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  1. cassava7
    Post

    NIH study - where to start?

    As a note, I have skimmed through Jeannette Burmeister’s blog post but it does not seem to be addressing in depth the methodological concerns as...
    Post by: cassava7, Mar 28, 2024 in forum: ME/CFS research
  2. cassava7
    Thread

    NIH study - where to start?

    I have been out of the loop for a while so I have not read (and am not currently able to) the two long threads on the forums about the NIH study...
    Thread by: cassava7, Mar 28, 2024, 10 replies, in forum: ME/CFS research
  3. cassava7
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    The interesting takeaway for me is that this is evidence that contradicts the argument from the opponents to the NICE guideline that GET can be...
    Post by: cassava7, Mar 4, 2024 in forum: ME/CFS research
  4. cassava7
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    #MEAction have released their analysis of the study: https://www.meaction.net/2024/02/29/meaction-nih-study-response/
    Post by: cassava7, Feb 29, 2024 in forum: ME/CFS research
  5. cassava7
    Post

    NICE guideline on ME/CFS: robust advice based on a thorough review of the evidence, 2024, Barry et al.

    I remember pointing out this piece in the thread on the Anomalies paper. I’m very glad NICE picked up on it.
    Post by: cassava7, Feb 28, 2024 in forum: ME/CFS research
  6. cassava7
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Someone emailed Dr Walitt about the reason for choosing a single rather than a 2-day CPET and got this response back from the NINDS’ Office of...
    Post by: cassava7, Feb 24, 2024 in forum: ME/CFS research
  7. cassava7
    Post

    Review nature reviews cardiology: Cardiovascular autonomic dysfunction in post-COVID-19 syndrome: a major health care burden, Fedorowski et al, 2024

    Unfortunately Dr Fedorowski does not seem open to hearing about the flaws of the PACE trial. He has been blocking people who pointed them out,...
    Post by: cassava7, Jan 17, 2024 in forum: Long Covid research
  8. cassava7
    Post

    Petition to request updating of the description of ME/CFS in Kumar and Clark’s Clinical Medicine textbook.

    I’m surprised to see Dr Nina Muirhead sign this petition independently and not on behalf of Doctors with ME. Does anyone know why that is?
    Post by: cassava7, Jan 9, 2024 in forum: Petitions
  9. cassava7
    Post

    Identification of CD8 T-cell dysfunction associated with symptoms in [ME/CFS] and Long COVID and treatment with a nebulized ... 2023 Gil et al

    Unfortunate news from Janet Dafoe: “Ron Davis has been consulting with this group [Inspiritol].” [MEDIA]
    Post by: cassava7, Jan 2, 2024 in forum: ME/CFS research
  10. cassava7
    Post

    Why the Psychosomatic View on [ME/CFS] Is Inconsistent with Current Evidence and Harmful to Patients, 2023, Thoma et al

    If it were the case then securing funding for biomedical research on ME/CFS should be much easier, as grant reviewers are researchers themselves....
    Post by: cassava7, Jan 1, 2024 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. cassava7
    Thread

    Framing the activists: gender, race, and rhetorical disability in contested illnesses [ME/CFS & Long Covid], V. Jo Hsu, 2023

    For the past five decades, patients with myalgic encephalomyelitis (ME) have struggled against the stereotype that their symptoms are “all in...
    Thread by: cassava7, Dec 27, 2023, 7 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  12. cassava7
    Post

    A thread to talk about muscle biopsies

    Just to chime in, I had a muscle biopsy (left deltoid) done in July and it didn’t show any sign of mitochondrial disease. The only findings were...
    Post by: cassava7, Dec 14, 2023 in forum: Laboratory and genetic testing, medical imaging
  13. cassava7
    Post

    [Preprint] Post-COVID syndrome associated with capillary alterations, macrophage infiltration & distinct transcriptomic signatures in skeletal muscles

    Am I correct in thinking that this study provides experimental support for Fluge and Mella’s proposed pathological mechanism of endothelial...
    Post by: cassava7, Dec 10, 2023 in forum: Long Covid research
  14. cassava7
    Post

    CDC Data Brief: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults: United States, 2021–2022, 2023, Vahratian, Unger et al

    This statistic makes sense given that the substantial disability caused by ME/CFS, even at a “mild” stage, leads patients to not being able to...
    Post by: cassava7, Dec 9, 2023 in forum: ME/CFS research
  15. cassava7
    Post

    Publication bias, statistical power and reporting practices in the Journal of Sports Sciences: potential barriers to replicability, Mesquina+, 2023

    Summary thread on X from author Daniël Lakens: [MEDIA]
    Post by: cassava7, Nov 29, 2023 in forum: Research methodology news and research
  16. cassava7
    Thread

    Publication bias, statistical power and reporting practices in the Journal of Sports Sciences: potential barriers to replicability, Mesquina+, 2023

    Authors from the Technological University Dublin (Ireland) & the Eindhoven University of Technology (Netherlands) Received 30 Jan 2023, Accepted...
    Thread by: cassava7, Nov 29, 2023, 4 replies, in forum: Research methodology news and research
  17. cassava7
    Post

    Against cortical reorganisation, Makin and Krakauer, 2023 (brain rewiring)

    Accompanying summary article in Medical Xpress: Our brains are not able to 'rewire' themselves, despite what most scientists believe, new study...
    Post by: cassava7, Nov 22, 2023 in forum: Other health news and research
  18. cassava7
    Thread

    Against cortical reorganisation, Makin and Krakauer, 2023 (brain rewiring)

    Tamar R Makin MRC Cognition and Brain Sciences Unit, University of Cambridge, Cambridge, United Kingdom John W Krakauer Department of...
    Thread by: cassava7, Nov 22, 2023, 5 replies, in forum: Other health news and research
  19. cassava7
    Post

    Review Frontiers in chronic fatigue syndrome research: An analysis of the top 100 most influential articles in the field, 2023, Wang

    This does not mean much - outside of Western countries, many researchers use mail addresses that are not affiliated to their institutions (often...
    Post by: cassava7, Nov 22, 2023 in forum: ME/CFS research
  20. cassava7
    Post

    Patients with [long Covid] attending a multidisciplinary evaluation: Characteristics, medical conclusions, and satisfaction, Gouraud et al, 2023

    I do not have access to the paper but I have been told that it was 50%. Yes, long haulers who have been there do not recommend it at all....
    Post by: cassava7, Nov 14, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
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