Not sure if this was posted before: HERV activation segregates ME/CFS from fibromyalgia and defines a novel nosological entity for patients...
Just back from the appointment and pretty exhausted, but I thought I'd share. It didn't start well as the consultant asked what could he do for...
Thanks, Kitty!
Thanks, Trish. I also hope the consultant is nice or at very least respectful. Though I have promised myself a huge cake if he isn't. Making it a...
Having been housebound with ME/CFS for over twenty years, I was recently diagnosed with autism and I now have hypermobility assessment tomorrow! I...
I was just looking into autistic burnout, and came across this thread. I am waiting for an assessment for autism, and I've been housebound with ME...
Latest update on rapamycin/rapamune/sirolimus: I increased the dose but the lymph node pain and fatigue flared up badly afterwards. So, I am...
My experience with Rapamycin. I started a few weeks back and would just like to share progress. Background: I've been housebound with ME/CFS for...
Just an update in case anyone has advice... As the months went by, the positive effect of the steroid treatment (kenalog/triamcinolone) waned and...
A little update... I did try the prednisolone steroid. Very sorry that I did because it brought back some very old ME symptoms...crushing...
I wear them and they help to stop fluid pooling in my legs. I also sleep with my head raised - have done for years - as this helped POTS. I'd love...
Interestingly I had the jab in April and still no lymph node pain. Would you expect such as lasting effect? I was rather hoping if I had a relapse...
Thanks everyone. I've been given prednisolone for a skin condition but I'm wary to upset the new balance in my body, and it's good to know that...
Early in the summer I had a synthetic corticosteroid injection (Kenalog: Triamcinolone acetonide) for joint pain. To my surprise, I no longer...
Hi I registered at Cambridge core but don't seem to have any access to books?? Any suggestions??
thanks for this. Will try to log in. Really helpful.
I tried this recently. It did not work for me at all. I felt even more fatigued and flu-like, and spaced out (emotionally detached). Tried a...
Thanks Diluted-biscuit. The flare snoozers are pricey. I guess because they come from Australia (I am in the UK). But will keep them in mind.
Just got my peltor optimum III ear defenders. They seem to be really effective but haven't worn them yet for long periods. They are HUGE! I was...
In case you come back to this thread - thanks for all who contributed here. I just moved house to a noisier neighbourhood and need some ear or...
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