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  1. April
    Post

    NHS England chief criticises Gwyneth Paltrow's Goop products and Netflix series

    Not to mention MUS.....
    Post by: April, Jan 31, 2020 in forum: Other health news and research
  2. April
    Thread

    NHS England chief criticises Gwyneth Paltrow's Goop products and Netflix series

    NHS England CEO Simon Stevens has accused, quite rightly, Gwyneth Paltrow's 'dubious wellness products and dodgy procedures' of being potentially...
    Thread by: April, Jan 31, 2020, 11 replies, in forum: Other health news and research
  3. April
    Post

    Articles on ME/CFS by Margaret Williams and Professor Malcolm Hooper 1986-2018 With contributions from Eileen Marshall (1994-2007) and others

    I'm not sure that a lot of people outside the UK realise the extent of the damage to patients by SW and Co, although their ideas were exported...
    Post by: April, Dec 31, 2019 in forum: General ME/CFS news
  4. April
    Post

    Articles on ME/CFS by Margaret Williams and Professor Malcolm Hooper 1986-2018 With contributions from Eileen Marshall (1994-2007) and others

    If there is ever a public inquiry about ME these documents could be useful. They definitely need preserving as they document the appalling...
    Post by: April, Dec 30, 2019 in forum: General ME/CFS news
  5. April
    Post

    Open letter to Dr Peter Fisher, Liverpool University, about a research survey on emotional distress and CFS. 2019

    Great letter - thank you. I am looking forward to the response.
    Post by: April, Nov 8, 2019 in forum: Open Letters and Replies
  6. April
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Norwegian M E Association have donated. Now past $90000!
    Post by: April, Apr 28, 2019 in forum: Fundraising
  7. April
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    I don't think there will be another matching pledge but I wonder if someone will make a large donation at the last minute to top up to $95000....
    Post by: April, Apr 27, 2019 in forum: Fundraising
  8. April
    Post

    United Kingdom: Isle of Man ME/CFS and Long Covid services (Manx, ME Support IOM)

    No doubt they will consult the NICE guidelines and come up with the usual CBT/GET. Better off without the 'specialist services' that we have on...
    Post by: April, Apr 27, 2019 in forum: UK clinics and doctors
  9. April
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    I think the $5000 has just been reached.
    Post by: April, Apr 23, 2019 in forum: Fundraising
  10. April
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    It would be good if news of the matching grant could be put somewhere more prominent on the forum.
    Post by: April, Apr 22, 2019 in forum: Fundraising
  11. April
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Today has not been a good day for donations - the total has only gone up a small amount. :(
    Post by: April, Apr 11, 2019 in forum: Fundraising
  12. April
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Last year someone offered matched funding towards the end. Maybe the same will happen this year.
    Post by: April, Apr 5, 2019 in forum: Fundraising
  13. April
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    I didn't have to donate by Paypal.
    Post by: April, Mar 28, 2019 in forum: Fundraising
  14. April
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Really delighted to contribute - thank you so much for all you have done for pwme.
    Post by: April, Mar 28, 2019 in forum: Fundraising
  15. April
    Post

    What could be done about the Science Media Centre (SMC) in the UK

    The Countess of Mar as the Chair of Forward-ME threatened to report the SMC to the Charity Commission last year I think. It was to do with a so...
    Post by: April, Jan 18, 2019 in forum: Advocacy Projects and Campaigns
  16. April
    Post

    Forward-ME Group Minutes – 17th July 2018

    Talking to an opponent is a good thing though. To try to engage with them and get a point over. However I imagine they won't respond to the Countess.
    Post by: April, Oct 10, 2018 in forum: General ME/CFS news
  17. April
    Post

    Forward-ME Group Minutes – 17th July 2018

    I am always amazed at how few of the different charities attend the meetings. There is always a long list of apologies. Obviously not a priority...
    Post by: April, Oct 10, 2018 in forum: General ME/CFS news
  18. April
    Post

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Yes many many thanks for all your hard work.
    Post by: April, Jul 31, 2018 in forum: Disease coding
  19. April
    Post

    Article by Paul Worthley

    Her treatment was paid for by an insurance company. Some ME patients who went there were funded by the ME Trust. Any doctors working there would...
    Post by: April, Jul 8, 2018 in forum: General ME/CFS news
  20. April
    Post

    Article by Paul Worthley

    Somebody I know was in Burrswood a few years ago after being very severely injured in a car crash. She was there for rehabilitation and had a lot...
    Post by: April, Jul 8, 2018 in forum: General ME/CFS news
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