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  1. Mattie
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Totally agree with you calling the improvements of Jeff and Jennifer spectacular. I myself have reported symptoms improving and going from severe...
    Post by: Mattie, May 27, 2019 in forum: ME/CFS research news
  2. Mattie
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Current stats show 18 out of 27.
    Post by: Mattie, May 27, 2019 in forum: ME/CFS research news
  3. Mattie
    Post

    Your OMF gift tripled this week!

    Well said Sasha!
    Post by: Mattie, Oct 24, 2018 in forum: Fundraising
  4. Mattie
    Post

    Your OMF gift tripled this week!

    No comment. Not wasting any more energy on your negativity. I feel like crap too. All the time. We all do. But I wonder where all this negativity...
    Post by: Mattie, Oct 24, 2018 in forum: Fundraising
  5. Mattie
    Post

    Your OMF gift tripled this week!

    I think every ME patient should stand behind the OMF instead of criticizing their fundraising methods. We need to throw boatloads of money at...
    Post by: Mattie, Oct 24, 2018 in forum: Fundraising
  6. Mattie
    Post

    Your OMF gift tripled this week!

    Wow... We are talking about Ron Davis and many other highly respected researchers here. Sleazy marketing?? You think he'll be buying a nice new...
    Post by: Mattie, Oct 24, 2018 in forum: Fundraising
  7. Mattie
    Post

    Your OMF gift tripled this week!

    Hard for me to understand this kind of reaction on an ME patients forum. Clearly OMF needs multi millions over the next years. Our governments...
    Post by: Mattie, Oct 24, 2018 in forum: Fundraising
  8. Mattie
    Post

    Your OMF gift tripled this week!

    Not all patients have limited funds. Some may even be loaded. (I’m not) But to be able to triple my donation sounds good to me. Furthermore if...
    Post by: Mattie, Oct 24, 2018 in forum: Fundraising
  9. Mattie
    Post

    Your OMF gift tripled this week!

    Your donation supports: ME/CFS Collaborative Research Centers at Stanford University & Harvard University Cutting-edge, cost-efficient research...
    Post by: Mattie, Oct 23, 2018 in forum: Fundraising
  10. Mattie
    Post

    Your OMF gift tripled this week!

    Indeed It looks like it’s not specified on their website why they are setting a 525.000 dollar goal now. see below. But surely a lot of funding...
    Post by: Mattie, Oct 23, 2018 in forum: Fundraising
  11. Mattie
    Post

    Dutch College of GP's removed ME-CFS guidelines from its website

    I emailed them. their answer comes down to: there is currently no taskforce available to review the guidelines.
    Post by: Mattie, Oct 23, 2018 in forum: General ME/CFS news
  12. Mattie
    Thread

    Your OMF gift tripled this week!

    https://www.omf.ngo/?form=TripleTuesdayOMF [IMG] Triple Tuesday OMF begins today! What if the entire world came together to give? Imagine what...
    Thread by: Mattie, Oct 23, 2018, 97 replies, in forum: Fundraising
  13. Mattie
    Post

    Dutch College of GP's removed ME-CFS guidelines from its website

    So the Dutch College of General Practitioners removed all guidelines. Leaving us without guidelines, but fear not, we also have the "Dutch...
    Post by: Mattie, Oct 9, 2018 in forum: General ME/CFS news
  14. Mattie
    Post

    Dutch College of GP's removed ME-CFS guidelines from its website

    No replacement as far as I can see. Searched their database in every possible way. Thats ok for me, I’d rather have my GP tell me he has no clue...
    Post by: Mattie, Oct 9, 2018 in forum: General ME/CFS news
  15. Mattie
    Post

    Dutch College of GP's removed ME-CFS guidelines from its website

    From their website: Het Nederlands Huisartsen Genootschap (The Dutch College of General Practitioners) is the scientific society of Dutch general...
    Post by: Mattie, Oct 7, 2018 in forum: General ME/CFS news
  16. Mattie
    Thread

    Dutch College of GP's removed ME-CFS guidelines from its website

    Quick and dirty (google) translation from: http://mecvs.nl/nieuws/richtlijn-cvs-uit-2013-geschrapt/ Following the recent Dutch Health Council...
    Thread by: Mattie, Oct 7, 2018, 9 replies, in forum: General ME/CFS news
  17. Mattie
    Post

    Trying Again. What First? D-Ribose? BCAA's?

    Muscle testing, again, good for iHerb. But unproven quackery IMHO. Sorry no tips here. I tried countless supplements. Nothing did anything for...
    Post by: Mattie, Sep 25, 2018 in forum: Other treatments
  18. Mattie
    Post

    Jarred Younger confirms neuroinflammation in brains of ME patients

    exactly the same here
    Post by: Mattie, Sep 25, 2018 in forum: ME/CFS research news
  19. Mattie
    Post

    Trial of CT38 for ME/CFS by Cortene Inc.: big claims being made...

    CT38 Trial: Postponed From: http://birdbeeme.com/cortene-trial-postponed/ 21-09-2018
    Post by: Mattie, Sep 24, 2018 in forum: ME/CFS research
  20. Mattie
    Post

    Dutch journalist asks about pwME's objection to CBT/GET

    I don't think these broadcasts can be viewed from outside the Netherlands? And it's all in dutch obviously. I watched it yesterday. It's pretty...
    Post by: Mattie, Sep 5, 2018 in forum: Advocacy Projects and Campaigns
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