Post by: Londinium, Feb 24, 2022 in forum: Long Covid news
  4. Londinium
    Post

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    Got my copy of Private Eye through the post and it's... not bad? Or at least progress.
    Post by: Londinium, Sep 2, 2021 in forum: UK clinics and doctors
  5. Londinium
    Post

    Harassment claims in the media and social media.

    I don't disagree with the attribution point (hence my caveat about fairness), and certainly don't mean to imply any level of collective guilt. My...
    Post by: Londinium, Aug 31, 2021 in forum: General Advocacy Discussions
  6. Londinium
    Post

    Harassment claims in the media and social media.

    Now I'm back home and my PEM has subsided I thought I would expand on this point a bit more and give some more context/examples. My post above was...
    Post by: Londinium, Aug 30, 2021 in forum: General Advocacy Discussions
  7. Londinium
    Post

    Harassment claims in the media and social media.

    I’ll try and expand on my original post in due course as a short walk yesterday means I feel like I’m being trepanned today. However, to be clear,...
    Post by: Londinium, Aug 25, 2021 in forum: General Advocacy Discussions
  8. Londinium
    Post

    What we're not being told about ME - UnHerd (Tom Chivers)

    It’s an excellent article and I’m pleased he’s not got sidetracked on the ‘physical/psychiatric’ debate but made clear the evidence doesn’t...
    Post by: Londinium, Aug 25, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  9. Londinium
    Post

    Effect of Dietary Coenzyme Q10 Plus NADH Supplementation on Fatigue Perception and Health-Related QoL in ... ME/CFS, 2021, Castro-Marrero et al.

    Because it’s pretty clear they found no difference with the placebo group. Both groups showed some improvement almost certainly due to the placebo...
    Post by: Londinium, Aug 1, 2021 in forum: ME/CFS research
  10. Londinium
    Post

    Article and Documentary BBC: Long Covid: Early findings bring hope for diagnostic tests

    The fascinating part will be once the paper is released and whether we see the autoantibodies that the Imperial team claim to have detected match...
    Post by: Londinium, Jul 12, 2021 in forum: Long Covid news
  11. Londinium
    Post

    biomolecules: Bioenergetic and Proteomic Profiling of Immune Cells in ME/CFS Patients: An Exploratory Study - Fernandez-Guerra et al - 2021

    This field is crying out for replication studies and (to my untrained, somewhat uninformed try) this is yet another study finding similar...
    Post by: Londinium, Jun 29, 2021 in forum: ME/CFS research
  12. Londinium
    Post

    New Scientist - Long Covid: We have ignored post-viral syndromes for too long, 2021, Le Page et al

    Feature article is here: https://www.newscientist.com/article/mg25033403-600-long-covid-do-i-have-it-how-long-will-it-last-and-can-we-treat-it/
    Post by: Londinium, Jun 24, 2021 in forum: General ME/CFS news
  13. Londinium
    Thread

    New Scientist - Long Covid: We have ignored post-viral syndromes for too long, 2021, Le Page et al

    Very good leader in this week's New Scientist, which has Long Covid as a cover story. Behind a paywall so only posting excerpts: IN JUNE last...
    Thread by: Londinium, Jun 24, 2021, 10 replies, in forum: General ME/CFS news
  14. Londinium
    Post

    Elevated Energy Production in Chronic Fatigue Syndrome Patients, Lawson et al. 2016

    Discussed further here:...
    Post by: Londinium, Sep 8, 2020 in forum: ME/CFS research
  15. Londinium
    Post

    The role of IP‐10 in Chronic Fatigue Syndrome, 2018, McArdle et al

    I believe Montoya et al also found correlation between IP-10 (aka CXCL10) and ME/CFS severity: https://pubmed.ncbi.nlm.nih.gov/28760971/
    Post by: Londinium, Aug 24, 2020 in forum: ME/CFS research
  16. Londinium
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The weird thing is that many people (especially doctors) who have had lengthy but temporary post-viral fatigue are unable to explain the mechanism...
    Post by: Londinium, Jul 25, 2020 in forum: Long Covid news
  17. Londinium
    Post

    Concerns about premature linking of Long Covid and ME

    Yep, I said something similar a while back: I think a related point is similar to the old 'Reddit hug of death': if you tweet about having...
    Post by: Londinium, Jul 8, 2020 in forum: Long Covid news
  18. Londinium
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Hopefully not too off-topic, but is there a good understanding of what causes short-term post-viral fatigue? Seems that a lot of post-COVID...
    Post by: Londinium, Jun 29, 2020 in forum: Long Covid news
  19. Londinium
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    https://www.newscientist.com/article/mg24632881-400-why-strange-and-debilitating-coronavirus-symptoms-can-last-for-months/ Not a great piece, bit...
    Post by: Londinium, Jun 26, 2020 in forum: Long Covid news
  20. Londinium
    Post

    DecodeME - UK ME/CFS DNA study underway

    Desktop, Windows 10, Firefox 77.0.1. Do you receive a confirmatory email after registering? I haven't received one but don't know if that's a...
    Post by: Londinium, Jun 23, 2020 in forum: ME/CFS research news
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