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  1. Phoebe

    My Two Blogs; Puffins and Penguins & Puffs and Pens.

    Hi all, Some of you may already know about my blog Puffins and Penguins, for my thoughts on life with ME, which I started in 2016. It was doing well and I was really enjoying it, but I moved house in 2019 and it caused a relapse and massive decline in my cognitive function. I then had an...
  2. Phoebe

    ‘descriptions: a patient-led description of ME, composed from the words of people with ME’, a found poem by Alec Finlay

    In November last year Action for ME invited people with ME to complete a questionnaire describing their experience of ME. The responses were collated by Scottish artist and poet Alec Finlay who selected the most expressive phrases, without altering them, to create a collective patient-led...
  3. Phoebe

    Blog: puffins&penguins&me: "This Is How We Become The #MillionsMissing – A New Project For 2019"

    Thanks for sharing. :)
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