Search results

Where do things stand right now in Lyme World? Things are tribal. Everyone sticks to their own group, their own beliefs. Newbies come and have to sift through scatterings of propaganda and science. Then they have to make a judgement that is sure to be based on incomplete data. Before I got...

Updating Lyme World is akin to updating US politics: It's massive and unwieldy and goes in countless directions. The Science has inched along, but not the diagnostics. We know antibiotics often fail to eradicate Borrelia, but this is hard to prove with today's diagnostic menu. We know some...

I will tackle this in the morning, I promise.

Oh dear. ::} It is too late. Maybe tomorrow? This is horrifically wrong. This is glaringly wrong, like Wesley or short. .. BTW: Hutan, you rock in my eyes, but im just too exhausted..

I have been following this for 15 or so years. But knock yourself out. It feels good to proclaim. Edit. Sorry. @forestglip. In my world, embracing what he says is almost to comparable to wee willy.

Sorry. I figured. You are smart. I get the sense you are a stats person, and I apologize if I'm wrong. My daughter taught stats at Duke, which is a respectable university in the US. With that stats an your back, I'd have to be blind not to see how smart and informed you are. But even I know...

Meh. Non- US people have little idea of what it has been like on the front line in the Lyme wars.. Who did the bad science? Who did the good science? These fundamental questions to this day remain largely unresolved. There is far more politics involved than most suspect. Btw, look who took...

Why the eye-roll? How so? I'm just curious.

Do we know definitively if ME/CFS cannot be passed from mother to infant in the womb?

Thank you. But if these numbers are representative, then - assuming my math is correct - one out of eight ME/CFS cases alone can be attributed to a single variation of channelopathy. One out of 8. And how many variations of channelopathies are there? I have a daughter who taught graduate...

I am not sure if this is relevant, but I think KCNJ18 is a potassium ion gene, as is KCNJ2. They certainly sound similar. Mutations in KCNJ2 are massively pathogenic. We are talking about a major channelopathy when the KCNJ2 variation is at play.

Pick an infection and preface its name with Asymptomatic. For example, asymptomatic Lyme disease. An argument can be made that such an immune response might be subpar. This is like the opposite of immune tolerance, if I understand that concept correctly.

Reads to me like this piece may have been built around a pre-existing opinion. Too many stats seem to get in the way of coherency, at least for me. Cut to the crux: What portion showed any signs of TBD exposure (not the CDC's algorithm or any facsimile of it)? What portion received treatment...

I seem to recall a couple studies suggesting low VEGF in pwME.

I've had over 20 years of clinicians and researchers investigating with blood tests and MRIs and PET scans and urine tests and cardio exams and neuropych exams etc etc. Some were done in earnest. Some were just going through the motions. I can say unequivocally that none of them were adequate...

Our keys aren't necessarily under that light. Rarely, and even then, any number of theories could explain them away. Clearly that is not relevant to our damage. Maybe. We do have epic diagnostic issues. But if recovery does happen, it seems to have been vanishingly rare. But not necessarily...

I don't know. Maybe it doesn't just stop. Maybe the decline continues but at what amounts to an almost imperceptible crawl. I think I'm at my worst now. Not sure, though. Admittedly, my primary template is me. And what I've been reading about and from fellow patients in many forums over the...

Personally, I absolutely believe ME/CFS can be neurodegenerative, but I don't think it needs be an endless spiral downward. It's like we drop so far, and then plateau; the distance we fall varies. This is true for all aspects of ME/CFS. Degrees of ME/CFS symptom impairment never stop surprising me.

Intelligence Quotient? How would you gage intelligence? I've also taken the MOCA and did poorly on that, too. Listen: After a certain undefinable threshold, you know when your intelligence has taken a hit. You know. I think you are misunderstanding me. I'm suggesting these are all cognitive...

"Damage" is in your own definition. I'm not sure I agree. Besides, change in function likely doesn't happen in a vacuum. At the very least, damage of some sort has caused the change in functioning. Sickness behaviour is a spectator concept. It's for animals that cannot communicate with...