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Hi @Jonathan Edwards, in answer to some of the issues you raised in your in depth response to my post, I did say that my daughter gave up University due to illness, so she is well past being a child, lol. I understand your point on EDS and not seeing similar things in other CCI patients...

To be honest, I presumed most on here wouldn't have a problem with the post, but some of the responses from people a few pages ago were pretty scathing about the whole concept .... :D

Apologies, that was the wrong choice of words. We were told he would publish, rather than any specific info, so it is probably case studies rather than a clinical trial. The point was that information will be released regarding the success or otherwise of the work.

I am sure I will get my head bitten of for this, but lets try anyway: My daughter had HPV vaccinations and became unwell soon afterwards. She subsequently had to leave University as she was sleeping 18+ hours per day. In due course, as nothing else was found, she was given an ME/CFS diagnosis...