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  1. deleder2k
    Post

    New in-ear device promises to predict fainting, help understand dizziness and brain fog

    has anyone tried to order it? I tried from Norway with VPN, but my cards declined. Tried with a Norwegian, German and UK one. Is it any point in...
    Post by: deleder2k, Nov 20, 2023 in forum: 'Conditions related to ME/CFS' news and research
  2. deleder2k
    Post

    Monitoring Carotid Blood Flow Using In-Ear Wearable Device During Tilt-Table Testing, 2023, Hemantkumar Tripathi MD et al

    Has anyone preordered this? I tried, but no luck. I would assume one needs a US debit/credit card. https://www.stat-health.com/
    Post by: deleder2k, Nov 16, 2023 in forum: Other health news and research
  3. deleder2k
    Post

    Suggested Pathology of Systemic Exertion Intolerance Disease [...] (2019) Bohne

    Do we have any news with respect to oxalates? Has anyone tried supplementing it?
    Post by: deleder2k, Aug 4, 2023 in forum: ME/CFS research
  4. deleder2k
    Post

    Use of sildenafil (viagra) to alter fatigue, functional status and impaired cerebral blood flow in ... CFS, 2020, Friedman (Pfizer)

    Who says anything about hiding symptoms? Viagra has a major effect on me. I experience less pain and fatigue. Not sure if I would be much better...
    Post by: deleder2k, Jun 26, 2021 in forum: ME/CFS research news
  5. deleder2k
    Post

    Patent: Method for the treatment of CFS using an inhibitory or cytotoxic agent against plasma cells, 2021, Fluge, Mella

    Holy cow, that is interesting. Looked at the price of Bortezomib, and it ain't cheap. What is your thoughts on the proposed treatment/patent, and...
    Post by: deleder2k, Apr 25, 2021 in forum: ME/CFS research news
  6. deleder2k
    Post

    Digital ME conference in Stryn, Norway April 13-14th 2021

    @Marky, interesting. Perhaps Obinituzumab will be used...? I asked Fluge about this 6 years ago. He said they were looking into it and other...
    Post by: deleder2k, Apr 22, 2021 in forum: General ME/CFS news
  7. deleder2k
    Post

    Tenuous link between chronic fatigue syndrome and pyruvate dehydrogenase deficiency (2017) Bliksrud

    Do we know what tests he is referring to?
    Post by: deleder2k, Mar 6, 2021 in forum: ME/CFS research
  8. deleder2k
    Post

    Current trial: Reducing Orthostatic Intolerance With Oral Rehydration in ME/CFS Patients 2019 - New York Medical College

    Has anyone that suffers from OI and ME tried this out?
    Post by: deleder2k, Jun 24, 2020 in forum: ME/CFS research
  9. deleder2k
    Post

    Ron Davis’s big immune study is looking at HLA genes (HLA, WTF?) Here’s the story. [Simon M blog]

    I hope someone can translate. I understand Swedish, but I can't do it at the moment. With respect to my post about cyclo and hla-c*07:04; it...
    Post by: deleder2k, Nov 14, 2019 in forum: ME/CFS research news
  10. deleder2k
    Post

    Ron Davis’s big immune study is looking at HLA genes (HLA, WTF?) Here’s the story. [Simon M blog]

    A presentation by dr. Saugstad (Oslo University Hospital). No written documentation or specifics..
    Post by: deleder2k, Nov 12, 2019 in forum: ME/CFS research news
  11. deleder2k
    Post

    Ron Davis’s big immune study is looking at HLA genes (HLA, WTF?) Here’s the story. [Simon M blog]

    Seems like hla-c*07:04 is a predictor of response to cyclo. It is very premature, but how does one test to figure out if ones got this or not?
    Post by: deleder2k, Nov 11, 2019 in forum: ME/CFS research news
  12. deleder2k
    Post

    Is ME a metabolic problem or a signalling problem?

    i bought myself a device to test lactate. Over the years I’ve deteriorated with more fatigue, leg pain, cramps and the feeling of lactic acid....
    Post by: deleder2k, Oct 30, 2019 in forum: ME/CFS research news
  13. deleder2k
    Post

    Suggested Pathology of Systemic Exertion Intolerance Disease [...] (2019) Bohne

    If you look at blood lactate levels in patients they are not normal, but the critics say that they are high due to deconditioning.
    Post by: deleder2k, Jun 17, 2019 in forum: ME/CFS research
  14. deleder2k
    Post

    David Tuller: Trial By Error: Cochrane's Report on Courtney's Complaint

    A fellow PWME sent a FOI request for it. The Norwegian Public Institute of Health had no lawful way of not making it public even if they wanted....
    Post by: deleder2k, Mar 13, 2019 in forum: General ME/CFS news
  15. deleder2k
    Post

    David Tuller: Trial By Error: Cochrane's Report on Courtney's Complaint

    I'm not sure what "sources and methods" mean, but it is from a reliable source. Why Cochrane isn't open with this kind of stuff is a question, but...
    Post by: deleder2k, Mar 13, 2019 in forum: General ME/CFS news
  16. deleder2k
    Post

    2019 International Symposium on Current Issues and Controversies in Psychiatry - Treatment Resistance

    I hope someone will attend and record it.
    Post by: deleder2k, Oct 13, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  17. deleder2k
    Post

    Insights into myalgic encephalomyelitis/chronic fatigue syndrome phenotypes through comprehensive metabolomics, 2018, Lipkin et al

    Has anyone tried ordering B5? "Use of vitamin B supplements was associated with higher levels of pantothenic acid and lower fatigue scores (data...
    Post by: deleder2k, Jul 19, 2018 in forum: ME/CFS research
  18. deleder2k
    Post

    30 & 31 May | Invest in ME Research international colloquium

    To my knowledge they are discussing a blinded cyclo trial, but I don't understand how they can manage to do it while keeping the study blinded....
    Post by: deleder2k, May 31, 2018 in forum: General ME/CFS news
  19. deleder2k
    Post

    Norway and prof. Gundersen: PACE-debate in newspaper Morgenbladet

    If you'd like to write a reply to Gundersen in Morgenbladet ( https://en.wikipedia.org/wiki/Morgenbladet ), please do contact me. We've done...
    Post by: deleder2k, Feb 25, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  20. deleder2k
    Post

    Norway and prof. Gundersen: PACE-debate in newspaper Morgenbladet

    In an article in 2016 Gundersen wrote this about the PACE trial, and the ongoing dispute about the data sheets: Later on he wrote: The...
    Post by: deleder2k, Feb 25, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
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