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I wish we could opt out of these types of data stores, but alas our data is out there.

It is a noble mission to spread the word to the misinformed.

Shocking! It is as though some of these so called medical professions live in the Middle Ages. Actually if that were true they would have brought out the leeches. Personally I have found most medical advise given to me by close minded individuals to be completely useless. Commonsense doesn't...

Clearly the man does not understand ME/CFS. What a terrible thing to say to PwME.

An excerpt from Maya Dusenbery's book, Doing Harm. Chapter 7 Contested Illnesses: When Diseases Are “Fashionable” I always like to bring someone along myself.

‏ Some compiled tweets from Jennifer Brea that I think paint a better picture. I was in the dark about some of these details.

Hear! Hear! Well said!

Piracy has been around since before the Internet, and just about anything can be pirated. Normally there is nothing to gain from piracy, but in the case of Unrest, the film's message is still getting out. Everyone that watches the film furthers that effort. While it is a shame that direct...

Spot on! ME/CFS the great equalizer.

The fail whale flies again.

I think it is okay to be on Twitter, you just don't need to read everything. I hardly do anyway. Twitter is good to show your support, to share your favorite links, but I don't think it is a platform for the discussion of the big issues. If you need to step away, just uninstall the app or...

We need every eyeball in this fight whether they have directly paid to watch Unrest or not. The advocacy often has to do a lot with little resources, so it is great that people are working so hard to get the word out. We have to remember without Jen Brea's hard work, ME/CFS would not be in the...

I am hopeful the study will bring a greater understanding of the invisible elephant in the room. We know there is an elephant in there, I think I saw his trunk move.

Looks like Gizmodo picked up the story too. https://gizmodo.com/a-faulty-thyroid-might-help-explain-some-cases-of-chron-1823961825

I am sorry you had such bad experiences with LDN. I have seen other people talk about experiencing adverse side-effects. For some it is a reaction to the fillers, for others they just can't tolerate it.

The immune modulation properties of LDN could help people with immune related thyroid issues.

I was just about to post this too. LDN helps in different ways, like helping to keep your thyroid under control, and yes perhaps lowering your level of pain. For some PwME their immune systems are under siege and LDN has in some cases improved their condition. Doctors think this is perhaps...

We kind of saw this coming. It is a tough call for a doctor when patients in pain come to them. The “war on opioids” being waged by today’s policymakers is, in effect, a “war on patients in pain.” Sometimes it is a whole lot easier to put a bandaid on it than to actually look for a better...

Hey that is my line!

Thanks for being here Gary! And even bigger thank you for getting the word out about ME/CFS. We are captivated by your wit and inspired by your passion for advocacy. Here is a working link for Gary's BBC5 interview: http://www.bbc.co.uk/programmes/p05zn3nz