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  1. Russell Fleming
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Not clear why they resigned. All speculation I think at this point. Paul Garner should not have been approached. Why should his opinion matter?...
    Post by: Russell Fleming, Aug 4, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  2. Russell Fleming
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Hoped I would find it. This is from NICE. Not sure if it applies to the ME/CFS Guideline process, but I think we can assume that it does: Link:...
    Post by: Russell Fleming, Jul 15, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  3. Russell Fleming
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Stakeholders would normally see the final draft 12 days (I think) before publication. This would only be to proof-read the document. Not to make...
    Post by: Russell Fleming, Jul 14, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  4. Russell Fleming
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Personally, gutted at the announcement, but professionally it was to be expected and cautiously welcomed. The guideline committee have an awful...
    Post by: Russell Fleming, Mar 30, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  5. Russell Fleming
    Post

    USA: The Long COVID Alliance (set up by SOLVE)

    Washington Post: Renaming of Long Covid to post-acute sequelae of SARS-CoV-2 infection (PASC) - 22 March 2021 What do you think? I wonder how the...
    Post by: Russell Fleming, Mar 24, 2021 in forum: News from organisations
  6. Russell Fleming
    Post

    USA: The Long COVID Alliance (set up by SOLVE)

    @Andy Did you happen to see this article published 22 March 2021? It references Body Politic and Solve ME/CFS... Looks like the Long Covid...
    Post by: Russell Fleming, Mar 24, 2021 in forum: News from organisations
  7. Russell Fleming
    Post

    United Kingdom: News from Forward-ME Group

    Lady Margaret Mar writes them up from a recording she makes of the meeting.
    Post by: Russell Fleming, Oct 9, 2020 in forum: News from organisations
  8. Russell Fleming
    Post

    MEA: Real People. Real Illness. ME Awareness Month 2020.

    Hi Sorry for delay in replying. Busy, busy busy... Link to all the ME Awareness blogs for May: https://www.meassociation.org.uk/2020/05/ Link...
    Post by: Russell Fleming, May 18, 2020 in forum: Advocacy Projects and Campaigns
  9. Russell Fleming
    Post

    UK All Party Parliamentary Group being reactivated - 2020

    That was my bad :) Too many plates in the air this week! We just heard from Carol Monaghan's office that the full details of the meeting are:...
    Post by: Russell Fleming, Jan 10, 2020 in forum: Advocacy Action Alerts
  10. Russell Fleming
    Post

    UK: MRC and NIHR announce ME/CFS workshop, November 2019 & ME/CFS Biomedical Partnership FAQ

    "It was agreed that we need to craft a scientifically robust GWAS application but the more detailed costs now available most likely mean that we...
    Post by: Russell Fleming, Dec 2, 2019 in forum: ME/CFS research news
  11. Russell Fleming
    Post

    UK: MRC and NIHR announce ME/CFS workshop, November 2019 & ME/CFS Biomedical Partnership FAQ

    Fair enough, although Prof. Ponting would have been doing the 20,000 GWAS attached to MEGA :)
    Post by: Russell Fleming, Dec 2, 2019 in forum: ME/CFS research news
  12. Russell Fleming
    Post

    UK: MRC and NIHR announce ME/CFS workshop, November 2019 & ME/CFS Biomedical Partnership FAQ

    I think there's more to it than that. Hopefully the public will learn all about it in due course. We haven't even been informed of the estimated...
    Post by: Russell Fleming, Dec 2, 2019 in forum: ME/CFS research news
  13. Russell Fleming
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Are you able to locate anything that says what the outcome of the legal dispute(s) was? This occurred in 2009 so you'd expect some sort of report...
    Post by: Russell Fleming, Dec 2, 2019 in forum: ME/CFS research news
  14. Russell Fleming
    Post

    UK: MRC and NIHR announce ME/CFS workshop, November 2019 & ME/CFS Biomedical Partnership FAQ

    I find it very strange that nobody has commented on the apparent removal of the proposed expansion of the M.E. Biobank from this project. This was...
    Post by: Russell Fleming, Dec 2, 2019 in forum: ME/CFS research news
  15. Russell Fleming
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Puts me in mind of the 'snakeoil' salesmen that we have come into contact with over the past decades. Several of whom, when questioned, would say,...
    Post by: Russell Fleming, Nov 18, 2019 in forum: ME/CFS research news
  16. Russell Fleming
    Post

    Effects of mirthful laughter on pain tolerance: A randomized controlled investigation, 2019, Lapierre et al

    Is it laughter than might do it - or is it the distraction? When I think of all the other distractions I employ to take my mind off the [include...
    Post by: Russell Fleming, Nov 18, 2019 in forum: Other psychosomatic news and research
  17. Russell Fleming
    Post

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Morning @Natalie Apologies, I have only just seen the alert and wasn't aware of previous conversations between you and Dr Shepherd. We did...
    Post by: Russell Fleming, Oct 3, 2019 in forum: Advocacy Projects and Campaigns
  18. Russell Fleming
    Post

    A perspective on causation of the chronic fatigue syndrome by considering its nosology, 2019, White

    Of course while White is correct about the sheer number of competing criteria for ME/CFS his comments are rather unfair in that most research now...
    Post by: Russell Fleming, Aug 4, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  19. Russell Fleming
    Post

    A perspective on causation of the chronic fatigue syndrome by considering its nosology, 2019, White

    I think there is a need to debate 'neurological' and 'mental' because the latter should I feel slide into the former regardless of our discussions...
    Post by: Russell Fleming, Aug 3, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  20. Russell Fleming
    Post

    A perspective on causation of the chronic fatigue syndrome by considering its nosology, 2019, White

    Hi Nasim, I don't I'm afraid. Couldn't find it. Must be somewhere...? This later website blog from the MEA in 2011 says I think that is should...
    Post by: Russell Fleming, Aug 3, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
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